LOTS going on...grateful for any direction or helpful hints...
Posted , 8 users are following.
Hi - I have multiple conditions (hoping to figure out the reason or the larger one) I don't even know which section to post under, but my most immediate issues today (this happens sometimes) it feels like there is a lump on the left side of my throat, food was going down with difficulty, then I was vomiting everything back up. It still feels like there is a lump when I swallow. Feels like a hair is stuck but I'm 99% sure there isn't a hair. I have a very complex health situation that I'm still waiting for all the specialists to figure out. Recently I've been having some heart weirdness, back and forth to emerg, tachycardic and high blood pressure (I'm 27 year old female - a LOT of cardiovascular problems in my family, my dad has a lot too and he and I share many health similarities). I've been very dizzy and fuzzy lately, almost passed out a couple times, feel as though I'm high, very tired and EXTREMELY fatigued even though my heart is hammering away like a hummingbird. I'm not stressed or anxious, I'm cognizant to seperate those from the symptoms as I've learned over the years anxiety just makes everything worse. They ordered a holter monitor test and I had to do 2 24-hour urine tests to check for adrenal crisis (results not back yet), and they perscribed me betablockers that I'm supposed to start today, but I don't want to take them because what if they don't find out what is wrong then? Will the betablockers mask an issue? Plus I'm already taking 4 reactine a day, omnaprazole, avamys, singulaire, simbibort and sometimes atrovent, toradol and ventolin and I'm not excited to add another one to the list (I have chronic angioedema, my tongue swells a lot for unknown reasons, my left cheek often gets "on fire" and swells and turns beet red, and my limbs swell, especially right thigh, right arm, I have anaphylaxsis too and have had to take two epipens and countless steroid and benedryl shots/IVs), I'm also a severe asthmatic, and have been going back and forth to rheumatologist to check for autoimmune issues (there is definitely one but they can't agree on which, my ANA is negative but I have almost all the symptoms of lupus, they are thinking psoriatic arthritis because I've had what seemed like "gout" attacks in different joints, uric acid spikes but the Rheum said he believes it to be some level of psoriatoc arthritis, I get joint pain (and some swelling) all the time, for the past 11-12 years), I also have had regular chest pain since I was 12 or so, but it has been getting worse and is lately accompanied by the "fuzzies", near fainting, weak hands, tachycardia, headaches and some nausea. Forgetting things, high-low BP but always high heartrate. They are rushing my cardiology appointment. I'm trying not to worry in the meantime, but now I've been throwing up all day as well. And feel like I can't swallow (not like my throat is like swollen shut, but just like there is an obstruction), sorry for the million symptoms and maybe TMI...there is a LOT more I can tell you, but any ideas on how to speed of diagnosis? Different things I could ask about? Frustrated Thanks so much for your time and advice! Even with this swallowing thing...it is weird.
1 like, 21 replies
pamela02500
Posted
Question: sometimes my feet get so cold they are ice cubes, even when I wear 2 pairs of socks and put them under a blanket, sometimes when they "thaw out" eventually they are a bit painy. The rest of me is usually warm, my toenails turn bluish, I have pictures. He listened to my ankle and said my circulation is fine...so what else could do that? Or could it just act up sometimes? Ughhhh more confused than before I saw him!!!! Thanks all for your help
I've since heard that he has a very bad reputation for being mean and not taking people seriously. He told me 90% of his patients have "chest pain", not heart issues and are basically foolish...he even said costochondritis was just a "word doctors throw around" and only one person he has seen in 40 years of practicing actually had it. But yet he did no exam on me to check. And my family doctor did an exam and diagnosed me with that last year. ugghh. Where now? Thanks so much for all your help so far guys!
cindy63197 pamela02500
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pamela02500 cindy63197
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And unfortunately where I live it takes years on the list to see a cardiologist, so I doubt I'll have any luck soon. But my parents have a doctor in florida, they told him about me and he said he really wants to assess me because he said it sounds like I have some really extreme issues and he has some ideas on how to help. Maybe I'll save up the money some day for that, but traveling is really rough on me. Anyway I guess I'm not going to pass out any time soon, I guess he would have at least been able to tell the major things from listening to my chest/ankle hey? So I'll just try not to be concerned with the ticker and just try to feel better and get my energy back. My family really wanted him to do a stress test because even the slightest exercise makes me feel faint and not well and have to sit down especially lately. Sorry so long, thanks again Cindy!! Appreciate the encouragement to keep searching even though I feel like just accepting that this is how I am now after seeing him.
pamela02500
Posted
cindy63197 pamela02500
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I just wondered how you are doing now?
pamela02500 cindy63197
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Really have that plaquenil on my mind though, don't really know what to do about that, hopefully the Florida doc will have some answers! Thanks again Cindy for your support and advice!! Hope you're doing well!