LPR/Silent Reflux - desperately in need of a miracle. Has anyone recovered from this?
Posted , 270 users are following.
Hi - I'll be as brief as possible. For almost a year I have had symptoms which have worsened, starting with throat clearing and progressing to regular spiting out of white, frothy stuff, post nasal drip, lump in throat or sharp sensation, streaming or blocked nose and hoarseness. These are all unpleasant and irritating but because I talk for a living my work is becoming badly affected so it is now making me depressed and anxious as well. I was referred to ENT, had the camera up the nose and down the throat to rule out anything sinister and was given Omeprazole and Gaviscon Advance. No advice, no explanation. I had to find it all out myself. (and I'm not confident/assertive with docs, either).
The drugs haven't helped, I'd go so far as to say the reflux significantly worsened. I had faith in the Gaviscon Advance having read how it works but that hasn't made any difference either. I have monitored everything I eat and drink and can't find anything that triggers it with the possible exception of bread, and I may be grasping at straws there. Certainly coffee, alcohol, spicy food etc don't trigger it and ginger, acidophillus, apple cider vinegar don't help. It does seem to be cyclical - I'll have a week or so of decreased symptoms then it gradally works up again to two or 3 weeks of hell. No heartburn, and the reflux is almost always upright, no problems sleeping...just the other 17 hours a day! The ENT was brusque on my return visit and said that, aside from speech therapy, there was nothing more he could do for me. This can't go on, though. At it's worst it makes me tearful and desperate at work and speech therapy isn't going to stop me spitting up into a whole toilet roll each day, or reduce the other symptoms. I'm also worried my teeth will rot and I fear for my job. Has anyone experienced this with the same pattern/lack of triggers etc? I would love to hear any positive experiences that don't just repeat the same old same old, ie, raise the bed 6 inches, dos and donts with food etc.
28 likes, 899 replies
s12464 Anxious_Alex
Posted
I'm having the LPR for sometimes. Really I was struggling to manage. I came throught literature that focused on the following directions to manage reflux consequences.
1. Adopting proper life style, for example the last meal is consumed at least two hours befor going to sleep. Raise you bed's head about 2 inches (7 cm).
2. Consume medication that prohibit too much acid production in the stomach OR Gaviscon to prevent the acid to rise to throught and neutralise the acid in the stomach. But it is widely known any pharnmacological intervention has side effec, unfortunately.
3. Consume alkaline diet and, reduce spicy and tomato based food.
4. Drink alkaline water.
LAST BUT MOST IMPORTANT there is strong scientific recomndation to strength Hiatus Hernia that regulates food pasage from oesophagus (the tube that carries food to the stomach) to stomach. hiatus Hernia can be trained and strengthened by strengthing the diaphagma (the huge shhet of muscle that separate the abdominal cavity from chest cavity) by breating exercise. The later is easy and one can do it when ever wants. It is called belly breathing exercise. You need move the diaphragma musclu when breathing (controlled breating) that mean your abdominal cavity should raise when you breathing in and falls when breathing out. This mean you chest cavity should not incorparated in this kind of controlled breathing excercise. Researtch concluding say that 8-week belly excercise fount to be the most beneficial and very promising approach to manage reflux.
Hope this help
penny07859 Anxious_Alex
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lurkspur74 penny07859
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Been on this for a year now and like you Penny. I'm worried about that same thing.
tata40402 penny07859
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peter44511 Anxious_Alex
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lurkspur74 Anxious_Alex
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I have stumbled on this thread a year ago, now still on a daily dose of 20mg raberprazole every morning. I'm wondering how is Alex doing right now?
tata40402 Anxious_Alex
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penny07859 Anxious_Alex
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It is just so wierd. and you want to know why me.
natashaloo Anxious_Alex
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I have recently been under loads of stress and grieving. I lost my baby at 27 weeks he was born sleeping :-( 27th January. So since then I have had a lump feeling in my throat started to get worse. ( every day )The past 2 weeks or so this feeling as moved onto my chest In between my boobs . Feels like I got food stuck And it travels up and down . I don't get burning but just feels really uncomfortable. I also have symptoms tingling tongue /roof of my mouth/feels like my throat glands are swollen but they not. Really uncomfortable. sometimes I'll get a metal taste is my mouth . Taste abit like blood . My doctor first said I had globus sensation when I just had the lump in my throat ........ From suffering from bad health anxiety and depression I just got told to get a life from a nurse . By the way this is after 3 weeks of losing my baby boy !!!!! Absolutely disgusting How I've been treated. So I seen another doctor last week she said it could be acid reflux and referred me to ENT and gave me tablets. I have this feeling all day every day. Not had a break and could really do with my body going back to normal . Really struggling with this as I think I have some serious illness ( like cancer ovs that's the anxiety side ) but can't help but feel that way , want my baby too xxx so please can someone help me on what to do if it is or sounds like reflux to you xx many thanks
tata40402 natashaloo
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natashaloo tata40402
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tata40402 natashaloo
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jenise79581 Anxious_Alex
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AlexNYC04 Anxious_Alex
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Past two years I have been suffering from the constant throt clearing, post nasal drip, thick white/clear mucus with literal tensile strength. It was relentless and I couldn't even explain to these doctors (At least 8) the amount of anxiety and panic I received from this constant affliction. Its literally exhausting.
