Lot of imbalance and worried now
Posted , 6 users are following.
I just got the MRI report. And the result is
-No definitive intracranial abnormality.
-Type II AICA loop on left side.
Doctor is saying everything is normal. I am taking medicines every day but not much effect. Dont know whether i need to go through surgery or not. So much worried about my situation. Have a feeling that m falling down all the time. Not able to stand also. Please anybody is having same report like me n got proper treatment kindly help me out.
0 likes, 18 replies
Lolasmom Leena831
Posted
You are asking for advice, but you are not explaining anything.
Why was mri done?
What kind of doctor did you see?
Why do think think you need surgery and for what?
This is very confusing
Leena831 Lolasmom
Posted
I am having vertigo from last 10 years. I am taking treatment from ENT specialist now. He asked me to do MRI. And in MRI it occured type II AICA loops on the left side.
hmoosey Leena831
Posted
you have had vertigo for past 10 years?? have you had vestibular testing done? have you seen a vestibular specialist? or just ENT? the not being able to stand and feeling like your falling is a clue of vestibular. do you have a dizzy clinic where you live? an otolaryngologist? nuerotologist (not nuerologist). you should be seeing these doctors. an ENT- doesnt really specialize in this area. have you gone 10 years without ever getting a proper diagnosis for your vertigo? vertigo is a symptom of something. for me- i was misdiagnosed 2x before finally getting the correct diagnosis of vestibular migraines. i had the MRI- catscan, bloodwork. but it wasnt until i got to the otolaryngologist that i had all the proper testing to get me on the path of healing. seems you need more testing IMO
maria61198 Leena831
Posted
Hello Leena,
have the same feeling as you. Have you checked with the Doc whether it could be Labyrinths or Neuritis? A common inner ear disorder, I have Neuritis. had it ten years ago, went on for a long time, then cleared up. now it's back.
BachLily Leena831
Posted
Have you been on the same meds for the last 10 years, or has your doctor trialled a few different ones?
It sounds like you've been very much kept in the dark.
maria61198 Leena831
Posted
when I had it ten years ago, I was on Serc here and there. But it went away completely after a couple of years. it just came back about a month ago. I was tested ten years ago and have 40% nerve damage in the left ear.
Leena831 maria61198
Posted
What treatment r u taking now?
maria61198 Leena831
Posted
Not taking anything. Trying to wait it out. I had Epley Maneuver last week so maybe some of this is residual dizziness. it has been very rainy and overcast where I live in Canada, so that hasn't helped.
Lolasmom maria61198
Posted
Maria,
I find the weather has a lot to do with this. Interesting you mentioned that. I am too in Canada, and have found with this rainy, windy weather we have had this spring, symptoms have really escalated
maria61198 Leena831
Posted
Lolasmom,
Yes the weather has not helped at all. I ended up in Emergency last night because I was so dizzy my body felt like it was on fire. Saw 2 docs, they confirmed Positional Vertigo and vestibular Neuritis. Am seeing a Vestibular Rehab therapist Monday. He can help with exercises.
Lolasmom maria61198
Posted
Maria,
you are lucky to have an appt so quick. Remember we live in Canada !!!!
I have BPPV. It happens spring and fall. Weird.
But I have not had it this spring as it usually comes in \March/April. I am holding my breath.
Last time I went and saw a PT that deals with BPPV. The spins stopped right after that but I had lingering off balance feeling for about 2 weeks.
Keep me posted how you make out
hmoosey Leena831
Posted
maria,
be careful just accepting these diagnosis. i was in the hospital 2x - first diagnosis BPPV- second admission vestibular nueritis. i was in vestibular pt for months. both of these were wrong, it is vestibular migraines for me. and i am getting better now with medication. since they have diagnosed you with VN- they should be doing caloric testing. testing the nerve ect. when i got a doctor to finally do this testing (it should have been done months prior) it proved no VN- and thus confirmed vestibular migraines based on symptoms. just keep things in the back of your mind and ask why they have diagnosed you with VN-had i not questioned , switched docs, i think i would still be so ill. i had to guide certain doctors. just some friendly advice. from someone who had the exact same 2 diagnosis'.
