LPR/Silent Reflux - desperately in need of a miracle. Has anyone recovered from this?

Has anyone tried the eating for your blood type to help with these symptoms? This is my most recent attempt at a cure, sorry to jump in, but I read through this entire thread and didn't see this idea come up yet.

I too have had LPR symptoms for over 17 years, now 37, started around age 20. Went through all the usual tests, ENT doctors (removed tonsils), allergists, dust mite proofing a house, giving up pets, actually had Nissan fundiplication surgery almost 8 years ago after a positive 24 hr ph study. Made things better but no cure, still needed to be on PPI's to keep things somewhat tolerable.

Most recently on a yeast free, dairy free, gluten free, sugar free diet, slowly getting better, but definitely not quick enough. It's been 5 months since things flared up, finally sleeping through the night without clearing throat and coughing all night, but still clearing all day long, with clear mucus coming out. PND on some days, but always clearing and coughing.

Going to continue with the natural diet, along with PPI once a day and gaviscon before bed. Also drinking alkaline water evamor 8.8 ph for additional help along with Probiotics, food enzymes, and additional digestive meds.

I will keep in touch on the eating for your blood type results.

Am following this forum with great interest. I was diagnosed years ago but with the help of Nexium it disappeared after a few months. I was then told to take it only if symptoms return. For the last month I have had periods of nausea but a continual sore throat. I am trying everything I can think of to get rid of it, but to no avail. But I am fine overnight and in the morning, gets worse during the day.

One thing I am doing though after reading earlier posts is drinking water with a ph of 8. I make my own by adding a quarter of a teaspoon of bicarbonate of soda to 600ml of water. I sip it during the day. Figure it can't do any harm. Also,I have made the massive decision to give up coffee!!

Anxious Alex, I'm a Filipina working in Qatar with 2 young children. Can you please let me know if you have some progress on your health problem. I had the same one that started very recently like 2 months. Please share with me if you have done any successful treatment. God Bless you.

Hi Larkspur74

Since I last wrote on here I have had some progress. I was lucky enough to be referred to a superb, understanding gastroenterologist who has now referred me urgently to The Royal London hospital for tests to confirm I'm a candidate for fundoplication. This is not the outcome I was hoping for - who wants such a drastic operation that has only an 85% success rate and which seems to have a long (full) recovery time and long term consequences? However, my endoscopy showed significant bile reflux and hiatal hernia and the operation may be the only way to stop the bile, my current symptoms and further, even more seriousconsequences. The presence of so much bile is the reason why none of the treatments (prescribed, complimentary and lifestyle) have worked. Firstly, bile reflux is much less responsive to lifestyle and dietary changes; secondly because anything I take to reduce the acid part of my reflux simply allows the alkaline, but equally corrosive, bile to do its damage. My Gastroenteroligist says my symptoms are typical of his experience in this area and he is the first medical professional I have encountered in my two year nightmare who I have trusted or had confidence in. I had both an ENT and an NHS speech therapist tell me categorically that there is no such thing as non-acid reflux!

So, my next step is to have the tests at the Royal London and hope that I'm a candidate. I have a lot of questions before I actually agree to surgery but my gastro promised me he would refer me to a great surgeonwho knows what he/she is doing doing. When I asked what happens if the tests indicate surgery won't help, he said, 'Then we're in trouble.....but I'm confident that won't be the case'.

I think the best discovery tool is endoscopy. Too often this problem is treated by ENT but it seems that most people need to be tested too see what's causing the problem from lower down. If your symptoms are like mine, push for a gastro referral. Good luck and best wishes.

Sorry....Lurkspur, not Larkspur.

Hi all

My Peptest package and my Alkaline drops just arrived in the post. I will do the test first and start drinking the alkaline water after.

Have been on PPI for two weeks now and have noticed a slight change in that the mucus seems to have

become a bit thinner and so easier to spit out ie I'm not having to hawk it up from my throat as

much to get it out, which makes the sound of throat clearing quieter, ie if I'm on the train or bus.

Also taking digestive enzymes and aloe vera juice and drinking green vege smoothies, as I have never liked

eaten any vegetables in the past, hence an acidic diet!

Will keep you all updated on any results or improvements.

Bye for now.

Becks

Hello Anxious Alex, let's not give up!

Hello to all, I just had my symptoms like almost 2 months now, had antacids for 2 weeks and used Nizatidine for 4 days. I stop taking meds since yesterday. My diet vege smoothies and fruits for the last 2 weeks. Started taking Stronger Probiotics and Digestive Enzyme as of yesterday. I was able to sleep somehow with mild throat clearing. Read these supplements from another forum..Also, need to buy Peptest, Alkaline drops, Marshmallow roots, slippery elm and will continue on my fruit and vege diet. Will let you for some progress. Also, raw cucumber help for immediate relief.

God bless us all!

Nexium Sucks!!!! even for 2 days, will stop and will go back to smoothies vegetable and fruits diet, couple with probiotic and digestive enzymes as these are the only supplements i have. Will buy the rest online soon.

I can't take Prilosec which is similar. It makes me feel quite ill so I understand how you feel! I just eat small low acid meals, no food after 8 pm and drink Iceland water which has a pH of 8.8. This took care of everything except post nasal mucus. So my GP put me on 150 mg of ranitidine twice daily for a month. I think it is helping but the jury is still out. I'm only about half way through the month. He said this will help heal the upper esophageal sphincter and that should strengthen the sphincter. We shall see. It's worth a try as I have no side effects from the ranitidine.

There seems to be a lot of trial and error with LPR.

That's funny. My allergist said that what you're taking and the PPI's won't stop reflux but will alkalinize the stomach.

Dymista helped my waking up choking and spasms. I took it for about a week and a half. I haven't had to use it since. I still have spasms but less common. My throat redness is healing. I've been on two weeks of a low histamine/low acid diet. I eat about 10 foods total. It's been very helpful. I eat small portions throughout the day. My stomach feels better. The only issues I'm still having related to the LPR is the burning throat occasionally (distilled aloe helps this) and the cricopharyngeal spasms in the throat which are no longer constant like they were. I take distilled aloe (no bitterness because it's distilled) straight 2x a day, Manuka honey from New Zealand, 1 tsp a day, and stick very strictly to my diet.

Whoops...and I'm weaning off Nexium. I was on 2 a day for a week, then 1 a day for a week and now my doc says you have to taper off 3 weeks at a time so I'm doing 3 weeks on 1 Nexium every other day.

Hi music chick581

The best way to get off Nexium

https://www.facebook.com/refluxhelp

Regards JPT

Hi all

My Peptest came back negative! What more can I say..?

Does anyone suffer from any Candida symptoms?

As I do ie, oral thrush and skin rash on elbows and legs and have researched that Candida

Albicans can cause acid or silent reflux together with PND which I suffer from too!

Have decided to get myself tested for this to find out if there's a link.

In the meantime, will continue taking my PPI meds, digestive enzymes and drinking Alkaline water etc..

Will keep u posted.

Becks