LPR/Silent Reflux - desperately in need of a miracle. Has anyone recovered from this?

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Hi - I'll be as brief as possible. For almost a year I have had symptoms which have worsened, starting with throat clearing and progressing to regular spiting out of white, frothy stuff, post nasal drip, lump in throat or sharp sensation, streaming or blocked nose and hoarseness. These are all unpleasant and irritating but because I talk for a living my work is becoming badly affected so it is now making me depressed and anxious as well. I was referred to ENT, had the camera up the nose and down the throat to rule out anything sinister and was given Omeprazole and Gaviscon Advance. No advice, no explanation. I had to find it all out myself. (and I'm not confident/assertive with docs, either).

The drugs haven't helped, I'd go so far as to say the reflux significantly worsened. I had faith in the Gaviscon Advance having read how it works but that hasn't made any difference either. I have monitored everything I eat and drink and can't find anything that triggers it with the possible exception of bread, and I may be grasping at straws there. Certainly coffee, alcohol, spicy food etc don't trigger it and ginger, acidophillus, apple cider vinegar don't help. It does seem to be cyclical - I'll have a week or so of decreased symptoms then it gradally works up again to two or 3 weeks of hell. No heartburn, and the reflux is almost always upright, no problems sleeping...just the other 17 hours a day! The ENT was brusque on my return visit and said that, aside from speech therapy, there was nothing more he could do for me. This can't go on, though. At it's worst it makes me tearful and desperate at work and speech therapy isn't going to stop me spitting up into a whole toilet roll each day, or reduce the other symptoms. I'm also worried my teeth will rot and I fear for my job. Has anyone experienced this with the same pattern/lack of triggers etc? I would love to hear any positive experiences that don't just repeat the same old same old, ie, raise the bed 6 inches, dos and donts with food etc.

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  • Posted

    Well after more than 3 weeks I have now been doubling the dosage of Omeprazole and it has worked.  Not sure if I should risk going back to one yet but that's the dilemma, how do we know?  I was also wondering does anyone know if this is in any way related to bloatedness or weight gain.  I have found after eating even though I don't eat huge meals, I seem to have a bloated feeling and my stomach just swells up.  Feel like I may have to start omitting certain foods from my diet eg. cereal and milk for one.
    • Posted

      Hi GM,

      I often get bloated lately but was informed that it's the result of a haitus hernia.  Certain foods make it worse for me, such as wheat and dairy.

      You might like to check out the Fast Tract diet mentioned on this thread -to tr and pinpoint what foods may be causing the bloating.

      I started taking digestive enzymes a couple of weeks ago and am pleasantly surprised at how they have improved my digestion and LPR sysmtoms (much less mucus -even after drinking the odd coffee). 

      The enzymes also help keep me regular, which helps too.  I take "Udos Choice Digestive Enzyme Blend".

      I've personally avoided taking Omeprazole and prefer the the more natural route;  so I eat mainly vegetratioan food, avoid ice-cream and fizzy drink, do regular TM meditation to reduce stress and acid levels, plus I walk and cycle most days. And I sleep with a window open -which helps avoid a dry throat at night.  I used to take one or two teaspoons of Gaviscon Advance perhaps twice a week if the refulx was bad, but since starting on the digestive enzymes I havent needed the Gaviscon -touch wood.

    • Posted

      Thanks.  So far I have no symptoms, so the lump in throat feeling is being kept at bay.  I don't drink fizzy drinks and only have maybe 1 or 2 coffees a day. I don't eat red meat either so no idea where is is all coming from. Never had any need to take Gaviscon as this has only come to light in the past 18 months or so.
    • Posted

      So have you been diagnosed with LPR, or a haitus hernia, or both?

      "1 or 2 coffees a day".  

      I've never had the lump in the throat feeling. But if I did I'd personally avoid having any coffee, not even decaff.  Instead I'd stick to a low acid diet and try and reduce or come off the Omeprazole.  But thats just me.

