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Low Pred. or No Pred. ??

Posted , 13 users are following.

Juno-Irl-Dub
Juno-Irl-Dub

Hi,  It is now over two and a half years since my PMR diagnosis and starting  the usual Pred. regime. I am now quite well on 3.0mg. and wondering as follows: 

Is there any evidence that staying on a very dose (eg. 2.5mg.), as opposed to reducing slowly (if possible) to zero, would actually be better?  In other words, could a very low " maintenance" dose stave off a recurrence? Maybe this is a daft question, sorry if it is.  Just thinking . . . . J

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  • flydog
    flydog Juno-Irl-Dub

    Posted

    Hi Juno,

    I think others will agree with me when I say once you have suffered PMR it never goes away, it lurks in your body somewhere, and wether you are on a high/low dose, it strikes when you least expect it, Max.

    • Juno-Irl-Dub
      Juno-Irl-Dub flydog

      Posted

      Well, flydog, we'll (PMR & me)  just have to circle each other - watching-, and with any hint of weakness I'll leap into action -  and get my retaliation in first!!  How's that for a plan??

      Seriously, I guess you're right. At the start of all this, my Rheummy spoke as though this was a two-year phenomena but that's not what I gather from reading other patient's experiences. Eileen mentioned  a 5-year reoccurence - but that's not so bad really. It's just that my bones  could do without the Pred.  Kind regards,  J

       

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