LS and Sjogrens - anyone ?
Posted , 5 users are following.
out of the blue about a month ago i got a crazy dry mouth- like cotton balls and chalk stuck in my mouth- same ever since- its unbearable. with this came severe dry eye. then i realized i've had dry eyes for about 6 months. now thinking about my LS, my skin down there has been super dry as well as inside- this now feels like its making my LS worse, likewise my LS continues to act up. i believe Sjogrens and Ls are both auto immune! im being tested now with opthamologist, rheumatologist and dental specialist to see if this is now what i have. DOES ANYONE ELSE HERE HAVE BOTH LICHEN SCLEROSIS AND SJÖGRENS?
0 likes, 10 replies
jane08222 lynn_78641
Posted
Not that combo, but same symptoms. Being tested for fibromyalgia....life just seems to get out of control sometimes...
lynn_78641 jane08222
Posted
it seems to be quite common that when someone has one auto immune condition they are prone to others 😦
jane08222 lynn_78641
Posted
Not that combo, but same symptoms. Being tested for fibromyalgia....life just seems to get out of control sometimes...
lynn_78641 jane08222
Posted
yep jane totally agree
sue162 lynn_78641
Posted
Its good you are being tested. I had tongue thrush five weeks ago and used Nystan from the dr I also worried about this as well, dont have the eyes thing though. I have Raynauds though
paula63519 lynn_78641
Posted
Hi Lynn
I have Blepharitis and dry eye which my optician said would be connected to the LS both being autoimmune, I was also diagnosed with fibromyalgia in 2016.
I do suffer a lot of dryness with LS too.
Hope you get diagnosis and help soon.
lynn_78641 paula63519
Posted
thank you paula for your kind words. what were the symptoms of fibro for you? i wonder if there is a connection between blepharitis and sjogrens
Angmo1977 lynn_78641
Posted
Hi, I'm pursuing the possibility of sjogren's too. I've had severe dry eye, bone dry, like cannot cry anymore dry. I sporadically have cotton mouth. I have overall feeling of dryness like can't hydrate or moisturize enough. My mom also has LS and has other issues that point to potential for sjogren's. Just need a doctor who will help connect the dots for us. It was hard enough just getting the LS diagnosis.
lynn_78641 Angmo1977
Posted
angmo im sorry to hear that - im not sure if i have tears anymore either 😦 where are you located? for sjogrens it takes a while to get diagnosed because you need to see an opthomologist - a rheumatologist and a dentist - cotton ball mouth and the overall feeling of dryness may very well be sjogrens - the cotton ball mouth is all to familiar
Angmo1977 lynn_78641
Posted
Originally from east coast, now in Ontario, Canada. It
s been a long tough road trying to get help and get doctors to connect the dots. Im following the sjogrens support group on facebook. My dentist says im not dry enough and no tooth decay so....and then my ophthalmologist prescribed cyclosporine eye drops which is an immuno-modulator (anti-rejection drug) so my eyes are definitely being attacked as well. What i really need is to have a sit down with a rhumatologist. But i think they are sending me to hematology first...