Looks like it is PMR...is it GCA though?
Posted , 8 users are following.
Been on 50mg prednisone for 5 days. Pain in arms gone completely. Occasional twinge in shoulders and neck. Still having some blurred vision and jaw pain at times. My ESR is 30. Dr doesn't think GCA but sending me for biopsy anyway. Will keep me on 50mg prednisone for another week. Is ESR usually higher than 30 with GCA? Any experience of similar symptoms out there? Thanks.
0 likes, 12 replies
ptolemy Buffy61
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Buffy61 ptolemy
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MrsO-UK_Surrey Buffy61
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Ardern Buffy61
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I been diagioned with Temporal Arteritis though a biopsy, but I had blood tests done every other Monday and through the first 4 weeks my ESR Max out at 15 and CRP was low as well. It was only after I started taken Pred that CRP climb up to over a 100. I had server jaw pain some short cases of ocular migraine at the begining and no temporal head aches I was on asprin based pain killers for almost a month before taking the Preds. My GP says he is now looking at this disease in a whole new light. This disease seems to affect everyone in different ways. I started at 50 mg and that was increased to 60 at the begining of Nov I am down to 18 without any flare ups just loose spelling.
Good Luck
Buffy61 Ardern
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I have had jaw pain for probably a month...even prompted a visit to dentist. Pain in side of face and blurred vision around the same time. Since starting prednisone I have a headache at times and blurred vision at times...long distance vision.
Ardern Buffy61
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Buffy61 Ardern
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Ardern Buffy61
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Since Mid Oct I have had CT scan first followed by 2 MRI scans with some form of miaging dye. The first Mri reveiled some try of abnomaties withe the arterties but the second one was normal and that one also covered the arterties in the neck. Some ting between the first and second MRI i had positive results from a superfucial temporal arterties biospy. To me is seems that MRIs aren,t as good as a biopsy. I have been tod to cut back on the Preds but be prepared for some problems down the road in the way of a flare up
JanSP Buffy61
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paula63201 JanSP
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All the best with cataract surgery. I had mine done last June and feel clairvoyant!! How long have you had GCA and how long were you on 60 mgs. How much are you taking now?
JanSP paula63201
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I developed CGA in June of 2009, 3 days after an infusion of Reclast for my bones. I was put on 60mg of pred as I was for the 4 flares. This last flare the pred had to be moved up to 80mg before I started my taper. I'm now at 30mg. When I had my PMR I was put on 40mg. I don't remember what the doesage for the PMR flare was.
Yesterday's cataract surgery went smoothly. Thanks for the good wishes. Things are still blurry but I know it's temporary. Second eye will be done in 2 weeks.
paula63201 JanSP
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Thanks for responding. Am so glad for you that the suregey went well! Good luck for the next one.