Losing dental implants....

thank you, Lindylulu.... 6 yrs is discouraging enough! Let's hope your implants work. I waited for bone graph to take on my first failure and as I remember body  rejected it. I go Sat and assume this annoying implants is on its way out. So tired of taking Advil! Good luck...you serve it!

Happy to hear a success story! I do have osteoporosis in hips and allowed my rheumatologist to persuade me to take injectable Prolia. Was told it doesn't act like Fossomax or AAcid but now I'm concerned. Gynecologist says same but I worry. Of course my first failed implant was over a yr ago so has nothing to do with Prolia. Good luck and thanks

hi pat

my implants yook almost 1 year from start to finish and that included grafts but luckily just finished as i was going on prednisone. as for bone density scans i get one done yearly.

I'm surprised you haven't but i too refus6to go on bone density drugs. I'm just waiting my new results so i hope no change since I've been on high doses for over 1 year but i eat dairy like i should own a cow. Mariane

Hi maid mariane, yes about 1 year all in all for implants and at 15mg of pred.  I did request a Dexa Scan just after diagnosis but Rheumy said further down the line.  I had already been diagnosed  with PMR by a locum dr. at my gp so it was 4 months after when I saw Rheumy, he prescribed A Acid, I already had an appointment set up for the next day to see my gp and I told her I would not be taking A Acid.  I'll take my chances.  I did have a Dexa Scan about June/July this year and it showed Osteoporis in lumber spine T score -3.7 and left hip -.9.  So even with the results I will not be taking A Acid.  I have to see the Rheumy end of October.  He can stand on his head and whistle Dixie if he thinks I will be taking A Acid.  No Go Area for me.  Regards Pat

Good for you, Pat! What are you doing to help slow or even reverse the bone thinning?  I also refused the meds, only so far have femoral t-score -2, never given one for spine and don't have this year's results yet .  Expect to get all results next GP visit.  But I've spent the past year and more taking my supplements including calcium as calcium hydroxyapatite as I had read this form best absorbed by people on prednisone.  Also take a vitamin K2 supplement.  I walk a lot, have taken up Nordic walking and tai chi, and wear a weighted walking vest every few days, very slowly increasing the weights I carry.  I am burning with curiosity to know what changes if any have occurred in my t-scores over the past year. 

i hear you pat. i got my scan within 1 week of starting prednisone so we had a baseline and as i said I'm writing my 1yr results. my rumi wanted me on AA and i too said no my density was great.

when i got my scan this time the technician was pushing to change my mind on taking meds if my bones got worse. she was pushing the yearly injection and saw improvement in patients . i just said I'll cross that bridge if and when it comes.

take care

Hi Anhaga, I am not taking anything to slow down or reverse bone thinning besides adcal and vitamin D and that's when I remember.  One of my visits to gp told me that my calcium was a bit high but nothing to worry about and I believe him.  I don't really do dairy, a bit of cheese now and again, I don't drink milk, and don't eat yogurt.  I cannot walk very far.  I used to be able to walk 4 miles in just over an hour.  Since PMR and Pred both my calves pulled when I started to walk after about 2 minutes - I had to get my son to walk with me as I needed to stop and lean on him for a bit.  My walking has improved and although both calves pulled at the beginning, it is now only my left calf, that pulls,  my left side seems to be weaker, even my upper arm.  So from having bi-lateral pulling, it is now just left calf.  I loved the freedom walking gave me but alas and alac no more.  Well not just at present, maybe someday.  I'm down to 3mg pred and hoping to start Sunday on DSAS to get to 2.5mg.  I must research the K2 supplement.  You seem to be doing okay and also putting a lot of effort into getting well.  Good luck.  I am going to request a Dexa Scan June/July 2017 and see where I am with the osteoporosis.  Regards Pat

Hi Maid Mariane, yes that's exactly what I was wanting - a baseline so we would have some kind of measurement (even  after 4 months of using pred) but no Rheumy said further down the line.  I was fit to be tied that day - anyway no baseline and as I said earlier, I will never know if pred damaged my bones or the osteoporosis was already there.  And no one can argue with me about pred causing osteoporosis as it cannot be proved - no baseline - but sure what would ordinary Jane Does /Joe Blogs know.  I swear if this Rheumy looks at me crooked, I am ready for him.  Anyway rant over lol.  Regards Pat

Yes, do look into the K2.  Don't be surprised if your doctor knows little or nothing about it.  It's not the same as K1 which is the vitamin we all know and love for its blood clotting capabilities and get from our leafy greens.  There is also a caveat not to overdo K if you are on a bloodthinner, but I think K1 is more of an issue than K2 with this.  Japanese studes have shown that Vitamin K2 does help with osteoporosis.  

