LPR/Silent Reflux - desperately in need of a miracle. Has anyone recovered from this?

sn1,

What are your doctor's orders? This is a tricky affliction. It seems to me it hardly ever gets cured, just controlled.

Susan

Hello, I hope by now you are experiencing some relief for your symptoms. I would be reluctant to return to a onsultant who sounds so unhelpful as yours, but you are entitled to a second opinion, so ask your GP to refer you to someone else. My husband has this condition but mercifully not so severe as yours, and he finds

that a sinus washout 2 or three times a day is helpful. The initial kit is available from any good chemist, and after that the sachets are reasonably priced, to maintain the procedure, or if you feel confident enough, you

can make up a jugful from salt & baking soda in cooled boiled water each day.

I hope this helps.

A.H.

Hi Susan

An anti histermine first thing in morning 120mg fexaenadine hydracloride

2 x 20 mg of omeprazole 2 to 3 hours after the anti histermine

then a good slug of Peptac before bed (gavescon)

personally I am cutting down acid foods, drinking more water, a a PH meter for everything and drink a 15 mg of wheatgrass powder in water a day which if you research is very alkolising as a food supplement.

But a still feel it is a sinus / throat / year congestion problem. and olbasoil steam inhalation and a victory v does more than anything else.

My GP just says Ah Hey! and the ENT fella is refering me to speach therepy on basis that I have to re learn how to talk

Dear All,

Thank you all fo ryour contributions.

One other thing I came across today is alkalising supplements!

As you may know, there are a number of food supplements in the market for alkilising effects. Such supplements are generally vegetable based and sold in the form of tablets.

What do you think about these products? Do you think that will help with our problem?

All the best

Hi all,

(Firstly, apologies for misuse of words/terminology and or spelling. I am a Swede living in the UK, but terminology of this kind is difficult to get right!)

I can't begin to say how grateful I am for you all, and that you have chosen to share your problems so openly. I found this late last night, and finally (I hope) I have at least a name for my problems. After reading through all of it, I cried with relief, even though I realise that there is no easy fix - quick cure for this disease.

I have not yet been diagnosed with LPR, but here is my story so far.

About a 2,5 years ago I got chronic rhinitis. I tried different sprays, and am still on Avamys. Doesn't help much. A bit of the pain that normally shows up over night in the nose is a little bit better, but not much. I've had different allergy tests done, but they have all come back clear.

Exactly one year ago, I had my first apnea attack. I woke up and could not breathe. I jolted up to a sitting position, thinking that would kick start it, to no avail. A few seconds later, a massive cough and I was breathing again. Terrified, but breathing. I had the ambulance come out, as it felt like something was in my throat, I could not breathe properly. They could not find anything wrong, I was breathing ok, so they put it down to panic attack.

After that event, I had a "lump in my throat", that was being put down to stress and anxiety. This would make me have difficulties eating and it also felt like I had a constant "stiff neck", both sides of my throat really hurt. Eventually I was sent to an ENT who said that the cramp I had that night was most likely down to acid reflux coming into my voicebox, forcing it to close. My esophagus and voicebox were irritated, hence the "lump in my throat" kind of feeling. He used a tube with a camera down my nose/throat to view. I was put on Omeprazole (20mg) twice daily, which later got reduced to once daily. I was to carry on with the Avamys as well.

Since then, it's been many up's and down's. The last few months has been really a downward spiral, hence my googling and ending up here. The reflux, (not heartburn anymore, I can not feel it as I used to with heartburn) causes my throat to "cramp" up on a regular basis now and give me apnea. My throat feels very tight and that "lump in the throat" has been there for weeks on end now. Together with this, my anxiety levels has gone through the roof, and I feel very depressed. Eating is a real struggle these days, which in all honesty is not all for the bad, but the little I eat I would like to be able to enjoy.

Last visit to the GP (last week) persuaded me that it was "all in my head" and that the apnea and the "lump" was all down to anxiety. I am however still to undergo a visit to the sleep clinic. After reading all of this though, I'm starting to think that maybe I'm not simply crazy after all, there might be some more to it!

I never liked chewing gum, but as of today I've had two. No difference in my throat though, but assume it will take a few days. I've bought both books mentioned here, read one so far (which I found very informative) and will read the other one later. I've also asked JPT to send me his alkaline ideas, it's worth trying!

I used to be on a low carb diet, and I lost about 50kg that way, in less than a year. Since then, life has been a bit too good, and the weight is all (and more probably) back. I do not exercise anymore, but both of these issues are easy to address, so started that today already. Can't believe it has taken something like this to hit the final straw, pathetic, isn't it!

I am still on Omeprazole, 1x20mg / day and my Avamys spray. Together with this, I use Gaviscone advance after every meal, and then before I go to bed. Well I say bed, but I've been sleeping in a sitting position in the sofa for the last two weeks. I am too afraid of laying down. Poor husband sleeps on a spare bed beside me, but I am so grateful for him being there, even if I feel bad about it. I could not go through this without him.

The next step will be to ask to go see the ENT again, hopefully my GP will refer me and not think that I'm a hypochondriac by now! Thank you all again, for sharing your thoughts and your pain, it is easier knowing that you're not alone. I'll keep you posted on how I get on, and please feel free to give me any advice you think suitable at all

Hi Marimis,

Sorry to hear that you've been having such an awful time. I was only diagnosed with LPR just over a month ago and am still working on the correct medications. I'm taking 30mg Lansoprazole daily and, as of today, my GP has added Domperidone to the mix. However, he was able to diagnose me fairly quickly himself and sent me to the ENT consultant pretty quickly, so I didn't have the same problem you have had in the GP saying it was all down to anxiety. The perception of a lump in the throat is a common symptom of this disease (I thought it was all sinus related initially) and the ENT consultant asked me about this when he examined me. Thankfully, I haven't had the apnea, but it sounds very frightening.

