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Lpr and dry mouth

Posted , 6 users are following.

stephen_57
stephen_57

I have a problem for about a year or just over. It started with slight slurring on a daily basis. But then it gradually became more chronic. No other symptoms as such. The more chronic this became the more the anxiety built up anyway after just getting on with life. I thought this is not getting better. Have always followed a good diet with a few naughtys here and there. Have always exercised. Weight has gone up and down a bit went to see doctor as the slurring was accompanied by chronic sensation of dry mouth. Getting to the stage that I can no longer hold a conversation as my mouth cannot seem to keep up with my brain. Having trouble reading aloud seem to get muddled as I go on as if I wax drunk sometimes. Anyway to cut a long story short after having blood tests to rule out other things. They came back fine. Eventually referred to speech therapist who I thought was great. She asked a few things noticed I spoke fast which I think could be anxiety she caught me on a good day.

My wife had a cold about six weeks before and a tickly cough which I caught, the thing was that I never got rid of the cough. Which I seem to get when I lay down. Also leading up to this for the last few months I have had trouble in the throat having trouble getting food down choking feeling sometimes. A bitter taste in mouth especially in bed in the morning. No heartburn as such. The speech therapist said she thought I had LPR she referred back to GP.

I am now on lansoprazole and gaviscon advanced for about 2 weeks now. Which I know is not long but the dry mouth is terrible now, although the dentist and doctor said that my mouth was not ot particularly dry. The last year or so has been not great with having a discectomy in March which went great. But before that I was in alot of pain and was popping the pills. Naproxen, codeine etc just to have some sort of relief. Could it be that that's caused this with my digestion. Anyway I think I am going to ask for an endoscopy when I go back to see the GP as these pills you get prescribed just give you more problems,

1 like, 22 replies

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  • derek76
    derek76 stephen_57

    Posted

    Dry mouth can be a side effect of PPI's for some patients though perhaps you need to see an ENT specialist.

    For your dry mouth and throat you can get artificial saliva called GLANDOSONE that you can spray in your mouth and throat as often as you feel the need. .

     

    • stephen_57
      stephen_57 derek76

      Posted

      Thanks derek. Tried all of the mouth sprays mouth washes biodene etc no good tried pastilles. I think that the acid comes up and goes into the mouth tissues as it always seems worse in the morning onwards I seem to get better at night time. I am wondering if this because your system shuts down a bit in the evening and so the acid is not being stirred up also I find when I exercise, cycle or walk for example I struggle. I cannot walk with mouth open because it gets even drier or closed my nose closed then it's very noisy and nasal at the moment I seem to struggle as I love walking and cycling

    • stephen_57
      stephen_57

      Posted

      Also have altered my diet cut out citrus, tomatoes caffeine alcohol on a low fat diet also taking ginger licorice all the the things you should do, so they say

      I always had a pretty good diet but who knows what's good and what's not these days

    • soton74514
      soton74514 derek76

      Posted

      I have sinus issues, keep smelling burning wood smell but nothing burning.
    • derek76
      derek76 soton74514

      Posted

      I sometimes smell burning at night or sometimes toast.
    • soton74514
      soton74514 derek76

      Posted

      That's good to hear that I'm not alone with this, hope you improve. Driving back from shopping with my missus last week I said that burning smells back, she said yeah I can smell it as well,LOL, someone was having a garden fire. Really suffering with dry nose at the moment and like a burning gas all through my nasal passages, how the hell did I finish up with this.

    • stephen_57
      stephen_57 derek76

      Posted

      I am now booked in for a endoscopy on Wed. Maybe this will provide some answers
    • stephen_57
      stephen_57 derek76

      Posted

      I forgot to mention in my first post that I have bells palsy march 2016.which was quite frightening when you wake up with one side of your face has fallen and you have to drink and eat through a straw. But I thought I was one of the lucky ones with almost a complete recovery in a month. But ever since very very slowly these problems have come on. Speech therapist said there was a small dysaria problem but she thought my anxiety was making it worse. They say the nerve across your face grows back very slowly and sometimes it does not go where it's supposed to. Then as I explained before there is the acid problem now so I am not sure what is really causing this severe feeling of dry mouth, I say feeling because both the dentist and doctor said my mouth was not dry. So it could be nerve related. Anxiety.,or acid!

