Looking for people who have experienced Lyme disease

Posted , 6 users are following.

This discussion has been locked due to a period of inactivity. Start a new discussion

Dear all,

I work at the BBC, and we are looking at producing a short film exploring the dangers of tick bites, and the need for a rapid diagnosis of Lyme disease. However, we would love to get in contact with someone who has now been positively diagnosed, but has been a chronic sufferer for some time and origionally may have struggled to put a name to the symptoms that they were experiencing. Your help and discussion with us of your experiences would aid us in bringing this disease to public attention, which i'm sure you agree would be a worthy cause.

If you think that you could help us in this, then please reply,

Elizabeth Ford

[color=green:cc2eb204bf][size=9:cc2eb204bf][b:cc2eb204bf][i:cc2eb204bf](If you wish to communicate directly with people, you should register, for free, with the forum (click Register in the menu list below the green banner above). You and other registered members will then be able to communicate with each other via Private Messaging (PM) or e-mail.) [/i:cc2eb204bf][/b:cc2eb204bf][/size:cc2eb204bf][/color:cc2eb204bf]

0 likes, 5 replies


5 Replies

  • Posted

    Hi Elizabeth

    Please could you register with the forum so that anyone interested in taking part are able to provide you with their details by Private Message (PM) or e-mail.

    Patient Admin Team

  • Posted

    I am delighted to hear you are doing something to bring this into the media. There is so much information.

    I have been sick 5 1/2 years the first two arthritis symptoms that varied. The last 3 1/2 years I have sufferred debilitating arthritis and muscle weakness. Seen several Doctors 3 rheumatologists had a variety of diagnosis strained hips, Poly Myalgia Rheumatica, ME/CFS. GP considered Lyme Disease after improvement in symptoms when put on antibiotics for chest infection. Several patients had presented with EM rash some with positive NHS tests. Blood test are unreliable and my NHS tests came back negative as to be expected after a year of steroids and some months of antibiotics. GP continued to treat me on antibiotics inspite of HPA advise and eventually I saw a specialist privately. I am at last getting my health back no pain or debility in fact life is a joy. 5 1/2 years of pain and sufferring could have been avoided with a simple course of antibiotics taken at the time of the bite or rash.

    HPA follow IDSA guidelines these are being reviewed following legal action against several of the authors for financial interests in Insurance, Vaccine production and research. I found my private Dr through charity website lymediseaseaction he may even be happy to give you an interview. Look at trailer of Under our Skin try U Tube. I have DVD and it is amazing the controversay going on. Read Pam Weintraube's book Cure Unknown as a science journalist she really gets to the route of the controversay.

    My MP Shadow Health Secretary and several other MP's are very interested in what is going on. I have made contact with several other people in Guildford area who have been diagnosed all with differring symptoms. Like Syphillis it can affect every system in the body and so present similar to many other illnesses no wonder our doctors following HPA advise have difficulty diagnosing and treating patients. I am lucky but lots of patients I talk with on Eurolyme have more serious problems than me. My biggest concern is for children who will contract it more easily playing in the grass.

    Good luck looking forward to seeing your program see if you can get an extract from DVD played.

  • Posted

    I have just found this site and realise that Elizabeth Ford wrote in July and my reply may be too late.

    However, is it possible to get in touch with Elizabeth of the BBC regarding Lyme disease.

    I have had Lyme for 13 years but was not diagnosed until 2006. So from 1995 (recorded tick bite) to 2006 I had been told I had MS which was diagnosed in 2001

  • Posted

    well i am a lyme suffere who has been misdiagnosed for 20+years .

    i can now say that i have personal proof of lymes from the 50 odd photos of the ,outward results of the condition taken with my own microscope camera .

    if you want i will suppy you with copies of all the stages of ticks within my body .

    my doctors still refuse to aknowledge lyme.

  • Posted

    i have already sent e/mails direct to you with photos taken at 2-500x of the rash and red spot sites on my body ,

    if your really interested then contact me direct .

    mr rs hughes


    [color=green:7433fdc396][size=9:7433fdc396][i:7433fdc396][b:7433fdc396](Sorry but Patient Admin have removed either a telephone number, an email address, a postal address and or web address, from this posting, as it is the policy of Patient UK not to publish these on this forum) [/b:7433fdc396][/i:7433fdc396][/size:7433fdc396][/color:7433fdc396]


Join this discussion or start a new one?

New discussion

Report as inappropriate

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up