Looking for experience with HS
Posted , 6 users are following.
So, since I was at least 14 (now 27), I can recall getting these pea sized bumps near the crease of my thigh, between my butt cheeks, not on my vulva but close to- purple/blue in color, that would drain then leave these ugly purple scars that are soft and indent into the skin. At 14, I was scared to talk to anyone about it, so I just dealt with it.
They seemed to slack off for a while, and I would only get one or two. I would have flare ups and then none for a while. Some were so painful that it hurt to walk or sit on them. I found that as I've gotten older they don't drain anymore unless they are small. If they are large, it's like they are deeper in the skin and so painful. Ones that I've tried to pop myself, will just bleed, or occasionally release a small amount of pus/blood mix. I've also noticed they will go away, then reoccur months later. I've seen multiple Mds who say, an abscess, folliculitis, cysts, that aren't candidate for drainage or lancing. Just gave me oral antibiotics and sent me away. One gave me topical mupirocin for one that had opened up. Told me to stop shaving with razors in the area.
I was finally referred to a surgeon. In July, I had a place excised with local anesthetic and closed with two sutures. They sent it to pathology and it came back as a chronic abscess. The site healed fine. I didn't have another one until a couple days ago. It's so painful and just tender and is about 0.5 inches from my labia, right in the crease of my thigh. There aren't any HS specialty clinics in my area and I looked on the Hs website but no dermatologist listed for my area that specialize in Hs.
My peri area is scared with all sorts of purple scars. This whole thing makes me feel like I'm nasty (even though I know I'm not) & embarrassed. I'm paranoid that I'll pass them to my husband or that I need to bleach the tub after soaking in Epsom salt to prevent my children from catching it. I just don't know what to do. I have an appointment with the surgeon who excised the last place on January 9th, & I plan to to bring up HS to her.
0 likes, 24 replies
Voidrunner Nurseonthego
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pagal_4200 Voidrunner
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Nurseonthego Voidrunner
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I know it's not contagious, I just feel gross. I'm going to check out the zinc tablets tomorrow and give those a try. I don't smoke, and I haven't really noticed a correlation with food, but I will start a food diary to assess. Thank you for your advice.
Voidrunner pagal_4200
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Basically you need to follow the Paleo diet and exclude nightshades, then when you are clear (no HS) add a food item, if you do not flare up in a few days you are safe to eat that item, it can be a long road but imagine you're rid of HS just because you do not eat nuts...it would be well worth it.
pagal_4200 Voidrunner
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And about zinc pills. Are they useful? And it's side-effects. ?
Voidrunner pagal_4200
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I used them for the past year and a half, no side effects that I can notice, if I use them everyday I get a bit constipated, but every 2 days, nothing. I do tend to take them twice daily if I spot a boil early, that normally helps it come out in 2 days and take 2 days to heal, then I'll fall back to 1 every 2 days, the only drawback is that it's not a cure, I skipped it for a week and had a full HS flare up. busy getting that under control now, after 4 days the lesions ar almost healed up again. I only used zinc pills, no antibiotics or anything else, I also only uses clean bandages with no salves or anything, the lesions need to finish bleeding and heal dry.
Voidrunner pagal_4200
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pagal_4200 Voidrunner
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Voidrunner pagal_4200
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pagal_4200 Voidrunner
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Voidrunner pagal_4200
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pagal_4200 Voidrunner
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Hmm thank you Boss for your timing
Nurseonthego Voidrunner
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Voidrunner Nurseonthego
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Hi, I'm taking 70mg , I dont think multi-vitamins is going to cut it, the zinc pills I buy cost between 3$ and 5$ for a 100
pagal_4200 Voidrunner
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Muskoka_Canada pagal_4200
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Pagal, I would like to recommend you talk with your doctor before taking any supplements, just because it is natural doesn't mean it is right for you... Some supplements can be just as dangerous as pharmaceuticals, please use caution.
pagal_4200 Muskoka_Canada
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Mrs houdini, I went to different doctors except 1 or 2. Others said that there is no treatment for this disease. medicines are expensives not in insurance. I am facing this disease since 2015. And now I am jobless. So I am trying to get more n more information about treatment so that new patient's in this page, not face this disease just like I did
Muskoka_Canada pagal_4200
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I do understand, and I hope I didn't offend you
Voidrunner Muskoka_Canada
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