Lowering thyroxine dose

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My endo has stated that my blood results have come back stating that I’m at the higher end of the normal range and has advised me to decrease from 125mg to 100mg of thyroxine per day.  I’ve been on 125mg for 1 year and have told him that I’ve felt hyper all year but he told me not to decrease as my bloods were in the normal range until finally my TSH level has gradually increased month on month to a point where he now believes me.  Any way, I’m wondering how long it take for me to level out at 100mg and will I gradually get better or will I be all over the place emotionally for example until I’m level or is everyone different?.  Thanks 

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  • Posted

    Hi James

    This is a Board for people with HYPERthyroidism and you are on Levothyroxine so you are HYPOthyroid.  Now you may have been hyperthyroid and treated with Radiation or Surgical removal of your thyroid.  Is this the case?  If so, what was the reason for your hyperthyroid diagnosis in the first place?  If not, then you are hypothyroid but don't know why.  If in the first case, you having been hyperthyroid and treated for this, if the reason you were hyperthyroid was Hashimoto's thyroiditis, then you will bounce back and forth on either hyperthyroid drugs (drugs to block excessive thyroid hormone) or hypothyroid drugs (like Levothyroxine) to replace thyroid hormone your body is no longer producing.   In Hashimoto's disease, the immune system is producing autoimmune antibodies that attack the thyroid gland directly.  From what I have seen on this Board, patient's with Hashimoto's do better at regulating their thyroid hormone level by using high doses of Regular L-Carnitine rather than prescribed medications.  If this is NOT the case, and you have hypothyroidism and you don't know the reason why, then if you want the benefit of people's experience with Levothyroxine and hypothyroidism, then I would suggest you post your question on the HYPOthyroid Board.   If you were HYPERthyroid to begin with and had radiation or surgery, then you need to know the reason for your hyperthyroidism and whether or not you had Hashimoto's disease.

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  • Posted

    Hi Linda, I have graves disease so am hyper but am on the block and replace method.  My thyroid is blocked using carbimazole and I use levothyroxine to replace, this is why I have posted here.  Should I post in hypothyroidism or are you able to answer my questions please? 
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    • Posted

      The block and replace method is mostly used in Britain.  I haven't heard of anyone using this in North America.  How are you feeling on this method?  While I know it is used in Britain, most people on it just have their excess thyroid hormone blocked but I haven't heard that it does anything else.  Perhaps those that have been on this method can better comment.

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    • Posted

      Hi Linda, yes I’m in the UK.  I haven’t got anything to compare it too and I haven’t get ok since being on this method.  I’m due to come off it soon.  
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  • Posted

    Hi James, If you are under block-and-replace treatment, you may want to seek experience sharing from Brenda80266 on this board. GL
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  • Posted

    Thanks mike, hopefully she will see this and will respond. 
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