Loss of taste and sense of smell again.......

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I have been managing the effects of facial palsy for over a year now. Initially I lost my sense of taste early on, but then it gradually returned. Since March though , I have lost most of my sense of taste and now smell too. Has anyone else experienced this yo yoing of senses? Does it come back?

my GP has referred me to ENT for further checks and my FP physio has suggested I should have a contrast MRI of nerves in my head to check out any other more serious problems. I am grateful that it’s being checked , but wanted to hear any advice / feedback from fellow sufferers.

its all a bit frustrating, but it seems the recovery goes like that!! 

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4 Replies

  • Posted

    I too, lost my sense of taste twice.  It is aggravating but will come back.  Do you enjoy the taste of cardboard?  I think I lost a few pounds because nothing tasted good.  I saw an ENT also but he was no help.  This will just have to go away in it's good old time.

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    • Posted

      I too have seen an ENT specialist about it just recently. Apart from sending me for another head MRI to rule out other causes, he has told me that my septum in my nose is misshapen . I can only assume due to palsy, as I have not had previous trauma to nose. I’ve had sinusitis problems for a year, and constantly feel that my nasap cavity is bent. Have you had this problem? Does that go away too? 

      Did your sense of taste and smell come back o normal after the second time? I too am losing weight. I am however pleased about it, so it’s no problem for me!

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  • Posted

    I have not heard of palsy affecting your septum.  Could you have had this before?  My taste came back fully both times.  I didn't lose my sense of smell.

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    • Posted

      Glad to hear that your sense of taste came back both times. I am hoping mine will. No change for 6 months now though. I never had sinus problems prior to the palsy. I’ve had 2 really nasty bouts of sinisitus now and ear infections which came on really fast, this year. My right nasal passage is always blocked. Internally it feels as if my nose is bent out of shape, the ENT consultant said it resembled someone who had experienced trauma to the area. Not sure what he lilklihood of this getting back to normal actually is ....
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