1. Community
  2. Women's health
  3. Lichen Sclerosus

Ls

Posted , 5 users are following.

Pammy1111
Pammy1111

Hi

I am 51 years old from the uk and have had Ls for about 15 years or more, my Ls was diagnosed with biopsy 4 years ago. I use dermovate twice weekly and moreso obviously with flares. I find that my skin down there is always red although I do have the white patches that never go away. I have atrophy to my inner labia and clitoris and thickening around the vaginal entrance aswell as a thinning of skin at the bottom of my vaginal entrance to the perrnium area. My anus is also covered in white and red patches.

I have recently had laser uteroscopy for a kidney stone and will need another one in a few weeks time. This op was done via my uretha. Since then I have had a massive flare and cannot really get it under control furthermore I am facing another uteroscopy and dreading the after effects. It is very uncomfortable as I have a urethral stent. I was wondering if any of you have had this procedure and if it affected your LS ?

1 like, 6 replies

6 Replies

  • nannylin
    nannylin Pammy1111

    Posted

    Hi pammy not had the same as you but 4 weeks ago I had a bladder and bowel prolapse repair which was done vaginally. Since then apart from the discomfort ofvthecstiches my LS and LP has been much worse. It seems that any surgical interference puts the condition into flare mode. I don't envy you having to have the procedure again hope it's better this time. Not sure my procedure has worked either as I still feel odd down below but have really forgotten what normal feels like !!
  • kathleen65757
    kathleen65757 Pammy1111

    Posted

    Hi Pammy! Sounds like you have been through a lot. I can relate to much of what you are saying. Mine is similar to yours except for the procedures for kidney stones. Was the urethral stent anything to do with the LS? I worry that I will not be able to pee because of atrophy. 
  • yvonne19574
    yvonne19574 Pammy1111

    Posted

    Hi Pammy,

    I haven't had the procedure but Im so sorry your having so much trouble and pain.Has your go recommended anything to ease the pain for you?

    Especially if your having another procedure I think you need their advice ASAP .I hope you receive help soon.Good Luck Yvonne.

  • pat37486
    pat37486 Pammy1111

    Posted

    Hi pammy I am using dermovate but not sure how much I should use.dr said walnut size pharmacy said very little. please can you help.
    • kathleen65757
      kathleen65757 pat37486

      Posted

      Follow you specialist. He/ she knows the area to be covered. Chemist has not seen your LS. If you do not cover all the bits of LS it is not controlled. Use a mirror if possible and check you have put the cream everywhere needed. I use Advantan fatty ointment and I would rather use too much than not enough. It is less potent than yours though! I would use every bit the walnut size.
Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.