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I am absolutely pulling my hair out. This LS is doing me in. Seriously thinking about sleeping when I can during the day and living as best I can during the night's. I'm 61 and my life is ruined. Does anyone else cry all day.
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OH gosh, Aitch4, so sorry it's gotten to that point for you.
NO, NO Your life is not ruined. We can and DO reverse this disease. It is an autoimmune disease. Read up on everything about the autoimmune diet protocol. NO sugar, alcohol. Also on Leaky Gut Syndrome, and candida symptoms and diet.
For the topical pain relief, most of us are using one of several oils: castor oil, coconut oil and olive oil. Get some and slather it all over you and inside your vagina as well ( I rotate all three).
For backing out of this disease, two parts:
1. parasite and environmental toxins clean up
2. the nutritional deficiencies have to be resolved.
VITAMIN D3 with its cofactors:
those above are absolute base line. ALSO consider Selenium, MSM, VItamin B Complex, Vitamin C
Be well, discover renewed health dear Aitch.
Hi Aitch, I am just going to list for you in order of 'importance' tips for LS.
Sugar is the biggest problem for people with LS, and I would wager that is why you are suffering so much. It is not just a case of stopping the chocolate, donunuts with coffee etc, it is watching what you eat as a whole every day. My advice would be to tackle this like a military operation .. Cut out all sugars for a month..this will give your body time to re balance itself. Then, once you are on top of it you can slowly introduce treats..In no time at all you will notice the difference.
If you find the above suggestion brings no relief whatsover, you then must try going gluten free. For many women this is the one single thing that they have done which brings relief...but only do this if the above suggestion does not work.
Try to eat less dairy. I eat butter and yogurt, but thats it!! I LOVE Oat milk, rice and quinoa milk, soy milk. I dont think a lot of dairy is good for us.
Use a small bottle spray, (the sort hairdressers use) and fill it with water and a pinch of salt or a pinch of bicarbonate of soda. After every bathroom visit spray your Vjay. This eleminates any chance of irritation.
Buy some Desitin cream, the stuff used for babies and put a tiny bit of that on your 'paper cuts' The cuts that you are experiencing are because you are flaring.
Use the steriod cream if you get white plaques of skin appearing or if you have trouble with your clitoris..those are the only times I have used the steriod cream as the desitin works..in any case the reason you are flaring is through your diet and once you get on top of that you will get relief.
Before bed and during the day if necessary you can use a little olive oil/castor oil/emu oil/coconut oil which keeps things lubricated.
At the moment you are in crisis. But once you get on top of this you will feel much better.
Keep us all posted...
You are an angel!!! I will keep you updated on the no sugar diet. I can't tell you how much of a help you are being to me.
Hi I really feel for you poor thing. I have had LS for 26 years and what I have learned over that time is that I find that diet does help my LS. I am on a low carb, no sugar called a ketogenic diet also have reduced my alcohol intake to two glasses of wine at the weekend. At the moment I am in remission. I have also made a borax cream which helps with my LS There is a facebook page that deals with LS healing through borax. hope this helps and that you find relief soon. But in my opinion diet is the way to go.
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You're probably right. I started a new diet 2 days ago so fingers crossed. I'm also suffering from severe shaking and crying when the pain is really bad. Thank you for responding. Hugely appreciated.
Oh sweetheart please don’t be downhearted We all know how dreadful this sneaky ugly 👹painful condition is but with the right management it can be tamed.
You are 61 and in a lot of discomfort. Your grandchildren will not remember you lost it for a minute. They will only know how much you love them ?? Let it go and concentrate on your total self 🙏🏻
It seems to me you have been left on your own to cope Aitch Well not any more Everyone will try help
Don’t mean to make it sound like 20 ?? s but how long you had
L👹S ? Did you have biopsy ?
When are you seeing consultant ?
I noticed you said you know about food and drink. Does that mean you have taken (as far as possible) sugar dairy n red meat out of your diet ? All of which are heat producing foods which LS thrives on ?
Big hug 🤗
Thank you for taking the time to write to me. I've had it for 4 weeks now. Yes I've stopped eating red meat sugar and dairy. I'm waiting to see a specialist at the hospital but also another specialist for the pyles too. Its making me so depressed probably due to lack of sleep. Thank you again.
Hope this helps.
Its perfectly understandable that you don't feel like intimate contact with your partner. I've been married for almost 40 years and find that my husband has really no understanding at all of this condition and I find it really difficult to explain how I feel so its great to hear that other people have similar problems.
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