Looking for NYC Doctor for Radical Prostatectomy
Posted , 11 users are following.
My name is Keith Nice to meet all of you I have read quite few of your comments and I am grateful for your responses to people in need ! I would like to ask you some questions if ok with you I hope ! ? Here is my background
I am 59 excellent physical shape my PSA . 4.6 . My Father had prostate cancer but and had his prostrate removed and lived for many years after and died of a series of strokes
I had 12 biopsies done on 6/5/18 . 8 out of 12 showed cancer involvement
Here is Pathology Report
Right Base Needle Biopsy
1.)Adenocarcinoma of Prostrate Gleason Score of 7 . (3+4) . involving 40 % of tissue
comment: Perineural Invasion is identified (from what I can tell this is not good)
Right Mid Needle Biopsy
2.) .
Adenocarcinoma of Prostrate Gleason Score of 6 . (3+3) . involving 50 % of tissue
comment 2 out of 4 cores involved by Tumor
High Grade Prostatic Intraepithelial neoplasia (HGPIN) is also present . ??
Right Apex Needle Biopsy
3.)
Adenocarcinoma of Prostrate Gleason Score of 6 . (3+3) . involving 75 % of tissue
Left Base Needle Biopsy
4.)
Adenocarcinoma of Prostrate Gleason Score of 6 . (3+3) . involving less than 5 % of tissue
Left Mid
Adenocarcinoma of Prostrate Gleason Score of 6 . (3+3) . involving less than 5 % of tissue 2 out of 4 cores involved by Tumor
comment a rare atypical gland is seen in a third core . ??
Left Apex Needle Biopsy
6.)
Adenocarcinoma of Prostrate Gleason Score of 6 . (3+3) . involving 10 % of tissue
My questions are . What does this mean ? especially the comment Perinueral invasion is identified ? I am leaning towards Removing my Prostrate but do not have any leads for a qualified Surgeon in the NYC area
Do you have any recommendations ?? Very Grateful for your help and input
Thank You . Keith
0 likes, 41 replies
sharpcut
Posted
Dr Eastham . No Appointments until August 6th Then 2 weeks for MRI examine So not sure I want to wait 8- 9 weeks prior to getting surgery or a date for surgery ??? I may get the MRI from my local Urologist . MSK said as long as MRI is 3 T and no contrast They can evaluate as well ! This may help expedite if I wait for Eastham
Dr Tewari . I have an appointment for July 12th for consult And Tentative surgery date for early August ??? I am not sure about this Surgeon . I know people have been happy with Tewari but think he may be interested in keeping his numbers up ! I have absolutely no facts to support this ! Just talking to assistant
Dr Zelephsky Yet to call . Still worried that if cancer comes Back Hard to remove prostrate Yet Tall Allen has given me good reason to go ahead with a consult
Any comments or questions welcomed .
Thank You All for your support . keith
Age 59
4/18 PSA 4.6 . G8 FamilyHistory PC
sharpcut
Posted
Dr Eastham . No Appointments until August 6th Then 2 weeks for MRI examine So not sure I want to wait 8- 9 weeks prior to getting surgery or a date for surgery ??? I may get the MRI from my local Urologist . MSK said as long as MRI is 3 T and no contrast They can evaluate as well ! This may help expedite if I wait for Eastham
Dr Tewari . I have an appointment for July 12th for consult And Tentative surgery date for early August ??? I am not sure about this Surgeon . I know people have been happy with Tewari but think he may be interested in keeping his numbers up ! I have absolutely no facts to support this ! Just talking to assistant
Dr Zelephsky Yet to call . Still worried that if cancer comes Back Hard to remove prostrate Yet Tall Allen has given me good reason to go ahead with a consult
Any comments or questions welcomed .
Thank You All for your support . keith
Age 59
4/18 PSA 4.6 . G8 FamilyHistory PC
rocketman42 sharpcut
Posted
The wait for Eastham is that long because of the high demand to see him. Please note he specializes in salvage prostatectomy (removal after radiation ) so that discussion will be valuable in answering your questions.
Dr Z is also in high demand so I suggest you call for an appt as soon as possible. I found him to be quiet forthcoming, with no agenda, so he will be honest as to which route he feels will serve you best. At the very least you will establish a relationship should you need him in the future.
