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Loosing strength?

Posted , 3 users are following.

dee01002
dee01002

Hi again. Not yet been formerly diagnosed as can't get another appointment at my GP (trying for 2wks now) I'm a bit freaked out this morning as I'm loosing strength in my arms!? I've stopped all major heavy lifting like big furniture etc as it gives me an instand migrane. I loose strength in my legs of but still manage. Recently when plating my daughters hair at night I can't keep my arms level.. they burn and hurt. I just shake it of every couple mins. The other day I was helping put a light fitting up with a friend and I couldn't! ? I put up with the pain tried to block it out till I was nearly crying. Now this morning I'm painting a tall boy and my arms keep dropping while hurting/burning. I'm on my own  so trying toreally push myself and I actually cant do it! Actually had a good past couple days otherwise. I bit stiff but nothing to complain about. x

0 likes, 13 replies

13 Replies

  • cherl450
    cherl450 dee01002

    Posted

    Hi there Dee

    You poor thing hun it is scary when you get the burning and your arms dont wontto work well and that try and get an emergancy appoiment with doctor as you cant carry on like this have they done a MRI on your brain and back to rule out other things, have you taken any pain relife to help you, like us all you can get good days and bad days try not to overdo things on a good day as it could trigger it off im in pain daily so trying to sort a good day out but hun your not alone were all here for you always xxx

    can i ask do you have any family near you or a good friend that you can talk to and lend a hand

    my love to you always and were always here for you

    Cherl

    xxxx

    • dee01002
      dee01002 cherl450

      Posted

      Hi Cherl thanks for your reply. I've been trying for an emergency app for almost 2 wks and theyre always fully booked. I sit on hold for 30-45 mins every morning and told abruptly theyre full then hung up on even though Im waiting for my 2nd biopsy result (unrelated cervix remived due to bad smear) I've only had blood tests, no ones ever even touched me or asked me to bend etc they throw all sorts of painkillers at me. At the moment Im on cocodamol 30/500 and dicloflenac.  I live with my daughter and husband (theyre out today) but to be honest I don't tell ppl I don't like to moan and sort of try to just get on with it. Alot if the time with rears running down my face like when my legs are bad and Im going up stairs. But this arm thing I can't actually do it doesn't seem to matter how much I try. x
    • cherl450
      cherl450 dee01002

      Posted

      Hi there Dee

      You either need to go into your doctors and tell them your not moving to you are seen or go to your nearset a and e as they are really good at some of them, for many ears i was only ever getting slight  pain in my arms and legs and legs spasms when i did tell the doctor he used to baically say ot was all in my mind in the end i changed doctors then my pain went to a new level and i starting collapsing and it was then i was rushed in for my heart and while as a in paitent the doctors noticed my blood wasnt right and asked if i minded this being looked into and then asked if they could do i bone biopsy then i was diagnosed with myelodysplasia a disease of the bloods and the way the work so i was sent to see a Heomotolgist who noticed my other problems and refered me to a Rheumatologist who ordered Mri on back and Brain which was all normal he then refered me to nueroglist who tried saying it was all down to Migraines and i went and saw my Rheumatologist again and he said it wasnt Migraines and said i have chronic Arthritis in my knees shoulder and lower back and my bloods are inclusive and diagnosed me with Fibro but still checking for ms and something else he said but it took me 15 years to convince them that therewas something wrong with me, my life is ruined i cant work as some days i cant remeber even how to do the simply things i get constan  shakes in pain daily i collapse alot i have heart conditon too as in 2000 i had a heat attact also got this blood problem so life is so hard for me i try to keep active as my body will let me be but it is very hard i know if i couldnt get an appoiment i would sit there to i was seen but its good to talk to people how you feel hun dont do it alone you really need to be brave and tell them so they can help you too sorry to go on alot and demand they do proper tests 

      Love always cherl

      xxx

    • dee01002
      dee01002 cherl450

      Posted

      Hi Cherl, sounds like youve had alot of hassle with gps etc too. I feel more comfortable speaking here. I don't want to worry my husband or daughter and the rest of my family I don't think really care. Well they've never asked regarding my op for cervix so I just don't tell them any more. I have been considering changing surgerys but a bit scared to incase they're worse haha. Do you mind me asking where about you are? x
    • cherl450
      cherl450 dee01002

      Posted

      HI thats fine hun im in Scotland  but dont be scared because when you register with a new gy the make a new appoimnet to see doctor to discuss you medica lhealth i seen my new one in a few days 

      xxxx

    • dee01002
      dee01002 cherl450

      Posted

      Oh I'm Scotland too. It's def an option if I can't get an appointment this wk x
    • cherl450
      cherl450 dee01002

      Posted

      HI hun what part of Scotland are you inif you dont mind me asking phereaps if its not too far away we should meet up and have a coffea at least you can chat to me 

      love always

      Cherl x

    • dee01002
      dee01002 cherl450

      Posted

      Hiya probably the opposite end haha I'm in Arbroath smile
    • cherl450
      cherl450 dee01002

      Posted

      Hiya Dee 

      yep miles away shame im in Falkirk in west lothian xxxxcry

       

  • anne90395
    anne90395 dee01002

    Posted

    hello Dee,

    Sorry to hear about your problems, losing strength in your arms. This is what has happened to me - so frustrating! Lucky if I can open a bottle these days! So I have to accept -can't do it. I take care when I am stretching, and certainly don't extend my right arm ( it's the painful one). Something we have to accept, and pace ourselves to manage this condition.

    Take care., Anne

    • dee01002
      dee01002 anne90395

      Posted

      Thank you for your reply Anne. Its very scarey when I'm trying to plat my daughters hair at night.. something I've done for 9 years daily and my arms just drop rolleyes burning in pain. Im keeping at it at the moment until I can actually get an appointment at my gp (nearly 4wks now I've been trying)
  • anne90395
    anne90395 dee01002

    Posted

    Hello Dee,

    Thanx for your reply. This condition is horrible, and as you say, scary when you can't do something you have been doing for a long time. It upsets me the most when I find it difficult to look after my grandchildren, which I love to do! Hope you get your docs appt soon

    Take care, Anne

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