maria61198 hmoosey
Posted
hmoosey
thank you for your advice. When I had VN ten years ago, the specialist sent me for caloric testing, and it showed nerve damage in my left ear. 40%. He told me then it would come back when it was humid or when I was overtired. He also ruled out Vestibular Migraine because I was taking Serc and it was helping somewhat, said it would do nothing for a migraine. It's been terribly humid and wet for the past month. The BBPV is new and I get terrible spinning when I move suddenly. I think the VN is probably right and so is the BBPV. Both my mother and grandmother suffered from migraines so I'm not surprised I inherited some vestibular problems. is the medication helping you?
hmoosey maria61198
Posted
im glad you seem to be getting the right care. so many of us, just get a diagnosis and told it will get better with time and it doesnt. the spinning sensation is so awful, i would literally see the floor on the wall. the world tilted. i had the VN- diagnosis, brain fog, vertigo, severe vomiting, trouble walking, talking. i had catscans and MRI to rule out tumors and strokes. but not one doctor ordered the testing of my nerve to verify i had VN- i went months until i found a doctor who knew what he was doing and ordered the testing. i had no nerve issues as the hospital and nuerologist said. i am doing well on the medication. norotriptyline. a slow increase since august. every time its increased a symptoms disappears. so i know its the right path for me. since you have been diagnosed with BPPV- has any doctor tried the epley manuever on you? they say this works. this was another clue for me that i didnt have BPPV- i had it done numerous times. my PT said my symptoms were confusing her when she would do this. there was no real issue with my eyes. do you have access to vestibular PT?? it was a year last week from when this started for me. i thank God i found the right care. good luck, if you dont get better think about pushing for the testing again. migraines are hereditary.
maria61198 hmoosey
Posted
hmoosey,
it took me a while to get answers ten years ago when I had VN. this time I have it again along with BPPV. Awful. But the third time I had Epley, it worked. So it's better at least I don't have the spinning. went to see a VRT physio and he confirmed VN and gave me exercises. I hope it helps. I know migraines are hereditary, both my mother and my grandmother started at 13. I hardly ever have headaches, but the doc told me the VN is in the same family as migraines. May I ask where you live? l live in Canada.I also have some earing loss on that side so will probably have to get a hearing aid. I'm 71 so what else is new?
hmoosey maria61198
Posted
i am from usa. new england area. i had such a difficult time getting the correct diagnosis. migraines are hereditary and some research ive come across says migraines is the second leading cause of this mess. just below the BPPV- so i find it shocking that more doctors dont question this. you can have silent migraines too. the epley never worked on me. since you feel better doing that, its a good sign. that was a clue for me my first diagnosis was wrong. people kept asking me why i wasnt better after getting the eply. they had it done and felt relief. i was shoved aside with the VN- diagnosis. im glad i listened to myself and kept seeing doctors because i had a nuerologist say i might be disabled forever. no care no tests. it kicked me into high gear. i hope you feel better and the VN- goes away. if it doesnt, i would ask for the testing to check the nerve. just to make sure.
maria61198 hmoosey
Posted
New England is so beautiful especially Maine and Vermont. I'm glad you finally got answers. It took me a while ten years ago. But after the caloric test where they pour water in your ears, the ENT said the nerve was damaged 40% and that was what was causing the problem. He also said it would come back and he was right about that. The thing with this is to keep moving, standing still is the worst. Maybe when I see him in August, he will order an MRI. We will see, but I'm better since the Epley, so no spinning. at least that's something.
Are you coping ok? back to normal with the meds? do you have ups and downs? do you find that the weather makes it worse? we have been having very wet weather lately and it doesn't help. Are you near the ocean?
hmoosey maria61198
Posted
hi there, just saw your response. i am so much better. i am working and living my life. noise is a huge trigger. my period, ive noticed now is a trigger. i am not sure about the weather. it changes so frequently its hard to tell. i am not right on the ocean, although i grew up on the ocean and miss it. i went away to mexico right on water and was ok. it was a big deal for me to travel. i have my ups and downs. but i have my brain back. that was the worst. the confusion, foggy head. im glad the epley worked for you. since you had that 40% damage ten years ago, cant it come back? i had been diagnosed with VN- with no testing and just told to wait it out. i knew it wasnt right for me. and i was correct. its migraines for me. i am tired from meds, but every time my meds increase i notice i can do a little more. i suggest keeping track of your good days and bad and what you are doing when you flare up.