LPR/Silent Reflux - desperately in need of a miracle. Has anyone recovered from this?
Posted , 270 users are following.
Hi - I'll be as brief as possible. For almost a year I have had symptoms which have worsened, starting with throat clearing and progressing to regular spiting out of white, frothy stuff, post nasal drip, lump in throat or sharp sensation, streaming or blocked nose and hoarseness. These are all unpleasant and irritating but because I talk for a living my work is becoming badly affected so it is now making me depressed and anxious as well. I was referred to ENT, had the camera up the nose and down the throat to rule out anything sinister and was given Omeprazole and Gaviscon Advance. No advice, no explanation. I had to find it all out myself. (and I'm not confident/assertive with docs, either).
The drugs haven't helped, I'd go so far as to say the reflux significantly worsened. I had faith in the Gaviscon Advance having read how it works but that hasn't made any difference either. I have monitored everything I eat and drink and can't find anything that triggers it with the possible exception of bread, and I may be grasping at straws there. Certainly coffee, alcohol, spicy food etc don't trigger it and ginger, acidophillus, apple cider vinegar don't help. It does seem to be cyclical - I'll have a week or so of decreased symptoms then it gradally works up again to two or 3 weeks of hell. No heartburn, and the reflux is almost always upright, no problems sleeping...just the other 17 hours a day! The ENT was brusque on my return visit and said that, aside from speech therapy, there was nothing more he could do for me. This can't go on, though. At it's worst it makes me tearful and desperate at work and speech therapy isn't going to stop me spitting up into a whole toilet roll each day, or reduce the other symptoms. I'm also worried my teeth will rot and I fear for my job. Has anyone experienced this with the same pattern/lack of triggers etc? I would love to hear any positive experiences that don't just repeat the same old same old, ie, raise the bed 6 inches, dos and donts with food etc.
28 likes, 899 replies
moonbuggy
Posted
I have also just had my food tests back and was horrified at all the healthy foods I have been eating that I am intolerant to (bananas, potatoes, strawberries etc etc)
musicchick581
Posted
Gee_McK
Posted
moonbuggy
Posted
The problem is there are so many to test. It may be an additive that you are allergic to. You can try an elimination diet where you cut out dairy, sugar, gluten for a couple of weeks and then re-introduce one at a time. However this didn't help with me as I seem to have problems with certain fruit and veg. I had my testing done bykinesiology (worked for me). It only helped a bit with my nasal problems as the main culprit was the reflux. I have now bought a nasal irrigation system and us it with alkaline water. That really helps to clear everything
Gee_McK
Posted
musicchick581
Posted
cazhgs
Posted
musicchick581
Posted
linda55954
Posted
Gee_McK
Posted
Cheetah
Posted
ninja9
Posted
I had a similar situation when I came off my tablets. The reflux became terrible- I had been warned that it would get worse but was sure I could handle it.I tried desperately to diet it and ended up losing half a stone over a couple of weeks- I don't have the weight to lose. I felt terrible and unfortunately the dramatic changes to my diet didn't help the reflux atall. Back on the meds and still being careful with my diet and feeling much more human. It does make you feel very reliant on the PPIs though.....I don't like the idea of being on them for the rest of my life.
Gee_McK
Posted
linda55954
Posted
Gee_McK
Posted