Dairy isn't necessarily the best source of calcium in the diet, so I wouldn't worry about that.  A wide variety of foods will cover most of your nutritional needs, except of course where the food supply itself has become deficient, K2 being a case in point.

MM what will the doctors and drug companies do if there are more and more of us refusing their dangerous concoctions!

hi pat.

i was so glad that i found this site the first few days after i got diagnosed. that week i was back into my GP asking for everything. i have to say he is awesome and wanted all the research i had.

we really have to advocate and educate the medical professionals in our lives let alone our spouses and family. i just had a neighbor say i looked up your disease and it says its only for 2 years. it's been over a year and ive gone from 20mg to just now 16mg. do the math. What can i say.

just advocate for yourself from here on in.

take care of your bones

Mariane

i just wish that all the medical info on PMR was more updated and accurate. I'm fed up with people saying it goes away in 2 years.

not in my universe.

thank god for all of us and this site.

Mariane

Hi Miariane, where would we be without this site and the good people on it.  I will be taking up Anhaga's suggestion of vitamen K2 for osteoporisis in lumber spine.  Rheumy will not be able to argue with that (or maybe he will) who cares, I am definately not taking A Acid - over and out.  I have yet to meet anyone who is interested in what I have re: PMR, the ones who do mistake it for Fybromyalgia (I did have it along with ME diagnosed January 2001) PMR nothing like it - even Rheumy said PMR more serious - I can't argue because I don't know.  I do know, that if I had the choice I would take ME and Fybro over PMR any day.  And that's having the experience of all 3 - I really sound like Debbie Downer today lol.  I'm just not up to par this week at all, no appeptite at all.  It will pass, it always does.

hope your feeling better today and as for feeling down we all have our days and your right this site is awsome for support.

take care of yourself and drop me a personal lune if you want.

Mariane

I friend of mine had diabetes as a pre-exisiting condition.  Now she has fibromyalgia.  The two of us had coffee together one morning, and I have to say it was a most agreeable time.  Although we have different ailments many of the lifestyle changes we've each had to deal with are similar so she was one of the most sympathetic audiences I've had for some time, and I think she also appreciated my interest in hearing about all the quirks of her situation.  She's been off work for a year, so I don't think her situation is any better than mine would have been had I not been heading into retirement the year I came down with PMR, although admittedly her other health conditions haven't helped her.

Hi Mariane, thanks for your kind words.  I'm feeling much better.  I started the DSAS method yesterday trying to get from 3mg to 2.5mg and because I was feeling a good bit better, I started to do some work round the house Ahh and then I remembered I am reducing lol.  But even the fact I was able to want to do some things is much better than not caring less.  Anyway my son comes home tonight (he lives with me) from Portugal and I'm looking forward to seeing him.  You take it easy now and be kind to yourself.  Regards Pat

Hi Anhaga, like your friend (I have steroid induced Diabetes Type 2) who has fybro, from my memory at that time, I remember waking and thinking I had come down with flu - I had been in contact with two friends who had it, so therefore assumed it was that.  My body was like a tight ball and felt just like one big bruise - to even open my hand was so sore.  Once I was up and moving it was less painful - I could still get about and do more things than I can now.  I don't think I made any lifestyle changes - I had two sons, no emotional support and my mum to look after.  Maybe because there was no one else to do it.  But I survived it and came out the other end.  It left as mysteriously as it came - I just remember the absence of pain.  Although still having ME I muddled through it - but for the first 3 years, I was bedridden on and off and my youngest son took care of me, the best he could.  Again I was younger then lol.  Not to worry sure I'm alive and kicking.  Thank God.  Regards Pat