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You all already know I have Lichen Sclerosus and Hypothyroidism (both autoimmune disorders).

Well, also, for over twelve months now, on and off, I've also been suffering with vertigo nausea hearing and vision symptoms that a neurologist has determined are episodes of Basilar Migraines.  My question is, could these symptoms be something else? I'm thinking maybe it's linked to my other autoimmune disorders? Because all of this seemed to have started around the same time as my LS symptoms.

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  • Posted

    Maybe look for a major episode of stress. The auto-immune disorders don't cause each other, but they could arise together.
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  • Posted

    Are you like me and neglecting to take regular meals?  

    Butterbur is supposed to be a helpful plant for migraines...it seems to have eclipsed feverfew which was the recommended plant to make into a tea previously.

    I mention the more extreme neuro conditions to give you hope that you can find relief. take care with what you eat and have enough chillout time. hoping this helps. thinking of you!

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  • Posted

    From looking up basiliar migraines, g3, it sounds like it's a young person's problem that tends to go away later. All migraines are stress related and I can't, myself, think of a more stressful time than after I was diagnosed with LS. It would benefit you all-around to find some kind of stress management program that would suit you.

    As Marey says, chillout time is paramount and we need to take care in general to eat healthy food, keep our bowels moving just right. No magic pill, but there's lots we can do.

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  • Posted

    good advice....hope you can find any additional support you may need but we are here as well!
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  • Posted

    Couldn't respond a while ago, due to server issues with the computer.  Catching up now.

    Hypothyroidism was what I got after RAI treatment that made hyper hypo.  However, I hope I remember well, I thought it was Andrea Beaman who was writing - thyroid needs to be in balance with the adrenal glands.  It is also my personal experience.  When my adrenal glands were not functioning in sink with the thyroid vertigo was one of the symptoms.  Vision was affected, and also hearing. I even went to the ear specialist who ordered an MRI .  Strange headaches were also part of that.  

    After the adrenals were gently treated these symptoms over a long period of time gradually disappeared.  

    Hope this is of help to you G. 

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  • Posted

    This is powerful info from hanny and direct personal experience...will you come back to us g and let us know how you are now, and, whether any of this feedback is of any assistance to you at all?

    thinking of you..have every confidence in your ability to tackle this xx

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  • Posted

    Morrell, I had the basilar migraines on and off for the past year and a half.  I didn't find out I had hypothyroidism until about five weeks ago and Lichen Sclerosus only three weeks ago.  So, I don't think it was stress of knowing I had LS that caused the basilar migraines.  The neurologist diagnosed me with basilar migraines after I had MRI to check there was no other problems.  The only stressful thing in my life around the time that my basilar migraines started happening was starting a new job.  But I don't see why that would have been that stressful.  The neurologist has recommended to my doctor that I be prescribed medication for the basilar migraines, but I am unsure whether to start taking them as I personally don't think they are basilar migraines.  I think that my "episodes" are to do with my hypothyroidism.  Perhaps it is like hanny said, an imbalance with my thyroid and my adrenals
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  • Posted

    Anymore news on this possible neuro issue?

    From what you say it might be a hormonal thing ...like a thyroid crash? is that what you're thinking? important to listen to your body as you're doing and to be very wary of diagnosises...as you're also very wisely being. There is a tendency to try to come up with all these diagnosi  ....in order to bag people for drug therapies (and i'm speaking as a nurse who supports  the principle of a healthcare system) sadly there has been a lot of abuse but you seem to be aware of this.

    How are your iodine levels? this is a very significant issue... often overlooked.

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    • Posted

      Hey marey, that's what I think.  I seriously think my episodes of "vertigo" are to do with my hypothyroidism.  The episodes only seem to happen when I am particularly overtired and or particularly stressed.  I can sometimes go weeks before an episode happens, but I have noticed that on a day when I do get an episode I have worked particularly longer shifts or had a lot less time off recently and have not had a decent nights sleep in a few nights.  Also on a day I have an episode I feel completely washed out and work out.  How do I check my iodine levels?  And why is it important?  I have never had that suggested
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    • Posted

      Washed out and worn out not work out lol.  Predictive text is so annoying lol
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