LPR/Silent Reflux - desperately in need of a miracle. Has anyone recovered from this?
Posted , 270 users are following.
Hi - I'll be as brief as possible. For almost a year I have had symptoms which have worsened, starting with throat clearing and progressing to regular spiting out of white, frothy stuff, post nasal drip, lump in throat or sharp sensation, streaming or blocked nose and hoarseness. These are all unpleasant and irritating but because I talk for a living my work is becoming badly affected so it is now making me depressed and anxious as well. I was referred to ENT, had the camera up the nose and down the throat to rule out anything sinister and was given Omeprazole and Gaviscon Advance. No advice, no explanation. I had to find it all out myself. (and I'm not confident/assertive with docs, either).
The drugs haven't helped, I'd go so far as to say the reflux significantly worsened. I had faith in the Gaviscon Advance having read how it works but that hasn't made any difference either. I have monitored everything I eat and drink and can't find anything that triggers it with the possible exception of bread, and I may be grasping at straws there. Certainly coffee, alcohol, spicy food etc don't trigger it and ginger, acidophillus, apple cider vinegar don't help. It does seem to be cyclical - I'll have a week or so of decreased symptoms then it gradally works up again to two or 3 weeks of hell. No heartburn, and the reflux is almost always upright, no problems sleeping...just the other 17 hours a day! The ENT was brusque on my return visit and said that, aside from speech therapy, there was nothing more he could do for me. This can't go on, though. At it's worst it makes me tearful and desperate at work and speech therapy isn't going to stop me spitting up into a whole toilet roll each day, or reduce the other symptoms. I'm also worried my teeth will rot and I fear for my job. Has anyone experienced this with the same pattern/lack of triggers etc? I would love to hear any positive experiences that don't just repeat the same old same old, ie, raise the bed 6 inches, dos and donts with food etc.
28 likes, 899 replies
robodelfy Anxious_Alex
Posted
Thanks for your input. I have suffered from high anxiety since being a child. The last 10 years Ive tried so many different therapies, bodywork, anti depressants, self medicating, meditation retreats, yoga, ayahuasca!
Many things have helped, but it seems even when I am feeling at by best, there is still a fair bit of discomfort, mainly lump in the throat and the tightness in the diaphragm.
The last few days I had a hideous bout of globus, really felt I coudlnt breathe at times, and wake up dry mouth and throat kind of stuck together. It was horrible, and my anxiety was very high. This is also when I found out about LPR, having thought the main cause of my globus was anxiety. It was interesting to think it may be silent reflux.
So yesterday, after little sleep and a hideous night, my throat was a mess. I went for a 2 hour deep massage. She worked on my neck and shoulders probably for over an hour. It was painful! Afterwards I was a different person, and the throat pain had gone from 80% to 10%, and stayed that way until now, as I slept well last night.
So is it still possible this could be LPR? If I can get that much relief from a massage, surely it means its muscular?
Does anyone know what the feeling of globus is when its related to LPR, because I cant find out, is it irritated nerve endings, swelling, psychological?
Anyway, its good to know relief can be had, but I cant exacty have a 2 hour massage every day! I live in a mindful community in Thailand, its very supportive, we meditate and do yoga every day, work much less than back home, so IM in a good enviroment, but still the symptoms always return.
Thanks again for everything guys.
Alex
shelley30084 robodelfy
Posted
I have LPR and globus and i feel that if i could understand better whats going on it would help.
Like you i wonder what i'm feeling, is it that the muscles are bunched or mucous, although the ent man said the throat doesnt produce mucous itself.
Hope someone can answer your question
robodelfy shelley30084
Posted
Yeah it just feels so much like my muscles are contracted, but I cant seem to find the info anywhere as to whats going on when you have globus from LPR.
Its easy to despair sometimes!!
Thanks
rachel49971 Anxious_Alex
Posted
robodelfy Anxious_Alex
Posted
I wake up and feel like the root of my tongue is pressed against the roof of my mouth, and its tense, closing up my airway, and I have a dry mouth. I can just about consciously relax it enough to bring it off the roof of my mouth. It makes a small suction releasing sound. But within seconds it seems to default back to that state.
It bring me back to my question that wasnt answered before...
I can aggravate my symptoms by talking too much, or singing, which results in hoarseness, a raw and sore throat and globus sensation. Then it normally stops me sleeping because I cant relax with all that going on, and the viscious cycle begins again.
So when Ive aggravated my throat from singing etc, are the muscles tight and contracted, or is there inflammation, or is it just all in my mind!! Its driving me crazy
Wishing you all well, and some relief
janet136 robodelfy
Posted
any ideas out here ?
gwen45436 janet136
Posted
Ii also keep drinking warm water all day long (not a full glass at a time though) sipping it really help weaken the acid.
Hope this helps someone - it has me.
Gwen
janet136 gwen45436
Posted
peter361 gwen45436
Posted
help_jacqui robodelfy
Posted
arnold98268 Anxious_Alex
Posted
gwen45436 arnold98268
Posted
G.
help_jacqui Anxious_Alex
Posted
HI!
