Losing hope with IBS please help me!!

I so much wish I could give you an answer but I can't 

The only person who0 can help you is the dr. 

So please go to a dr and explain where you all going true 

If you don't get a proper answer say so because as a patient you got rights 

All the best and speak up 

Hope you get better soon

Regards 

Pedro

Stress makes Ibs worse. You need to eat more basic fibre. Complex fibres will make it worse. You need fibre that will make your motions harder. If they are too soft then it will leave bits behind. There will be some poo left behind lining your insides. This is normal. You need to find a way to stop cleaning your insides.

Are you taking buscopan regularly.

There is something that you can buy that is full of good bacteria. One of the big online retailers sell it. It is wheat based rather than dairy. It really does work.

See if your mum and dad will buy you a central frugal juicer. It takes out all the complex fibres and leaves the easy to digest fibres. There are loads of juice recipes online. Make sure you add veg as well as fruit.

Don't eat too healthy a diet. The more complex fibre the harder it is to digest. Try cutting out a different veg or fruit you eat a week and see if there is a difference.

Re the stress you need to find something to take your mind off it. I crochet and this really helps. It means your brain is focused on something else. Any craft can make a difference

I learnt to Crochet off YouTube. You can buy a set of hooks online for a £1 and a ball of yarn from quite a lot of pound shops. In no time you can make it into a hat.

Please go back to the drs and explain what is happening and ask for help.

If you are in that much pain again go to a&e. Tell them the spasms won't stop and you are in agony. They can give you buscopan and paracetamol intravenously and it will relax within 30 mins. If you don’t feel you can get there by car call an ambulance. you shouldn't suffer in pain for that long.

Please seek drs help. Sue

I've found taking peppermint oil capsules every morning with lots of water really helps and lots of experts are saying that these are more effective than buscopan in helping a healthy bowel. Boots sell them 3 for 2 offer - it's worth a try and certainly won't do you any harm.

Stress does make things worse - see if your GP can also refer you for CBT or counselling for your ocd - again you shouldn't have to struggle with this on your own.

I hope things start improving for you unfortunately these days you have to insist to be referred for anything at the doctors BUT it's your right so DO IT!

I wish you all the best J x

It is a case, as others have mentioned, of getting into the doctors and getting them to refer you for all the tests needed to reveal the causes of your problems. You have rights, and if you are not happy with the care you have been getting, make a formal complaint, but also get a second opinion. The fact there is blood present is a red flag symptom, and should be investigated further without delay, use this fact when you go to the doctors, and if they don't follow this up, they are incompitent and you need to see different doctor.

Please don't put yourself down, you're not messed up, you have some problems going on and you are dealing with it in your own way. I have an OCD, mine relates to water taps and electrical appliance plugs. I can spend half an hour or so before bed, checking that taps are off and not dripping, and I have to physically put my hand under the tap to make sure there is no water dripping out numerous times, even though I can see no water is coming out. I also spend time before bed making sure all plug sockets are off, but I have to physically push the switch to the off position, even though I can see it is in the off position. This has had an effect on my bowel movements, like you I worry when I feel like I've had an incomplete bowel movement, and I can sit on the loo for ages waiting for the rest to come out, but it never does. I don't go as far as cleaning myself out, but I do get obsessed with not having a complete bowel movement. What I do is replicate what some animals will do, the mother will lick their youngs bottom hole to promote them to have a BM. I obviously don't lick my anus, or get my partner to do it, thats just gross, but I will get a toilet wipe (not paper as this will wear the skin around your anus) and I rub / massage my opening very gently with my fingers using the wipe. I do this for no longer than 5 minutes and it helps me to totally evacuate my bowels. Very odd I know, but it works for me.

Don't hold wind / gas in, you will find bloating caused by the gases will cause pain, discomfort and nausea. If you are worried about any follow through whilst passing wind, wear sanitary towels, tena pads or something like that, so if something does come out when you pass wind all you have to do is change it. Again, not ideal, but might make things a bit easier for you.

Some people swear by probiotics and peppermint tea / oil to help their symptoms, I've tried these and found they had a worse effect on me. You have to think back to basics, water to drink, fresh fruit and vegetables (although some people, myself included, find a lot of fruits and veggies hard to stomach), white fish, lean meat (white meat preferrable, I can't eat pork due to the fattiness of it, but bacon with rind and fat cut off is fine). It is more trial and error as far as food is concerned, what is good for you, might not be for another IBS sufferer. When I'm at my worst, I go back to a rice diet, which involves eating a lot of plain white boiled rice (I add a rasher or two of sliced, smoked back bacon to give it some taste). I have porridge for breakfast, as eating rice for breakfast doesn't seem right. If I do this for a couple of days I find my symptoms get a lot better. Steer clear of fatty, spicy, sugary, processed foods and only drink water.

Try to find something to focus your attention on. I play darts, not only does it get me up and about, which can help some of the symptoms, but stops me focussing on the pains I get. I've devised a number of little dart games I play myself, which makes it more enjoyable, and means I have to focus more. I've also started to learn to play guitar, which I absolutely love, and keeps me occupied for ages. Sometimes, I can come away from these activities feeling much, much better than I did, and they always make my symptoms a lot easier to deal with. Never totally gets rid of them, but as for most IBS sufferers, it is more about managing pain as best as you can. Some people can get rid of IBS, but most don't, so finding whats best for you to manage your symptoms is very important.

Sorry I can't give you any straight answers, but I do hope some of my info helps. And don't forget, you are not alone. My IBS has turned my life upside down, and even now with my symptoms more in control than they were, I still get very distraught and fed up with it all, and wish for the life I had back before all this started.

I do hope you manage to get through your GCSEs, all the best for the future, and stay strong!

I sent you a reference to a children's hospital but the post has been blocked by the moderator.   I'm not sure why.   I emailed the London Bridge Hospital which is a centre for the FODMAP diet and who obviously know lots about IBS.   Unfortunately they can't treat anyone under the age of 16.   They recomended a children's hospital Evelina Hospital for Children

I dont think I can put phone numbers here so look up the evelina hospital's number and call them.   I dont know what help they can give over the phone but ask them where you should go for help.   I dont have a name there.

If they are useless then call back the London Bridge Hospital and ask for Nicole Merrall.   Explian to her that Graham from Australia emailed the hospital asking for help and she was kind enough to reply but Evalina didn't help so can she tell you of another IBS clinic that can take children.

I am amazed at UK doctors.   The number of people on this forum who seem to be getting hopeless treatment by their doc is awful.

I am worried that your problem might be something other than IBS and its diagnosis has been poor.    Can you start all over with a new doctor or is that too expensive.    

Anyway give Evalina a chance to prove they are a wonderful, competant and caring organisation.

While waiting stick to the FODMAP diet and dont try anything that does not conform to the diet.   Lactose in dairy products and wheat products are possibly the cause of your problem so give FODMAP a real try for 12 weeks.   Lots of straight water, some rice and FODMAP friendly veges.   Potatoes, carrots etc as in "the List"

Let us know how its going.

Cheers

Graham

I think you have the personel messages turned off so I can't send you a personel message with details of the hospital and so forth.

If you click on the box above the "star 3 at the top left hand of your message it should open your profile and there is a box to tick to allow private messages.  Then a grey envelope drawing will appear below the "Star3" inviting private messages.

Cheers

Graham