I just wanted to mention that I bought an Adult Reflux Wedge Pillow for the bed. It raises your head when sleeping, which is something that is recommended. Not cheap, but may be well worth a try.

I hope that your GP refers you back to the ENT consultant without any difficulties. I think I would write down all the problems you are experiencing and present him with them (this always works for me and helps me to think clearly about what I want to discuss) so he can see how difficult life is for you at the moment. Maybe your husband or a close friend could go with you for support?

I hope that things get better for you and wish you well.

hI all

just a short update. I have my referral letter for speech therapy to learn how to live with a week voice.

I have also tried alkalising my tap water with Baking Powder and it has got more acidic, gone from 7.8 to 6.9 ph so gave up on that.

I have been consuming wheat grass powder in water for 2 weeks and I believe that I am getting some gradual improvement. Purchased from Holland and you know who and it makes the most amazing green coloured drink and taste OK, like grass. which is what it is. I researched it and it really seems to be about the most alkalising thing you can consumme

One other point that I have never mentioned and I dont recall any one else mentioning. I have permanent tinnitus, ringing in my ears. sometimes worse than others but it is always there and never totally goes away. Has any one else have this symptom with LPR?

Also, I was wonder if age is an issue in the effected group. I dont think I am old at 49, but I suddenly feel old.

I dont seem to remember my parents or grandparents generation suffering from these symptoms either. Is it something to do with the processed nature of our foods now or is it do with atmospheric pathogens and pollutants or even ozone.

anyway, I am sticking to the medication I described in the post a few days ago and adding the wheatgrass. and will let you know if I continue to progress or not

SN1

Hi, I have been suffering with this for a year now. 2 x endoscopies show that I have a small hiatus hernia

(which the doctors told me should not be causing me any problems) and after a recent PH test (tube up the nose into the stomach for 24 hours) I was then told that I do not have a reflux problem.

I have difficulty breathing, sore eyes/ears, clearing the throat, nausea, loss of appetite, bloating, nasal drip

etc, all the symptoms common with this problem although I still have not had a diagnosis which is

extremely frustrating. Stangely I have found that taking half a diazepam seems to relax me and make me

feel a bit better????

Does anyone know of a 'GOOD' specialist (Gastro or ENT) that could help please??? I am desperate. I live close to London

JPT -

I'm using PH 9.5 - do you think it's safe?

Also, about Pep test...I found website -'rdbiomed' - they offer Peptest -tm - and it would provide Pepsin readings right away which is very convenient but not sure how accurate that is. The other Peptest I saw on youtube where you buy a special Peptest kit and send your saliva out to the lab and they produce a result by inserting the tube with your saliva into the centrifuge. Which one do you think I should go for or better ask which one would provide more accurate data?

hello lucy70638.

I have stopped taking my medication. Condition no better and no worse. I am making an appointment to go to the Circle hospital in Bath for a private consultation. It is going to cost a few hundred £'s as they have a specialist department for for throat and voice type of things. I will keep you posted but I believe they have other hospital near London. Basically I have no confidence in the NHS. I have a great GP but this is way out of his comfort area. Meanwhile I have bought a voice amplifier which looks stupid but at least I can continue to work and keep my business going and maybe rest by voice

Paul AKA SN1

Does anyone know if exercise makes LPR symptoms worst? I noticed that during my exercise I belch some more but I don't feel any acid coming up my throat. I never exercise on the full stomach and I at least give 2 hrs after my meal before I start exercising. Does anyone know anything about it?

SUGAR!!!!!! Cut down on your sugar consumption, especially high fructose corn syrup. Sugars overload the

liver and the liver does not have enough nutrients to break down foods properly. This causes a digestion

problem and of course an acid reflux or a silent reflux condition. Much better after removing sugar from my

diet. Thank you JEHOVAH GOD!!!!!!😊

hi JPT

Since you are talking so much about Peptest, do you know if this test should be done ONLY if you are off PPI's and for how long? I don't want to take this test while being on Prevacid and not to get the real picture of what my level of Pepcin is. Do you know what is the normal level of Pepcin?

I'm not sure, ask them

Regards JPT

I just came across this forum because I just woke up this morning with a burning throat,saliva in my mouth and coated tongue and decided to hit the internet again. Here are my full symptoms:

Chronic bad breath

Chronic throat clearing

Coated tongue.

Post nasal drip

Constant burping

Bloated stomach sometimes

Burning throat

My mouth is always full with saliva when I wake up in the morning

Right chest pain

The most distinctive symptom is the bad breath(mouth odor).To fight this problem,I have done everything possible and various tests. I have taken out my tonsils, did endoscopy;my GI told me no visible sign of reflux in my esophagus but still gave me Dexilant.After a month,I stopped because of the side effect and cost.But she said I might have silent reflux.I went to the Ent he passed the camera down my throat but never really told me anything.He put me on omeparazole for 6weeks.Honestly,I didn't really take it because I read that dexilant works better than omeparazole.So if that didn't work for me why would this one work?I didn't want to waste my money again.

I have done the following tests: SIBO,H.pylori test,Yeast overgrowth tests,urine tests,stool tests,lactose intolerant test.Dentists have ruled out any dental problem.

I also came across a study on Candida.Some say Candida can trigger even acid reflux.I have done Candida diet,taken diflucan,different Candida herbs and have been on high billions probiotics;all to no avail.

My greatest worry is that nobody has been able to tell me this is specifically my medical condition.Do you think I have LPR?Do u guys suffer from bad breath too with this condition? I have been suffering for 3years now.