    • Posted

      I was referred by doctor to ENT who found nothing.  Hospital referred me to a speech therapist and after a few months she diagnosed me with silent refkux, not my doctor.  No one has told me ago avoid any food categories yet I have a runny nose every time I eat.
    • Posted

      > she diagnosed me with silent refkux <

      have you had a camera/scope put up your nose? as you may know, this is the first step i'm told to verify if you have lpr.  it allows the ent specialist to look at your throat etc for signs of redness/burning.

      if you've never been dianosed with lpr then perhaps you have rhinitis. or else perhaps just a simple allergy or excess mucus.

      here's some useful info on foods to avoid if you have lpr or even just excess acid. google:- "10 things you should know about avoiding acid reflux".

        have="" you="" had="" a="" camera/scope="" put="" up="" your="" nose?="" as="" you="" may="" know,="" this="" is="" the="" first="" step="" i'm="" told="" to="" verify="" if="" you="" have="" lpr. ="" it="" allows="" the="" ent="" specialist="" to="" look="" at="" your="" throat="" etc="" for="" signs="" of="" redness/burning.="" if="" you've="" never="" been="" dianosed="" with="" lpr="" then="" perhaps="" you="" have="" rhinitis.="" or="" else="" perhaps="" just="" a="" simple="" allergy="" or="" excess="" mucus.="" here's="" some="" useful="" info="" on="" foods="" to="" avoid="" if="" you="" have="" lpr="" or="" even="" just="" excess="" acid.="" google:-="" "10="" things="" you="" should="" know="" about="" avoiding="" acid="" reflux".="">

      have you had a camera/scope put up your nose? as you may know, this is the first step i'm told to verify if you have lpr.  it allows the ent specialist to look at your throat etc for signs of redness/burning.

      if you've never been dianosed with lpr then perhaps you have rhinitis. or else perhaps just a simple allergy or excess mucus.

      here's some useful info on foods to avoid if you have lpr or even just excess acid. google:- "10 things you should know about avoiding acid reflux".

       >

    • Posted

      Already said I had been to hospital for that at ENT.
    • Posted

      I don't have symptoms, they are silent, except for the hoarseness and lump in throat which was why I was sent to a speech therapist.  Consultant who used camera, found nothing but my doctor thinks it could be coming from my stomach. Tablets have helped.
    • Posted

      > Already said I had been to hospital for that at ENT < yes="" just="" checking.="" (you="" said="" you'd="" been="" to="" the="" ent,="" but="" you="" didnt="" mention="" about="" having="" the="" camera/scope="" examination).=""> Tablets have helped.<

      i'd be wary of taking ppi's for any more than a week or so, especially since you say you are taking 'double the dose'. 

      google: "fda warns of fracture risk from acid reflux drugs -ppi antacids linked to hip, wrist, and spine fracture".

      as long as your aware of the long-term side effects. i'd="" be="" wary="" of="" taking="" ppi's="" for="" any="" more="" than="" a="" week="" or="" so,="" especially="" since="" you="" say="" you="" are="" taking="" 'double="" the="" dose'. ="" google:="" "fda="" warns="" of="" fracture="" risk="" from="" acid="" reflux="" drugs="" -ppi="" antacids="" linked="" to="" hip,="" wrist,="" and="" spine="" fracture".="" as="" long="" as="" your="" aware="" of="" the="" long-term="" side="">

      i'd be wary of taking ppi's for any more than a week or so, especially since you say you are taking 'double the dose'. 

      google: "fda warns of fracture risk from acid reflux drugs -ppi antacids linked to hip, wrist, and spine fracture".

      as long as your aware of the long-term side effects.>

    • Posted

      I have, already mentioned it earlier in this thread.  Also checked with my doctor (also mentioned earlier) about a 2 week break I had recommended by another doctor to see if symptoms returned.  They did, but after retaking the tablet again I found the lump was still there so he said it was ok to double the dose.  I have been fine since.
  • Posted

    Like Most, I have been to several Doctors with no real Answer, I have Silent Reflux, but no real cure.My throat got so swollen with the lump on my right side , I had a catscan done and the Dr said that i had LOTS OF Fluid in my throat and my nodes was Swollen, but just sent me home with antibotic and Steriods .... The steroids REALLY made my problems worse... it did finally go down but only to return ....I went back to DR, I was just written a Script for Omeperozole and sent on my Merry Way, I researched and Researched to only Find that its a Guessing game! I could not figure out why i had so much phlem so I Finally broke down and went to Urgent care to see if I could Get lucky and find someone who knew about Silent Reflux..... AND BOY DID I....I found a Dr who had it... How lucky Was I ... She Explained to me From top to bottom Why I feel the Lump in my throat Etc... This is what she explained to me....

