Posted , 4 users are following.
I was interested to read about new thinking about CFS but the article below suggests a more 'medical' approach as it were. I was diagnosed with CFS when I actually had an underactive thyroid. The latter requires medical intervention so if that i what you need you have to have it. All the CBT in the world won't make an underactive thyroid go away.
0 likes, 8 replies
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KPD vera26203
Posted
Interesting article, vera26203! Are they presently treating you for underactive thyroid? If so, what are you taking? I researched this about a year ago and also found that I had both low T3 and T4 levels. Most doctors did not want to treat me because they were worried I'd swing in the other direction. I found a funtional medicine dotor willing to treat the low T3 and tried Armour but didn't get any relief from my symptoms. Hope you are doing better! KPD
vera26203 KPD
Posted
Armour supplemented with T3 keeps me just about going but it's not a cure just management!
Beverley_01 vera26203
Posted
Hi Vera,
I got my cfs/me from a car crash so would love to know how a medical intervention for thyroid can help that.
I read the article which is interesting but, is only seeing a link between them, finding why there is a link would be a good next step.
Beverley
vera26203 Beverley_01
Posted
Hi Beverley,
I hope that after the crash you were fully assessed and any underlying physical causes for your cfs/me ruled out. When some patients go to their GP and say they are tired all the time my concern is that those underlying physical causes are not always ruled before a cfs/me diagnosis is reached. Anything which prompts a different approach may be helpful even if it just helps one person.
Vera
Beverley_01 vera26203
Posted
Hi Vera,
Yes, I was referred to the cfs/me specialist service and the requirement for this is you have to have normal results on blood tests, I was also separately tested for ovarian cancer because of bloating I believe?
My symptoms started near on straight away. I have had so many MRI's , no physical cause identified for any of my symptoms. I had a fractured spine and so lots of tests are from that. The cfs/me symptoms that started straight away were the unrested sleep, brain fog, memory problems and the good old post exercise malaise. believe me, I was doing so little because of the fracture to start with but after that, I tried to return to my life which included swimming, gym, yoga and pilates. My only regret is not knowing what was wrong with me at that point and being told I just needed to somehow power through even by friends who didn't get what the condition actually does to an individual.
Diagnosis, as it were, was by a specialist nurse at the service.
Beverley
vera26203 Beverley_01
Posted
Hi Beverley,
Do they regularly check your bloods? It's just that my bloods were 'normal' for years until my condition was so severe it finally showed up in blood tests. One issue with thyroid is the unreliability of the blood tests.
Vera
Beverley_01 vera26203
Posted
Hi Vera,
No, I don't routinely get checked bloodwise. Today isn't so good so far so struggling to think when last time was.
Maybe thyroid wise, the condition affects the thyroid not the thyroid causes the condition? More research is definitely needed for sure.
Beverley
GraySeal vera26203
Posted
Thanks for posting this interesting article. I was found to have normal levels of T3 and T4, so it doesn't seem to affect me but it's always heartening to see serious research into ME/CFS