Posted , 7 users are following.
Hi everybody
Is there a way or a link where its possible to connect with people with fibromyalgia?
Also to meet them. I dont know anybody with this desease and since my friends are too busy enjoying life i am now alone.
Thanks
Stella
0 likes, 8 replies
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bic24773 stellina
Posted
Hi, have you tried fb
I have a lot of friends with fibromyalgia on there but I'm not in a support group because I only have the symptoms no diagnosis but I do have ms. Good luck
stellina bic24773
Posted
I dont like writing on fb. Everybody can see there
Oompa stellina
Posted
This is a good starting point, and I know the feeling. There are groups out there, but you need to go online and check but not many around. Where are you from? I tried for groups in Birmingham, UK and couldn't find any accessible.
stellina Oompa
Posted
Oompa stellina
Posted
Hi Stellina, sometimes places of worship have group sessions maybe that is a way to make friends, there are a lot of clubs and they're not always associated with a religion. I'm not sure if there are anything like that in the Netherlands, but we have them here. You can maybe start a book club with neighbours and friends this will then encourage people to get together and make more friends. Maybe join classes while taking on a hobby that is a good way to meet others and strike up a friendship. If you were in the UK I would be in touch x
pippa34194 Oompa
Posted
Hi sorry to butt in here but I was just looking for support groups in Birmingham UK and found this thread.
I was diagnosed with fibromylagia about 2 years ago and have been looking for a group ever since. I've found plenty but unfortunately not in Birmingham. I'm thinking of starting one. Let me know if you're interested.
Ewcia stellina
Posted
U can write to me any time
Ewa
sarah96415 stellina
Posted
Hi ya,
Since falling so ill with fibromyaligia, prolapsed disc causing sciatica and depression i have found a change in friendships. At 1st i felt hurt and frustrated that i could no linger socialise like i used to but i have found other ways of meeting friends and these are what i did.
I started water aerobics which i try to do once a week. So many people were really welcoming and it felt so good in the water and hearing songs i used to dance to and it really lifts my mood and you do get opportunity of meeting others there.
I found out there was a craft group 1 morning a week at my local church. Everyone who goes chooses what they want to do, we sit around a large seating area and have Tea/coffee and chats. It had been a game changer for me and i've had lots of laughs and new friends that are there for each other. I met up with some of them at a cafe for breakfast yesterday and its lovely to socialise instead of being stuck in at home on my own.
I also have become good friends with several neighbours.
All my new friends take me for who i am now and if im too unwell to do anything and have to cancel plans they are really understanding.
The good thing with joining these groups is im not expected to attend every week but i do my best to go and really enjoy them.
Hope this helps some of you, your not alone and their are some lovely people out there wanting good friemdships too