    The acid comes through the throat, which causes allergy like symtoms and lots of phlem , The phlem Collects in our throats and thats the lump we are feeling, She told me to SIP water and do not gulp it.... when i feel the lump to Eat more solid foods but not lumpy foods... Like  soft potato  or something to push the mucus out, melon works good.She said the Reason My throat got so bad before was because the Mucus had built up and caused a baterical infection. She told me when I felt my throat dry during the day to eat a couple pieces of watermelon to help moisten my mouth ... She gave me allergy pills ... and some anxiety pills  not strong ones  just a pill that can cause me to relax. She was SOOOOO Helpful , my natural reaction to the lump was DO NOT EAT just drink but actually that was the worse thing to do as she described, Eat small amounts several times , Do not drink much while you eat, because that slows the Digestion process down .. I don't eat chocolate or any kind of caffiene and since she has gave me this useful info I don't take the omeperole ... Just gavison NONE MINT.... No milk or cheese.... Because they can cause more mucus.... No red sauces , Really just chicken and fish for meats ..She said that our main enemy was the mucus besides the Acid  and i believe she is right..

    Now for the bloating she said that The acids in our stomachs digest our food, now if the acids are in our throats instead of stomachs it really can't attack it so the stomach just bloats and doesnt go through the normal process

    .I am not a dr, but what she told me has made the lump go away for now... and I am Thankful for that....

    Good luck to everyone who is on the awful ride

     

    • Posted

      Brandy, my problem is I have been prescribed medication but haven't been told to eliminate any kind of food.  No one has said what has caused this or why I have developed this after years of being fine.  Everyone seems to have been advised to avoid eating this n that whereas I have not.  The hospital found nothing in my throat so it's rather unexplained.
    • Posted

      Actually untill I spoke with this Dr, I had not been told much of anything other than i had Reflux, To be honest Its a Play by Play Process. I think everyone would agree with me that We don't get Sat and and explained anything. We had to beg for info .....Do you have the lump feeling? And the only reason Why they found something in my throat at that time is because The phlem had actually caused an infection. I am trying to help figure out what your systoms are So i can help you better.The reason why I stopped eating the foods i have is by researching and after trying the limations they have HELPED SOOO MUCH!!! So i know its the right thing to do
    • Posted

      Hi Brandy. I'm glad you are not only feeling better but also have found a doctor you can trust. Many of us haven't been as lucky.

      I just had an endoscopy a week ago and have no confidence in this doctor but he's the only one from the Digestive Diseases Group I could get in to see fast. My initial meeting with him, I waited 20 minutes in the main waiting area, and another 40 or so in an exam room. He came flying in like a diva apologizing profusely yet with no sincerity, asked me a couple questions and flew out saying his office would call to set up an endoscopy test. I got zero time to ask questions or even go into depth regarding my medical history.

      The day of the test I got zero time before the procedure, and after he came into the recovery room to talk to me...ME!...the guy who was still dazed and confused from the twilight sedation. Good thing my wife was with me or I wouldn't have even remembered seeing him. He said my throat was a little red and swollen and prescribed Prilosec (omeprazole), which he knew damn well I had already been trying with an OTC brand and that it was doing nothing for the horrible painful lump around my voicebox. Didn't care that it all started two weeks after major back surgery 6 weeks prior, amd represented by raw sore vocal cords and a lump on the right side of my throat that could be felt on the outside with palpation but hurt inside when food passed over it.

