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So, since I was at least 14 (now 27), I can recall getting these pea sized bumps near the crease of my thigh, between my butt cheeks, not on my vulva but close to- purple/blue in color, that would drain then leave these ugly purple scars that are soft and indent into the skin. At 14, I was scared to talk to anyone about it, so I just dealt with it.
They seemed to slack off for a while, and I would only get one or two. I would have flare ups and then none for a while. Some were so painful that it hurt to walk or sit on them. I found that as I've gotten older they don't drain anymore unless they are small. If they are large, it's like they are deeper in the skin and so painful. Ones that I've tried to pop myself, will just bleed, or occasionally release a small amount of pus/blood mix. I've also noticed they will go away, then reoccur months later. I've seen multiple Mds who say, an abscess, folliculitis, cysts, that aren't candidate for drainage or lancing. Just gave me oral antibiotics and sent me away. One gave me topical mupirocin for one that had opened up. Told me to stop shaving with razors in the area.
I was finally referred to a surgeon. In July, I had a place excised with local anesthetic and closed with two sutures. They sent it to pathology and it came back as a chronic abscess. The site healed fine. I didn't have another one until a couple days ago. It's so painful and just tender and is about 0.5 inches from my labia, right in the crease of my thigh. There aren't any HS specialty clinics in my area and I looked on the Hs website but no dermatologist listed for my area that specialize in Hs.
My peri area is scared with all sorts of purple scars. This whole thing makes me feel like I'm nasty (even though I know I'm not) & embarrassed. I'm paranoid that I'll pass them to my husband or that I need to bleach the tub after soaking in Epsom salt to prevent my children from catching it. I just don't know what to do. I have an appointment with the surgeon who excised the last place on January 9th, & I plan to to bring up HS to her.
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