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Hi, all. I've never posted here before, but I'm running out of patience and I'm feeling a bit hopeless. To offer some background, I'm a 25 year old female with Lupus, Ehlers Danlos, Psoriatic Arthritis, and IBS (to name a few). I suffer from terrible GERD, and take a Prilosec once a day as needed for acid reflux that goes into my throat. About a month ago my aunt passed away and I lost track of my mind a little, and ended up taking 2 Prilosec in a day instead of one.
I ate a HUGE, fatty meal after this, and from 7:30pm to 3am I found myself in excruciating abdominal and back pain (to the point where I was crying), unable to sleep, uncomfortably full, with no acid to be seen to digest my meal. Eventually, I vomited four times, and ended up at the ER.
After a dose of Fentanyl, 2 doses of Ondansetron, and a dose of Ativan (for I am severely phobic of vomiting and my episode sent me into panic attacks) I was sent home. They performed an ultrasound and CT scan to check my gallbladder, and found no stones or sludge. He was still suspicious of a malfunctioning gallbladder however and referred me to a GI specialist (not until a month later). This was about a month and a week ago. Since then, I cannot eat without severe abdominal pain. I am constantly nauseous, though also hungry at the same time. I have not vomited again, probably because I am limiting food and water intake for fear of vomiting. I have lost 32 pounds. After seeing the GI specialist a few weeks ago, I discovered that, after having suffered a horrible upper respiratory infection in February, I was actually POSITIVE for Mono (I had been tested but never received my results) and was suffering from an enlarged spleen.
My GI doctor decided he wanted to perform an upper endoscopy (which ended up being canceled due to my enlarged lymph nodes in my neck from the mono) and a HIDA scan. My HIDA scan was performed last Thursday, and it took 85 minutes for my gallbladder to show up (when it normally takes 30-50). I found out today from my doctor my gallbladder is only functioning at 11% efficiency so now I have a referral with a surgeon on Monday to have it removed. But I am terrified that even after having it removed, I will continue to struggle with these symptoms. Due to my stomach being almost always empty now, I am suffering constant nauseous and atrocious acid reflux (and I am too nervous to take Prilosec again). I am always in pain, feeling dizzy, lightheaded, my lips and hands are cracked open from dehydration, the weight continues to fall off, I have a lump in my throat, as well as a buildup of mucus, and my abdominal pain is not only on the right side and in my back, but on the left side as well.
Is this normal?? Has anyone experienced anything like this? Do we really think removing my gallbladder could be the answer, or could there be more going on?
I've had chronic diarrhea for YEARS now, which I've read can happen with gallbladder issues -- could this have been my gallbladder all along?
The panic attacks due to my fear of vomiting has been equally exhausting, and I find I can barely sleep at night.
Just feeling really scared and hopeless today, even though I'm encouraged I'll be having surgery to remove it.
Thank you in advance for listening to me rant.
I hope each and every one of you feels better and never has to suffer through this!! It's AWFUL!
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