Losing it....

Posted , 4 users are following.


I have been on steroids since October and it's only the last 2 months my hair has being falling out more then ever, my partner and I have really started to notice it now especially on my crown.

Is anyone else having this problem? And will it get worse?


1 like, 5 replies

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5 Replies

  • Posted

    Hi Amanda, is your steroid medication for your hair loss? I have alopecia and have tried some steroid treatments for it but didn't get on with them. Hairloss is scary and I totally understand why your worried. I wish I could tell you I'm one of the brave ladies that show the world, but I'm not, I get creative with headscarves try to keep calm as stress can add to more loss of hair. I hope you are well soon. Amanda ??

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    • Posted

      Hi Amanda,

      Nice name by the way :-)

      No I am on steroids for a different illness and I think it is actually a side effect from them. Now when I say losing my hair I still have it its just that it is gradually getting thinner amd when I wash and brush it alot falls out. Also when I wake.in the morning there are few strands on my pillow.

      It may go when my illness has been cured and I'm free from steroids but I just hope it doesn't get to a bad stage.

      How did the alopecia come along Amanda? Is that something that can be cured?

      Hope you don't mind me asking.

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    • Posted

      Hey, we obviously have mums with good taste!

      I 1st got it when I was about 16, it was a large patch at the back of my neck. It all grew back after about a year. This time it's it's most of my whole head. I have cronic pain and the body reads that as stress, so that's why the Dr thinks I have it now. I've had it this time for about 6yrs. There aren't any long term cures at the moment.

      Yours does seem like there could be a connection to ur meds maybe. There are lots of ways to hide it and if it did get really think, you could be eligible for a wig on the NHS. Speak to your doctor, they will b able to maybe suggest something that might help or send you to see dermatology.

      You can ask me whatever you like. It sounds like you have a lovely partner by your side so that great .

      I'm on the end of a keyboard if your feeling down, us Amanda's have to stick together!

      Keep smiling ??

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  • Posted

    what steroid specifically are you on?   hard to evaluate without knowing that.   What dose also. 
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    • Posted

      Hi Michelle

      I am on prednisone, I started on 35 mg a day last Oct o went down to 3 mg a day however 5 weeks ago I got put back.up to 8mg a day.

      I have sarcoidosis on 3 different organs and yes it is an auto immune disease so very interesting what you said about hair thinning from different things.

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