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Looking for Myelofibrosis treatment

Posted , 3 users are following.

bsoliman2
bsoliman2

Hello everyone,

I am 58 years old, and I have dignosed as myelofibrosis from 4 years ago, I was put on supportive measurs by blood trasportation (few times a year i.e. whenever the hemoglobin drops below specific value),  am looking for better treatment in UK or anywhere in the world other than Bone Marrow or Stem Cell implantation.

I would appreciate you replies 

Regards

2 likes, 3 replies

3 Replies

  • HazzaMcBazza23
    HazzaMcBazza23 bsoliman2

    Posted

    Hi - I just saw your appeal for help on the haemochromatosis forum and my initial reaction was i'm not sure that myelofibrosis  is a complication of hereditary haemochromatosis. I've not heard of this before but that may be a consequence of my ignorance! Suggest you try a blood disorder forum and you may strike a vew people with the same problem. It sounds a rare and complicated condition. Good luck
  • sreeram
    sreeram bsoliman2

    Posted

    I am also recently diagnoised with similar ailment.  Back in India it is done in India - Delhi (BLK Hospital), Mumbai, Hyderabad (Indo American Cancer hospital + American Oncology Hospital) , Madurai (Meenakshi Hospital) and costs are very less.  They do both autologous & autogenic and few hospitals like BLK also do transplants irrespective of blood group matching using specialized techniques and yet successful.
  • sreeram
    sreeram bsoliman2

    Posted

    I am also recently diagnoised with similar ailment.  Back in India it is done in India - Delhi (BLK Hospital), Mumbai, Hyderabad (Indo American Cancer hospital + American Oncology Hospital) , Madurai (Meenakshi Hospital) and costs are very less.  They do both autologous & autogenic and few hospitals like BLK also do transplants irrespective of blood group matching using specialized techniques and yet successful.  Autologous costs US $ 10,000, Autogenic costs US $ 30,000 to 40,000 (max)   
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