Let me say I am not cured but have recently been researching underlying causes of our symptoms. Yes, the result may present as LPR but untl you attack the root cause we will never be rid of this affliction. Two words : Candida Albicans. No doubt in my mind that is the primary cause of our symptoms. Almost always someone was sick / put on broad spectrum antibiotics for sinus infection or something. Anything to disturb the balance of the delicate ecosystem inside us gives the opportunistic candida its chance to colonize. Other contributors can be long time steroidal use for asthma (for me I abused Afrin for two years). When we cease these treatments / clear our body of both the good and bad bacteria its left vulnerable to candida.
Heres the big problem : CANDIDA is a smart b*stard. Although, its practically unrecognized in the medical realm candida can actually evolve in order to continue thriving. Has this entity ever seemed to change its M.O. after a brief recess w a misguided treatment?
Moreover when we let this beast grow and grow inside us undiagnosed even strengthened by antibotic treatment...it can spread from the sinuses to the esophagus or vice versa. When we refer to mucus, I think its a misnomer. Google BIOFILMS. It was a revelation. The candida once strong enough begins to build a strong protective layer of slime comprised of nutrients our body needs and also other bacterial pathogens. It also protects the candida from anti fungal treatment. So there are many methods to breaking down the biofilm and only then can you attack the colonization at its source. I'm in the process of some enzyme supplements that can aid in this. Hardest part is we cant FEED the beast. Sugars, Carbs, its its life source. Thats why certain foods seem to get "stuck in your throat". This is extremely hard to stick to but obvi gluten free items are on the uptick. Sugar is omnipresent and yeasts best friend tho and thats why we seem to crave it so much. I'm currently in the early stages of breaking down the biofilm with enzymes and other supplements and then hope an anti fungal will work along with diet
Finally, after many years of unsuccesfully trying to clear this "mucus" from my sinuses and throat with NetiPots and all that crap I realized something. Our sinuses arent the problem. Again they merely present symptoms as such because it has to go somewhere. I became obsessed. My nose could seemingly be clear but turn the wrong way and its there again. Where was it hiding in my god damn face? The answer IMO was another unacknowledged aspect by doctors : THE NASOPHARYNX. (see pic) To me it seems sinus cleansing methods only get the tip of the iceberg and dont do well in clearing this forgotten pocket. Let me tell you when I used my common sense to try and get to it by this method : Putting saline mixture in my mouth then with tongue arched tilt your head downward and push your tongue along the roof of your mouth until the fluid reaches the designated area. Its basically like laughing and milk comes out your nose. What comes out of ur nose will startle you. Waterfalls. Now this actually freaked me out because if the intense volume of biofilm/mucus but i could literally feel it coming along the back of your throat. You may even pseudo-burp - if anyone knows that feeling when their vocal cord esophageal area is temporaily cleared. This hasnt helped me stop the rapid re growth of the stuff but for those days when seemingly no cleanse can reach the area this will work in loosening the crap. Can also be reached by tilting head almost downward tucking it towards your stomach spraying saline while inhaling. It is not a cure. I am not cured but I'll be damned it if didnt give me some relief knowing I could get to it and bust it up anytime I wanted. The anxiety comes when its back the next day but I'm working in that. Keep ur heads up - literally - ever feel like when you bend down to pick something up the mucus comes rushing out. It makes sense considering our anatomy. Hope this helps.
tata40402 AlexNYC04
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Purdie01 AlexNYC04
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I have now decided to try the candida diet as whilst my reflux has improved, I have been suffering with severe chronic pain in all my joints for the last 3 months which my GP just gives me tramadol for and it hardly takes the edge off. I have been referred to rheumatology but still waiting on an appointment. It is seriously affecting my life, I am struggling at work and due to the pain and don't want to be hooked on pain meds but cannot afford to give up work. I suspect my reflux and chronic pain are linked, blood tests for arthritis have come back negative but I have heard of many joint problems including hypermobility syndrome which can cause reflux issues. I am hoping that following the candida diet will improve my pain levels and give me some kind of life back. I will keep you posted!
moonbuggy AlexNYC04
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Thank you so much. I did read somewhere on another forum about someone being completely cured after taking high dose probiotics.
This is such a nightmare - I am nearly at the 3 year mark, had the nissen and feel 10 times worse. Struggle to do anything most days. Seen dozens of doctors/consultants (none of which seem to have a damn clue. Its almost like you've had the op so you must be ok now).
I remember just before this started I took a course of antibiotics (for what I thought was a sinus infection). I had not had this type before and I remember having chronic stomach pain while I was taking them.
I have also been suffering from really smelly flatulence (sorry . This could all make sense. Bit like a blocked sink. Once you get rid of the blockage everything runs away OK.
