Low Haemoglobin

Posted , 6 users are following.

I have just returned from hospital where I was to have my second venesection, but when the result of the blood test came through, ( while I waited ) I was told my haemoglobin was too low and I would have to come back next week and hope my body had recovered. The haemoglobin reading was 120 and it needed ideally to be 140 or at the very least 125. 

These figures mean nothing to me, so I wondered if this is something anyone else had experienced.

1 like, 57 replies

57 Replies

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  • Posted

    Crazy though it is you can actualy be aenemic even with this crappy condition. I have just had my third venesection. The last one my numbers went up? Logically neither your drop in hb or my raised figures in ferretin shouldn't, but do happen. Mine are every ten days as they thought one a week would leave me with too low haemaglobin (hb). Some people drop too quick, so they have to leave bigger gaps between the venesections. Then if you have an underlying infection it too can warp the figures . Although I am almost as new to this as you and dont know much I can tell you that yours is not the only one. I hope it helps some.

    • Posted

      Thanks Ellen, it does help, I was really fed up having to come home without having treatment, but I'm feeling better now! 😊

    • Posted

      Sometimes just knowing it happens to others helps. If you are in UK like me you can go on the Haemachromatosis society uk site and see what it says for high hb? But I think I told you right. Good luck. P.s. i had my first good day in years today, that has to be good. X
    • Posted

      You are so right Ellen, it makes all the difference knowing you're not alone xx

    • Posted

      Hi Ellen,

      Hope you are doing OK.

      Once again I had low hb, 121 this time, so The consultant has suggested I leave the venesections for 3 to 4 weeks instead of 2, to give my body a chance to recover. They did however take half a bag and I suffered no after effects. smile

    • Posted

      My hb was110 and they still wont do my ven... I have an appointment Wednesday to try again, they say it could be this cold ... I can't seem to shift it. Four weeks without now it is a bit worrying not doing the one thing that could work. Fingers crossed that Wednesday works out. X Take care From Ellen.

  • Posted

    Hi Jen

    Sorry to hear this happened at your second venesection today. I guess they can't take your blood if your hemaglobin is low for whatever reason?!  Did the nurse not explain as to why they couldn't do it?I Wish I could be of more help to you, but as you know I'm way behind having only just been diagnosed and not having had any venesections done yet. Hope you get some helpful replies back from some of the lovely guys on here,..

    Good luck and hope you get some answers and get treatment going again very soon xx

     

    • Posted

      Thanks Michelle, I know it is risky taking blood when the haemoglobin is low, but I suppose I just didn't expect any problems. Just hope it's better by next week....

      Any news your end yet, it's so frustrating when you seem to be getting nowhere, I'm sure it won't be long. Take care

      Jen xx

  • Posted

    They have only checked mine 3 or 4 times in a year.They seem to check every time in the USA. I went to a hospital in Thailand once and they refused to do me as my haematocrit was a bit low but the NHS were okay with it.
    • Posted

      I am in the UK Eric, and they say that the haemoglobin is checked everytime before venesection to make sure you are within the right range, at least at the hospital I go to.
  • Posted

    We must be lacking the mod cons in Rochdale.They take my blood pressure,moan that it is too low and then stick the needle in.Every 3 to 5 months they do a full blood count,the syringe taken from the bag overflow and I get the results the next time. They laugh when I say some hospitals have mobile ultrasounds to detect veins and usually only use the one prominent one I have.
    • Posted

      It probably depends on how high your numbers are and how long you have been having them primrose girl and I are very new to this.
    • Posted

      Yes,you're probably right.Mine has stayed above the 140 mark so they must be confident it will remain there.

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