low Thyroid and doctor wont send me to endo
Posted , 6 users are following.
I have had a low thyroid for about 14 years and I have changed doctors and they refuse to send me to a endo my level go down and up down and up. Finally my shrink tested me and treated me I started taking synthroid it caused heart paputations and I started itching all over and had a rash on my arms so I stop taking it, now im on armor and Im having pain all over my body, but im not sure if that the meds is causing it or not, but my head is feeling like i can think straight for the first time in along time. I just wish i could see a specialist. Im about to change my pcp again. I wanted to know about hashimotos i have auto immune disorder like psorisis, vitia d definiceny and iron to I also was dianosed with MS in 2004. I dont think I have it but my doctor said it could be something else but everything point to MS. Please give me some feedback.
0 likes, 30 replies
Carolannfud Toddindy1
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barbara98940 Toddindy1
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jean34329 Toddindy1
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I think that you should insist on a referral.
You need the support and monitoring.
Are you in the UK?
I know how you can get a referral letter so you can send it to any endo.
Kind regards
michelle95405 Toddindy1
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shellyC19 Toddindy1
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1. Feeling very tired/unable to really get over it despite rest.
2. Loss of menstrul cycle/late periods or no periods.
3. Weight gain/ unable to lose weight
4. Mental or brain fog/confusion/ unable to perform a task
5. Muscle aches and pains
6. High and low T3 or T4 levels/unable to convert T4 into T3. Etc...
7. Vit D can be low
8. Goiter
Now there are more symptoms, but these are common. Most GP's will refer you to an Endocrinologist. Since I am in USA it is fairly easy here, but can you appeal the decision you were given?
Specialists have more knowledge and only do GLAND problems. I would call them up and say I need to see an Endo, and if they say NO, can you write or call a patient advocate? In USA we have those and they help the patients all the time.
Now when I was diagnosed back in 1987, my doctor gave me synthroid also. ( I swear they must get 2 weeks at the synthroid mansion for always prsecribing it!! ) LOL. I am one of the ones the med did not work on. I took it and my level would not come up. My doctor found out I can't convert T4 into T 3 . Many of us have this problem and others can have a mal-absorption of it causing loose bowels. Any hives, little bumps that itch are an allergic reaction. There are a lot of OTHER Thyroid meds - so ask for another one. Some are Thyrolar, cytomel, and Armour Natural Thyroid. We are all different, now my sister who also has Hashimoto's can take Synthroid and I can't. Go figure?
Please call the GP, you should not be suffering and demand to see an Endo. I hope this helps.
jean34329 shellyC19
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Hello Shelly
I have a multinodular goitre that was found as an incidental finding on a CTPA scan very recently.
I see the endo sorgeon soon. In the meantime I am having terrible time with peripheral neuropathy and muscle stiffness. I have heard that a thyroid disorder can be responsible. My knees and ankles throb, I always feel cold N D have a slow HE usually aroud 58 to 50 for a number of years. Hoqever in the lst week my hr has increased between 80 to 108.
I have first degree heart block and long qt syndrome.
I am taking a beta blocker for the long qt.
Could the goitre have caused long qt and heart block?
The muscle spasms and pn are driving me mad. I also have epilepsy and A vIT d deficiency disorder.
Will the thyroid meds help to get rid of the pn?
My TSH is 0.17 t4 0.12 TPO is less than 33.
Have I got hypo or hyper?
Jean
shellyC19 Toddindy1
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jean34329 shellyC19
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TSH 0.17
Free T4 16.5.
TPOA less than 33
shellyC19 jean34329
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jean34329 shellyC19
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THANK YOU it is very nice to hear fom you too.Thank you so much for the info.
Thank you so much for replying. I appreciaate your interest more than you will ever know.Right now I need all the support I can get as husband is feeling rather stressed out with all this and he amosphere is tense.
.
I have to have a loop recorder inserted tomorrow as I have long qt .Please ask me any questions you wish I do not mind at all.
You asked me if I am on any meds. Not for the thyroid disorder . Not yet as not yet seen by the endo surgeon appt is for June 12.
A different hospital and dr of course kindly ordered the thyroid screening tests after I told her that a CTPA had showed a multinoduar goitre as an incidental finding on the scan which was done to exclude/diagnose another pe.
The bloods for thyoid screening were taken on May 4.The scan was done on April 27 2015. Fortunately according to the CTPA there was no evidence of an acute thrombo embolic event#/
I am already on life long warfarin with a target range of INR between 3 to 4..
VQ scab shows possibiliy of pe as patchy effusion/perfusion and d dimer of 486.
I think that you are right about the diagnosis of fluctuating between hypo and hyper. On Aug 29 2014 private blood tests showed that the anas were beomg 1 in 80 suggestive of SLE\.
The EBV was pos. suggesting exposure to glandular fever several weeks beforehand .