      He never got to hear that for YEARS I had seen multiple specialists for sinus infections and acute allergy symptoms with no relief. All of them first threw antibiotics (Z pak, K pak, triple paks) allergy pills, hearing tests (????), was sent to a womans balance therapy class which I didn't go to (I'm a 6'4, 235lb man!) and eventually threw their hands in the air in defeat. 

      Doctors have been creating a hypochondriac out of me just as sure as hair dressers were creating my comb over every time I got a haircut and begged them to just cut it short because I know it's gone! My poor wife started responding to my non-stop obsessing by looking at me like I was a whiney little wimp to the degree that I accused her of not 'getting it' because it wasn't her that was sick all the time with no answers to show for the years and thousands of dollars that got thrown at it! The needle on my Quality of Life 'O Meter was buried on the nil end of the scale. I felt pretty much alone with with this for years and seriously began considering that I was losing my flippin mind!

      That is, until recently when I got GERD/LPR symptoms. The doc who did the endoscopy can go to hell, I know there's more to it all than "just a little red and swollen". OK genius, from WHAT?! How bout we find out what's causing it and fix the root cause; not just give me a scrip for Prilosec (more ameprazole). 

      You're spot on regarding small meals several times a day. I know when I start to feel hungry that if I don't eat something I'm in for 5 or 6 hours of esophogial hell. His damn Prilosec doesn't do bupkus. I'm going to call today but I already know what he's going to say...double the dose to 80mg a day (40mg BID). Not gonna happen. Are we the patients the ONLY ones aware of the side effects and complications of using PPI's in large and small doses for anything longer than 8 weeks? 

      I'm sick and tired of paying 'medical specialists' to fight me, and ESPECIALLY don't like being milked like some cash cow because my ailment isn't considered life threatening and therefore can be safely (used loosely) strung along. The better your healthcare coverage the more you can bank on being bilked.

      I realize this is a rambling rant but the bottom line is, we the sick and suffering need, no, MUST take control of these complacent money grubbers and demand excellence. I just love how a so-called 'specialist' carries themselves like demigods but hide behind the smokey convenient terminology of "practicing". If I failed at my job, backed by a lifetime of training and experience I'd be canned in a heartbeat! They are the ONLY profession where inaccuracy and complacency results in guaranteed future earnings. That said, I realize people are all wired differently but their failure is all but guaranteed if they won't even gather initial meeting information. 

      Hey Angie from Angies List....start a service related to the medical community. Maybe if we can publicly identify the losers it will send a message that we're sick and tired of being sick and tired; and being legally cheated out of already high healthcare dollars.

      End of rant. :D

    • Posted

      On the medication I have no symptoms, no lump in throat, no coughing, no hoarseness.
    • Posted

      JustGreg, Trust me I feel your pain, I know the feeling of Throwing the pills at you with a Wink Right? LIke that is just gonna fix it all. This is my intake on it all, they really don't know how to fix the problem so there for they just throw the pill at you that is for this. HOWEVER we all know this does not do it on its own. 

      I have suffered for awhile with this, I have done all I can to try and figure out how to FIX this ... truth is , it is always gonna be a struggle for us i am sure. But trying to find out the triggers and the little fixes is what is really gonna work for us. I am glad I had a DR to sit down get close to me and act like she really cares how i felt and try to show me she cares,why does she care, Because she is "ONE OF US"  lol.... The best thing we Got really is each others Advice hold close to people who is going through the same thing you are. 

      It is so heartbreaking to say the least when you walk in so HOPEFUL to a dr to get a answer to just walk out humilated. And feeling like noone really Cares. But there is people who cares like me , the ones who are suffering just as much as you are. The hardest part is Accepting and believing ok this is acid and How do i approach it , For months I said Ok this isnt acid and i would just keep researching for what I do have. Because it is silent and we dont have any of the heartburns etc we just think no this isnt my stomach causing these Problems.... But truth is YES it is. We have to find out what the triggers are and what helps us. What helps other people may not be our fix.... 