  • Emma1001
    Emma1001 stephen_57

    Posted

    Hi

    I tried Omeprazole 20 mg for a month. It was good for reflux but then the cramps set in every night, both feet and hands. I stopped the drug and the cramp went. I then tried a lower dose of 10mg per day with a magnesium supplement to help with the cramp. This time I was OK for a month but was starting to get a dry mouth and nasty taste .... then it got much worse ...  dry mouth and headaches and ankle swelling. One night I felt is this like slow poisoning?  My tongue was almost glued to the roof of my mouth and a metallic bitter taste continuously so I stopped Omeprazole. The headaches and ankle swelling stopped and the sour taste was gone but it has taken me 2 weeks to retrieve my saliva glands.  Also my reflux feels better so at least I got some benefit out of the ordeal. Omeprazole is not for everyone and is definitely not for me.

    • Flossytwitter
      Flossytwitter Emma1001

      Posted

      Emma, I changed from lansoprazole to omeprazole in September. Seemed to be gradually working, then things got worse just before Christmas! Started on ranitidine too, and got referred to gastro surgeon...at last. I've a 'small' hiatus hernia. 

      Ranitidine really dried my mouth and my tongue developed fissures. I've stopped the ranitidine, but added 10 mg omeprazole in the evening to my 20mg in the morning, still an awful dry mouth.  My GP is great, but I think I'm now a pest. I now have to have a blood test for type 2 diabetes, I'm sure I don't have it, but I need to exclude it. Strangely enough I've not been checked for vit B12 deficiency. 

      I'm really struggling with the dry mouth and have tried everything I can think of. I am trying to reduce my morning omeprazole, but it's a real pain. Any advice would be welcome. 

    • derek76
      derek76 Flossytwitter

      Posted

      You can get a spray with artificial saliva called Glandosane.

      I've not taken a PPI for the past 5 or 6 days and noticed a big difference as my mouth and airways have not been so dry during the night.

    • stephen_57
      stephen_57 Flossytwitter

      Posted

      Just Been to the doctor who said there is a new diet out that should be high fat. Low carbs for acid reflux. He explained the mechanics to me and said come back in 6 weeks time I have been doing the opposite and I must admit things seems the have got worse although I have lost nearly 2 stone!

    • stephen_57
      stephen_57

      Posted

      I know exactly how you feel. I have struggled with dry mouth sensation since the middle of 2016 and it seems to get worse especially when you on ppis. Trued the sprays pastilles. Everything. But to no avail. Went back today and as I said before the doc gave us leaflets about the new idea on reflux hi fat low carb diet, still got to leave out things like bananas potatoes, sugar. I can always email anyone who is interested or the website ispublichealthcollaboration. org it might not tell you what you are looking for but anything is worth a go.. Also I have recently been diagnosed with barretts esophagus although the person who done the endoscopy said it was only a very short section what was affected. So happy days!!!
    • Flossytwitter
      Flossytwitter derek76

      Posted

      Thanks Derek. I have and am trying mouth sprays, humidifier, drinking gallons of water, no caffeine, no alcohol, no chocolate. I've been watching everything I eat for months now and while the indigestion has certainly improved, the side effects of these ppi's is awful. I got xylimelts yesterday and I had my first full nights sleep since September, tongue still dry and uncomfortable but may be more tolerable if I get some sleep. 

    • Flossytwitter
      Flossytwitter stephen_57

      Posted

      A link would be really useful Stephen. I've looked at the website, but it looks clumsy to navigate.   

    • stephen_57
      stephen_57 Flossytwitter

      Posted

      I agree the site is not specific for reflux, I think it's just for healthy living. The reason I went to the site is the leaflets the doc gave me were from this. He did say the new thinking on reflux is like I said high fat, low carbs. But to cut out starch in the diet bread, rice etc also potatoes and fruits which are high in carbs like bananas

    • derek76
      derek76 Flossytwitter

      Posted

      Sleep ? What's that:-)

      If I get a bit over four hours in total I'm lucky.

      No caffeine, no alcohol, no chocolate ? What pleasures do you have left?

      I mostly waken up about three times and have difficulty in getting back to sleep so get up for a while each time rather than just lay there. I feel beat and bodily tired during the day but by bed time I'm wide awake for some  reason.

      I've always been a night owl but previously slept once in bed . 

    • stephen_57
      stephen_57 derek76

      Posted

      If your unlucky enough to have Barrett esophagus that's what your supposed to do according those in the know!

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