AlexNYC04 moonbuggy
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Amazing how the common denominator amongst almost all of us was antibiotics probably when we didnt need them. At a certain point I think our internal balance of good flora becomes critically compromised and without replenishment opportunistic pathogens take over. That said I think probiotics are a good idea regardless. Although many are inferior. Always get the ones kept refrigerated. Anything on a shelf is freeze dried and these are supposed to be live cultures. They helped me but once again did not rid me of this daily struggle.
AlexNYC04 tata40402
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Purdie01 AlexNYC04
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AlexNYC04 Purdie01
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PS - Tramadol is absolute garbage. Having too much... experience in the opiate world I can tell you it trips some weird sensors in your brain. Its known to cause seizures and it doesnt relieve pain whatsoever. If you are truly in pain there is no shame in getting thru the day with lower grade meds like Codeine or Vicodin. If you arent abusing it you can ween off at any time without much withdrawal to fear.
moonbuggy AlexNYC04
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I just got some 30 billion/capsule. They were quite expensive (£18 for a months supply). They have 6 different strains in them. Incidentally I did the candida test the other morning and if the test is accurate (which it is supposed to be) I have loads of candida. This may tie in with the gas.
My biggest issue is breathing which seems to be a throat issue. I know this condition can cause problems with your vocal cords etc. I'm getting to the point I shall be off to A & E soon. Unfortunately as the so called experts don;t know what to do - I'm not sure that a visit to hospital would do any good
dolphin005 moonbuggy
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Purdie01 AlexNYC04
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Purdie01 moonbuggy
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moonbuggy
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My reflux always seems to be in my throat (albeit non acidic). It's not acid type reflux. I had the pepsin test done a while back and my levels were off the scale. The company who did the test said my problem is non acid reflux. My sypmtoms almost feel like my throat is closing. It's like I'm breathing in but not getting air past my throat. My voice is croaky too. The ENT people scoped my throat a few months ago and said it was red (like I didn't already know that). I know it can cause things like vocal cord dysfunction/vocal cord paralysis.
Purdie01 moonbuggy
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AlexNYC04 moonbuggy
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moonbuggy AlexNYC04
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I think you have made a good point. I feel like screaming - why the hell doesn't anybody know what is wrong with us.
Mine started with blocked ears, stuffy nose and throat clearing. My respiratory system feels like its full of cotton wool. I've been round to ENT, GI back to ENT. On Omeprazole /off omeprazole - round and round. I did get diagnosed with reflux eventually. After making my GI surgeons life hell - he did the nissen which turned out to be a big mistake. After seeing other docs they now reckon that it wasn't reflux in the first place or the op would have worked to some degree- great!!
I've been asking for food testing (been refused) asked for tests to see if I had some bacterial overgrowth (refused). I dont even think I will follow up on any more hospital visits.
After your last post I filled in an online form to see if you have candida. My score was off the scale. I have said all along that it is something silly that everyone is overlooking. This would explain why all our tests seem to come back negative - then of course we get fobbed off with a paracetamol or a script for diazepam!!!! I try and look at things logically. I did mention in an earlier post I used the example of a blocked sink. Until the blockage is removed everything will back up the system. Having said that I agree with you. I'm not sure whether the thick goo is coming up or going down. I just want to feel healthy again not like I'm dying slowly
moonbuggy AlexNYC04
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Just spent 20mins typing and my reply is waiting to be checked
In a nutshell - I agree with you (not sure if it is coming up or down). I've been going round and round for 3 years GI/ENT/GI and still struggling. All started with blocked nose/ears and thick stuff in throat. It has to be something stupid. Definately going to persue the candida
debra27175 phil16820
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moonbuggy phil16820
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This forum is for people to help each other - so not sure why you have posted. As Debra says - everyone is different
Purdie01 phil16820
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Purdie01 moonbuggy
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Emis_Moderator Purdie01
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There is a fake “test for Candida” circulating in the internet called the spit test. Supposedly, first thing in the morning, you are to spit into a glass of water. If after several minutes there are stringy tendrils going down into the water, then you supposedly have a yeast infection. The truth is that if your mucus is thick, it will form these tendrils; it has nothing to do with yeast – and your mucus will be thicker if you are dehydrated with a dry mouth (as most people are first thing in the morning.
AlexNYC04 Purdie01
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Emis_Moderator AlexNYC04
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Regards,
Alan
sonya60950 Purdie01
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Same here with joint pain. In fact, It might be caused by your gluten intolerance. One of my friends could improve his joint pain and muscular tension when he got tested and started a gluten free diet...
Purdie01 sonya60950
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I'm completely gluten free now as my boyfriend is gluten intolerant. It has helped but I'm finding that cutting out sugar is more effective so I'm thinking it may be more related to candida albicans as if I go out for a meal and eat something that could potentially have sugar in in, my symptoms worsen. It's a very restrictive diet with no gluten or sugar but I'm hoping to do it for a few months to get my pain and reflux under control then allow myself treats on holidays etc and detox when I get back because otherwise it's not much of a life socially.