       

    • Posted

      Gee_Mck is the meds have fixed it I would hate to Tamper with that ... But what I am thinking is it won't fix it the first time you have to much of what you shouldnt have. So I would be cautious if i was you , I would Watch my caffine intake and My red sauces because you do not want to get where most of us are and that is where the meds do not help. This is just my advice to you .... The Dr's will not be Your friend and tell you , lol , this is a lesson most of us have learned by experience
    • Posted

      I don't drink that much coffee, already said that. This only happened in past 18 months.  Haven't done or eaten anything different.  The 2 week break off the medication was a disaster.  Now I'm fine again but if something changes I will go back to my doctor.  As I said my symptoms are not obvious, just something related to a cold.  I have no phlegm.
    • Posted

      do you eat a lot of Fruits? Like Oranges or orange juice?
    • Posted

      I thought this might be helpful

      ere’s how silent reflux works: Ordinarily, your stomach makes enzymes that are activated by stomach acid to digest food. When one of those enzymes, called pepsin, travels out of the stomach as a result of your lying down or normal reflux, it can latch on to the throat and stay there. After that, any acid, from food going down or acid traveling up from your stomach, can activate those enzymes to eat away at the throat’s lining. Those enzymes cause your esophagus to swell, numbing the nerves that detect pain, so unlike “traditional” acid reflux, silent reflux doesn’t create the heartburn sensation in your lower chest to indicate the presence of acid.

      Making simple changes to your diet can allow you to get your silent reflux in check. Here is a three-step prevention plan to stop silent reflux before it starts.

      Step 1: Deacidify the Foods in Your Diet

      By eliminating foods that create acid in your stomach or have a high acid content as they pass through your throat, you’ll reduce the chance of those stomach enzymes irritating your throat. Cut out acid-causing foods like chocolate, deep-fried foods, mints, and even certain healthy foods like tomatoes and onions. Instead, replace them with alkaline foods that actually reduce the amount of acid your stomach creates, like green vegetables, bananas, almond milk, and oatmeal. In just two weeks, the majority of your reflux symptoms should be reduced significantly.

      Step 2: Eliminate the Four Cs

      Caffeine, citrus, carbonated beverages (including seltzer), and cocktails all stir up acid in the stomach. And if you’re wondering what’s so bad about seltzer, stomach acid can essentially latch onto the carbonation bubbles, traveling up to your throat like a hot air balloon to activate the damaging pepsin enzyme!

      Step 3: Send Canned and Processed Foods to the Trash

      Cancer of the esophagus is up 850% since the 1970s, much of which can be attributed to changes in the American diet. So much of what we eat today undergoes a chemical acidification process in order to be preserved in cans or packages with ingredients like citric acid and ascorbic acid. When we eat those foods, we expose our throats to those additional acids, which of course can then activate the enzymes that eat away at our esophageal lining. Avoid canned and processed foods as much as possible, opting instead for fresh, delicious organic or all-natural foods. Your taste buds, and your esophagus, will thank you!

    • Posted

      I do all that already not because of my symptoms but because there are certain foods I don't like and don't eat. After 40 odd years I wonder why now.
    • Posted

      Gee I see why you are frustrated, You are doing all the right things and you are Puzzled why you are dealing with this now...If you feel there is something else more going on Maybe you should make an appointment with your Dr and Ask for more test, Or do some research on what the causes could be.. I suspect you have not seen the worst of this and thats a good thing But The meds you are on do have sidde effects so I would try to get off them as soon as you can , Again this is my opinion However if they are helping I wouldn't do that right away .. They may repair and you may not have to go back on them ... One thing I would say to you , No coffee is the only way to go Cutting down or simply saying you do not drink that much doesnt cut it ... I think if you truly have Silent reflux coffee is not the way to go any form of it 
    • Posted

      Where do you get that from?  I am fine now my doctor advised I could double my dosage of tablets.  I take 2 every morning and am fine.
    • Posted

      Where did you find that? It doesn't seem to make sense for me. Mine came on after food poisoning and vomiting just didn't stop. My doctor said he thinks the enzymes got out of whack from that in my stomach. How would that relate to my issue? The pepsin test found none in my saliva test.

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