I have exerything you said + a 100.2 fever most of the time! Everything I have tried doesn't work either. The ENT did the same thing for me, yet put me on Augmentin 875 and Pantoprazol 40mg that is apparently a very strong PPI. I took that I can't remember 1 time or 2 times, and I swear I thought I was going to die at night time when I was in bed. I had no problems at night time sleeping at all. NONE! Up until I took the PPI or the Augmentin. I walked into the ENT and told them that and he said to stop the PPI and to keep taking the Augmentin. Well, if there was nothing wrong then why the pills? Why the fever, (which I still have) And now a sore throat. And body pains too. And an earache by night time? Although I have also tried things for the post nasal drip which I believe is not helping. I have tried, antihistimines, all kinds of acid reflux pills, sinus congestion pills, the med that is supposed to make mucas thinner to spit up. Because I couldn't spit anything up and had trouble swallowing it all as well. I also have a nose spray that I had to use before for awhile and am trying that, but that takes about a week or so of constant use 1 time a day for it to start working. There was one thing I was reading a persons comment on this globus sensation about honey at night time. So at night before bed, I take 100% natural bee honey, 1 tbs and that calms the feeling down, but anything else doesn't help. The feeling is always there and won't go away. I also noticed that when I eat the feeling comes back worse. I ate a whole chopped up apple last night because I didn't want something fattening and I got to the last stupid piece with not much trouble at all and bang, something stuck there again. Water, especially ice water makes the feeling of somthing stuck back there worse. I am so lost and don't know what to do. Plus, I moved to a new state and left the best doctors for really crappy ones that don't care. I am also very depressed and an anxious person as it is and this isn't helping at all. I dont want to exercise anymore or for that matter do anything. I'm sorry for the blabbering, but at least you know someone out here is having the same problems. Jacqui
noel42191 help_jacqui
Posted
I had the exact same stuff happen to me... especially thr ppi making it worse. The only thing that had worked for me is xanax so i think its all down to anxiety. And I've notice all the ppis and lesser strength medications never work for most people on these sites.
Try get prescribed xanax because it will make u relax and stop thinking about it which is the worst part for me.
help_jacqui noel42191
Posted
Hi Noel!
Actually I have xanax, I am prescribed .5mg 2x a day, but I dont take it in the day, cause it makes me think that if I have to go somewhere I will not be able to go. Even though .5mg is nothing to me. Actually for about 6 years now maybe I have been on 2mg a night every night. I also have other anxiety meds as well. I have had an extreme findings lately. First, and the cause of a ton of things to me, is I have mold, all kinds of mold in my complete a/c unit, all 6 vents, the blower, the duct work and anything to do with a/c and heat. So, I have been using our a/c since April and about the beginning of July is when I started to feel yucky and all this crap with my throat. I got pneomia in August and was hospitalized for 3 days because it was so bad. When I got out and prior to that, a few weeks or so, I kept noticing there were like pieces of dust on our bathroom floor and counter sometimes. So I just swept them up. Then one day in September 1st or 2nd week I think, a big dime size was on the counter. It was mold, I knew it was, long story, but I knew. Anyway, I told the complex and they sent the maitenence manager out, he said no its not mold, I know cause I just took a course and its not. He sprayed some stuff up there and left. Well, IM no dummy and I got a few pieces of the insulation and had it lab tested and it was. Needless to say when I told the complex and showed them the reports, they wanted me to sign a health release. (I did NOT) I got a lawyer (who sucks), but anyway, they were forcing me to sign the paper, we now live in a hotel up a few miles from there and our stuff is still there. Also, the day before we moved out, guess what? Pneomia again, however this time I caught it in time to not go to the hospital. Never knew I had it the first time. Thought it was from the anesthia from the EGD that I had that same morning. I am waiting on insurance adjuster to tell me if it is covered or not. Hopefully tomorrow I will get a good answer from him. I am stressed now big time over this wait. Anyway, I have to have botox put into my splinkter to relieve pressure, because that is not relaxing at all. I had 2 barrium swallows, 3 catscans now, an xray, an ultrasound, 2 scopes up my nose and down my throat, so much blood and then 2 other tests. The GI Dr gave me I think its pepsid 40mg, not over the counter strength, and said that when they did the egd I have gastritius and a delay in swallowing somewhere I can't remember. eg or ej junction? I also had two other tests, 1 where they make you eat food while they xray you, kind of like the barrium swallows without a tablet, but with food. And the Other I did not like at all, they squirt some gel up your nose and its supposed to go down your throat to make it go numb, it didn't and they stuck the camera up my nose and down my throat and its a pressure thing too? Begins with a M, anyway, I threw up, so they took it out and did it again. That time I suffered through it. Whew. But, anyway, yes xanax works, but at night its usually 1mg when I know I am not going anywhere and then a few hours later 2mg with my other meds. Yeah, you know stress is really bad for it as well. And then you get to thinking but I think alot of times I know its there and just so used to it. Also, I am allegic to molds and some other crap. I had an allergy test that was #1, but I need to have another one to follow up and I can't do it right now. I can't believe someone else here found the PPI made it worse. That makes me feel more normal in a way.. Well, thats a long enough story for you now lol. Ill be around.