LS and PRP/Stem cell treatment and laser surgery
Posted , 6 users are following.
Hi,
today invisited my my dermatologist in the Middle East. They offered me a combination of therapies which they say they have had great results when you do the two of them together,m
First is differential laser surgery followed on the same day by PRP (platelet replacement/stem cell therapy).
has anyone had either of these two or both together and had any results?
the doctor says they have had good results with the laser only but much better with both combined.
your advice is appreciated,
Samantha
0 likes, 17 replies
samantha1970
Posted
sara61637 samantha1970
Posted
It all makes sense, doesnt it? To improve the skin.
I have those treatments in my "back pocket" but right now dont feel it's necessary. I'm pretty stable.
Read about monalisa touch if you havent already. It's non invasive, takes 5 minutes.
samantha1970 sara61637
Posted
virginia45494 samantha1970
Posted
Ive had one treatment of PRP and i'm thinking of having a second treatment in October. I didnt do the laser treatment.
I'm happy to give you a detailed view of what PRP involves. My LS has been around for about 12 years and I've had continual discomfort and also structural changes. I would say the first treatment of PRP improved skin elasticity and reduced inflamation/itching. I would say it has improved 30%. My specialist says that I may need up to 3 treatments.
If you have LS that is chronic or well progressed then PRP is definately worth considering.
Cheers
Virginia
samantha1970 virginia45494
Posted
thanks, yes please I'd really appreciate your experience on how it works. I only have a brief info from the doctor and what I read on the Internet. But first hand experience is always more valuable.
my LS is chronic, I itch every 2-3 days so I'm always using the steroid, Betnovate. As I also have HPV high risk I was thinking to do this now as I'm at a greater risk using steroids for developing vulvar cancer.
i look forward to hearing from you.
many thanks, Samantha
virginia45494 samantha1970
Posted
If anyone else is interested in PRP, let me know.
Virginia
samantha1970 virginia45494
Posted
Sorry having email problems. Many thanks and I'll check now
Xx
Horselady samantha1970
Posted
samantha1970 Horselady
Posted
i dont one think it's a cure, although I do think it helps rejuvenate the skin for a year or so (after 3 treatments I'm told). For me, anything which helps as I have shrinkage and also the HPV virus (which is I'm advised activated by the steroid use) so anything which holds off LS symptoms is good for me.
So I think it's a medium term solution for me.
take care,
Samantha
virginia45494 samantha1970
Posted
My specialist sees women with LS from all over the world for Plasma Rich Platelet treatment. I've only had one treatment thus far, but I may need 3 treatments. It is low risk as the specialist uses your own blood product to create a super rich healing plasma treatment which is then mixed with your own fat from a small liposuction treatment. This stem cell treatment is then injected into the LS site under anaesthetic.
The specialist has had good response rates and his first patient has returned for a "top up" treatment after 7 years. So I would say it helps to put it into remission and provide some skin repair and improved elasticity.
I'm happy to answer any questions.
Horselady virginia45494
Posted
virginia45494 Horselady
Posted
Having lived with LS for 12 years, a few things I would suggest about horse riding (not that I ride, but if I did) ...
*Avoid stress and review your diet.
*There is research that connects poor gut health to auto-immune, so supplements like pro-biotics can help with overall health.
* Keep the area moisturised ... I'm using coconut oil
* Avoid soap - even be careful of your shampoos that then wash over your body - use products that suit dermatitis etc
* Use "nappy cream" ... baby diaper cream? ... with zinc ... the think white stuff when you are flared up and sore. This will help to sooth and heal.
* When you arent riding, wear skirts and dresses, think air flow, cotton etc
* When you are riding, investigate what pants you are wearing - see if you can find pants that dont have heavy seams through the gusset? I wear jeans occasionally, but I also have pants with light seams in the gusset. I would use the nappy cream to sooth and protect the area while riding and maybe even a sanitary pad to add cushioning?? I would also have a soothing bath after while you are getting things after control.
I'm not sure how bad you are, but I would avoid riding when things are really inflamed. Hopefully when you get your treatment plan and lifestyle options sorted you will find things settle and you can use some of these techniques to allow you to ride. It might take some time to work out what works for you, but I would not make any decisions about your horses just now - you have so many things to work on!!
Having lived with this for 12 years I have had good times and bad. Normally that period after diagnosis is one of the worst as you are dealing with the emotional reaction, plus you are highly symptomatic.
I have trouble believing LS was caused by riding, but I understand it may exacerbate it. If I was you I would work toward understanding this disorder and what works for you. Take time.
All the best!
Virginia
Emis Moderator comment: I have removed the link(s) directing to site(s) unsuitable for inclusion in the forums. If users want this information please use the Private Message service to request the details.
http://patient.uservoice.com/knowledgebase/articles/398316-adding-links-to-posts
http://patient.uservoice.com/knowledgebase/articles/398331-private-messages
claire12259 virginia45494
Posted
Can you tell us the name of the UK doctor please?
Thankyou!
virginia45494 claire12259
Posted
virginia45494
Posted
Horselady virginia45494
Posted
virginia45494 Horselady
Posted