I have all the signs and symptoms of hypo but in the past the signs and symptoms of hyper including chest pain and palpitations and fast HR.
pls write back. I have pn which is driving me mad.
Jean x
jean34329 shellyC19
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Other blood tests were the CBc, U's and e's. Thyroidperoxidase antibody less than 33,CRP which was less than 4.
T3 was not done.
I was told that the other tests were normal.
I have copies of the thyroid tsts/
shellyC19 jean34329
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Of course as long as they are not cancerous they can be left alone and take a horomone to replace low thyroid horomones. On June 12, ask the surgeon if he thinks the nodules should be removed. The problem with operating on the thyroid is this, directly behind the gland is your trachea which is your airway. It can be dicey, and some doc's try to avoid taking it out unless they have to. The other problem is, if they take the whole thyroid out, it can be hard to get proper amount of horomone needed and it is a shock to the body. Of course this is your doctor's call, but you may not need the nodules out. It is common to go between Hyper and Hypo as the body will send out a signal to the Pit. Gland and then the message to make more T4 is sent and well the body tries and in some people it does that back and forth for a long time until it settles down. A Goiter is a symptom of it being low also. Your tests are recent and that is good, esp. when seeing a specialist. You said the EBV was positive and that glandular fever weeks beforehand. All of this indicates a problem with the gland, which is good to know, even though you have the problem.
The other area is your heart problem. The segment in the beat of the heart where it makes a contraction to pump blood and relax phase seems to be too long. Normally the phase is quicker. This could be a family inherited trait or could be coming from your low thyroid level or another disease process in the body. When you are in Hyper phase it would cause a racing heart beat, chest pain and palpitations. This needs to be looked at by a cardiologist or a very good GP to see if you need special meds for it or to just watch it for now. They have lot's of meds for the heart so many things that can make it better for you. I think the loop recorder will give them a clearer picture as to what exactly is happening in your heart. I know having multiple health problems takes a toll on you but hang in there and having your consult in June and then you will know more.
Keep on the warfarin to keep your blood thin and avoid a PE, which can be deadly. we live in such good times and modern medicine has helped so many, including myself. I think you have a low thyroid and are having the effects of it as it is untreated right now. Please feel free to contact me and I will do my best to help. XO Shelly
barbara98940 shellyC19
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shellyC19 barbara98940
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jean34329
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Thank you very much for your very informative reply. I wrote my response last night but when I clickked on Reply to Shellly the reply disappeared off screen.. I made a further two attempts and the same thing happe ed, so I gave it up as a bad job.
I will reply to you but at the moment feel too tired to do so.
I will try to send this now. I am grateful to you because it must have taken up a lot of your time, however I fely a lot haappier reading your response and ready to cope with having the loop recorder inserted. Problem is/was that it was caancellled as INR too high at 4. Needs to be 3 otherwise a haematoma will form around the device, get infected then the whole thing wiill have to be removed!!
Shelly I will write again in response to your very caring, informative and reassuring post.
Thank you
Jean xx
barbara98940 jean34329
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shellyC19 barbara98940
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shellyC19 jean34329
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jean34329 shellyC19
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Hello Shelly
Thank you for your understanding response.Knowing that your support is there at all times is comforting and makes a tremendous differener emotionally.
I now await another appointment.
Hopefully I will not have to wait too long.
Once again thank you for your help and support.
Kind regards
Jean x
Carolannfud shellyC19
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jean34329 barbara98940
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Thanks for te tip. I will try it out.
Thanks also for your support especially at this very difficult time.
With kind regards
Jean x
barbara98940 Carolannfud
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Barbara x
Carolannfud barbara98940
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shellyC19 Carolannfud
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Now the meds just replace the horomone, but all medicines have a half life in the body once a level is obtained. If a person has poor kidney function or bowel function, (example would be elderly or a person who does not have enough hydration), you could see less excretion and a rise in the level. In some people the med can cause a rapid heart rate because it is not a timed released type of drug. Whenyou take it you get a BOLUS which lasts for 24 hours in your blood stream. So in a way, it could if used long term, give a person a high pulse, thus leading to other problems.... Most people do not have that. An easy fix is break the pill in half take some in a.m. and some later in day about 6 hours later.
If you have a problem or any cardiovascular disease then, proper monitoring of the heart would be a very good idea.
Hypertension (high blood pressure) is more of a danger than long term use of thyroxine. Uncontrolled hypertension is a big cause of strokes and heart problems. This can be treated by meds and diet. Also having high cholesterol the (LDL) is bad. These can be treated by meds/diet together.
I hope this makes sense. Most people have no problems with long term use of Levo or any other thyroid drug.
barbara98940 shellyC19
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barbara98940
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shellyC19 barbara98940
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shellyC19 barbara98940
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barbara98940 shellyC19
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Carolannfud shellyC19
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Thanks for your response!