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I'm new to this forum but am hoping to get some information and support. So a little about my situation:
I was diagnosed with Stage IIIB CKD on Halloween, October 31, in 2011. My creatinine was 1.2 at that time. It remained stable until May of 2013 when it plummeted to 3.2. My nephrologist jumped into high gear at that point. My kidneys rebounded to 2.2 and stabled there until December of 2016 when they plummeted again, this time my creatinine dropped to 4.2 with an eGFR of 10. There has been some improvement. My creatinie iOS now at 3.4 with 14% percent function. I've been referred in to a nephrologist at the University of Kansas Medical Center which will occur on August 16, 2017. Im hopeful this appointment will at least provide some answers as to what is going on--my nephrologist has completed a biopsy and says I should have "much more function" than I've got. I also have no extra protein in my urine which he says is supposed to be another predictive measure.
I'm single and live alone. Frankly, it has been pretty challenging to cook for myself and so forth due to the extreme anemia. The anemia is now under effective treatment but has been pretty difficult. I've been able to continue working full time. (I'm a university professor.) I'm actually the last family member living in my immediate family. Do, I'm going to n Ed to navigate Stage V renal care alone.
My nephrologist has said that I'm an ideal candidate for PD dialysis. He says I would be able to continue working while on PD and should also continue exercising coding. He also says I should be able to live 15 years or more on APD. (I'm in my mid-60s right now.) he has also talked with me about the possibility of a transplant; but, I'm not at all sure that I want to pursue that option.
The questions I've got right now are
1. What have your experiences been with PD dialysis? Are they consistent with what my nephrologist has told me?
2. Whatbproblems, if any, did you encounter while on PD?
3. Did you have many infections while on Zpd?
3. What are your thoughts about transplants? Have any of you chosen not to pursue a transplant? What sorts of issues caused you to decide against the transplant?
Thanks so much for taking time to read my post and I hope to hear back from several of you.
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