Losing the will with these symptoms!
Posted , 8 users are following.
I feel like I'm coming to the end of my tether trying to cope with all these symptoms and still can't get a firm diagnosis.
In June I had some blood tests done via my GP. The symptoms which have got progressively worse over the years were things like weight gain, extreme fatigue, muscle and joint pain, hair falling out, dry skin, brittle nails.
The blood test results came back and my GP suggested borderline hypothyroidism. My TSH level was 7. He suggested that I make another appointment for blood and antibody tests in 3 months.
I had the tests last week and called for the result today. The receptionist said that the notes suggest more tests in 6 months!!!!!!!! I've made an appointment to see my doctor on Thursday to find out what the levels were.
If it's still borderline, is there any treatment at all that I can get? I'm really losing the will with feeling awful constantly
0 likes, 15 replies
m72934 Lou75
Posted
alyaBT Lou75
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i think you should go to another hosbital and find another doctor
marey Lou75
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7 is way over. i'm 5.1 and have had enough....find another doctor !!
good luck. keep us informed x
m45825 Lou75
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Still on the rollercoaster. Am on 85ug T4 and 5ug Tetroxin. Just bumped it fown from 100ug T4 because its started to go to high. When I have 'relapses' its the joint pain which gets me down the most.
If you get a good GP they will give you a variety doses at you can play with them every 6 weeks as you go. I have scripts T4 50,75,100. SynthT3 and NDT3. I haven' tried the latter yet.
marey m45825
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Lou75
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I already have an appointment booked for this Thursday so will see what the doc says. Really need to get something sorted before i drive myself mad!!
I get private heathcare through work, it's something like a £100 excess but i'm thinking it might be worth trying to see a specialist through that if i don't get any joy.
Thanks again
patient2014 Lou75
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Lou75 patient2014
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I just burst into tears there and then. They didn't do antibody test which they said they would do. I'm so down at the moment. All he wants to do is send me for counselling! Is that really going to treat all the symptoms?
I'm worried that if I change docs I could end up going through the same again.
m72934 Lou75
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sunshinemb m72934
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I too went private and pay for my thyroid prescription
Not saying too much in case this one is deleted also!
m72934 Lou75
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dwynwyn Lou75
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A key thing to try to get through to your GP is that if they didn't check your thyroid before you are ill then they don't know what normal is for you. The "normal" range they go buy is a guidance on most people's levels but not rock hard certain.
dwynwyn
Posted
Then I saw another GP who said it wasn't down to my hypothyroidism as my readings were normal despite my symptoms being the same as before I was on the meds, but a bit milder.
Then I saw a third GP who listened to me and did some reading up between appointments and then put me up to 125 microgrammes.
This has been a real revelation for me. It is difficult, especially when you are fatigued and more emotional than normal, but you just have to make yourself try another GP until you get one that listens.
Or try the private route. Maybe if you can get a private referral to an endocrinologist they should at least know that normal results don't always mean normal.
marey dwynwyn
Posted
but well done for persisting really good news....very pleased for you!
many of us our supplementing...and thus able to reduce our thyroxin intake...so keep getting monitored. You do need to aim to get TSH below 2.....the old norm of 4.5 is way out of date and based on sick people's average....so seriously skewed.
Ideally aim for tsh of 1 or 1.5 to end symptoms....but try this:
4 brazil nuts, for selenium, per day for 3-4 weeks reduce to less than 12 per week thereafter.
oral zinc (or eat oysters if you can find mercury free ones and can bear them!!)
iodine applied to your skin....so body can absorb as required
iron precursor from fluorovite (gluten-free florodix) ...from health store.
Hope this helps ...love marey xxxxxxxx find a naturopath for more specific dosages but above are the latest principles x
most of us are gluten sensitive....(perceptive is my interpretation..there's no benefit to it except for gluing stuff !!)
Jill6969 Lou75
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A TSH of 7 is WAY too high....mine now is 0.005 with my T4 at 20
I really hope you get some help soon