It is quite normal to want to get your treatment done ASAP and put it behind you but IMHO you will be missing out on valuable info if you don’t consult with both of them prior to making a decision. Take your time and eventually the answer you feel comfortable with will become clear.
sharpcut rocketman42
Posted
n-mac sharpcut
Posted
Hi Sharpcut,
First of all, IMO your disease is not to the point that July 6, Aug 6, or even Sep 6 will make a difference. You have time. The infiltration into both the right and left Apex areas does bother me because from what I learned earlier on, the Apex areas are open to the seminal vesicles, and that is a common pathway for the crap to get out and spread. However, on the positive side, those cores came back as a G6, and not a more aggressive G7.
If you don't want to wait until 08/06, then please consider again the advice I gave you in an earlier post of submitted here (applicable portions of it pasted below for ease of reference). If it where me, and did not want to wait, then I'd try to see if I could get seen earlier by Dr. Coleman. Why Dr. Coleman? Because he along with Dr. Edhaie are leading experts on almost all known focal treatment alternatives, and you may be a good candidate for one of those such as TOOKAD-Soluble vascular-targeted photodynamic for which Drs. Coleman and Edhaie are the lead researchers. In addition, if you ultimately decide that RALRP is the best choice for you, then I know from first hand experience that you cannot find a better surgeon to perform it than Dr. Coleman. If you can get in to see Dr. Coleman in a time frame that better suites you, then I highly recommend you have the 3T MRI done at MSKCC, and not go elsewhere.
Finally, during my investigation phase, I had a consultation visit with Dr. Tewari. As I recall in my imperfect memory, Dr. Tewari performs something like up to 4 RALRPs per day, 4 to 5 days per week. For me, that seemed to be far too much in order to be able to ensure the very best in terms, of care, accuracy, attention to detail, and overall quality. Instead, to me the 2-per day (one morning and one after lunch) during 2-days per week (Thursday & Friday), seemed to be the optimal balance between staying at the top of one's surgical game and burn-out, or put another way "The Sweet Spot". I liken it to the perfect Goldilocks fit, not too big, not to small, but just right. In addition, it became very clear to me that when it comes to organization, dependability, punctuality, and clarity around everything, MSKCC far exceeded the set up I experienced at Mt. Sinai. It was so much so that to keep it short I'll just say that I got a very uneasy feeling during my consultation visit at Mt. Sinai, whereas at MSKCC I left feeling relieved, hopeful, and totally confident that they really (I mean really) had their act together.
Okay, with the above and the below, I think that I've contributed all that I can here. The rest is up to you.
Best,
n-mac.
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Regardless, my very best advice is get yourself to MSKCC in NYC to have appointments with the following:
Dr. Edhaie to overall see about AS, HIFU focal, or RALRP as viable options. He performed my biopsy, and in the end gave me what I think turned out to be the best possible treatment opinion and advice in my specific case. Every case and individual are different, so you'll need to journey deep on your own with the experts at MSKCC to get to your personal plan of action.
Drs. Coleman, Laudone, or Eastham for RALRP. IMO, any of them are a great choice. Dr. Coleman performed my RALRP on 03/31/17, and like Dr. Edhaie is also IMO a leading expert in focal treatments. To say the least, now almost 15-months later, I'm a happy camper. 100% dry from the moment catheter removed at 7-days post surgery. Sexual potency back to at or near 100% pre-surgery. Had a dip @ 5 to 6 months post surgery, but persistence, determination, and Tadalafil (small doses) paid off. Only missing part, and somewhat of a downside is the no more can spew the sauce, so to speak. [razz]
Dr. Zelefsky for all radiation related treatment options. There are several available depending on the diagnosis specifics.
Dr. John Mulhall for pre-treatment preparation, and post treatment male sexual health healing, recovery and maintenance.
IMO, you're very fortunate to be located in the NYC area just because of the fact that MSKCC is a reasonably convenient alternative for your treatment and must hopefully a terrific out come.
richard98806 sharpcut
Posted
Go with the Dr you are most comfortable with. Securing an MRI prior to seeing that Dr seems to make sense if you think that will expedite the surgery. I understand your concern to move this along as quickly as possible, but a few extra weeks shouldn't make a difference (I am NOT a Dr). Good luck
sharpcut richard98806
Posted