LS and stress

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I've had LS for 5 years. It started with an extremely situaton occurred. The gyn at the time said I had shingles and LS at the same time. Lived with ice packs down there. Just found this site. I've noticed everyone talks about itching. I've never had that but I do suffer from intense burning during a flare. Now the gyn says I have recurring yeast infections caused possibly by the clobetsol. Now I'm afraid to use the oils everyone talks about. I had complete labia fusion two years ago that required major surgery. I looking at having another soon even with using clobetsol. I wish we had more doctors here that understand this.

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13 Replies

  • Posted

    Hi, I want to hug you right now. Sorry you are going thru this. I too have burning and can get very red patches and bruising. I am new to all of this so I can not offer advise however I am sure someone will have words of wisdom for you. Hang in there. I agree we need a doctors to better understand. My obgyn told me it's no big deal and that we can get to a manageable stage and go from there. I am not sure what to do or think especially after reading posts like yours.

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    • Posted

      It's been nearly impossible to find a doctor who knows LS. My present gyn knows of it and only clobetsol will help. It hasn't thinned the shin like they warn but thickened it. I have to use a 1 inch dialator everyday in attempt to prevent the labia from fusing again. Thanks for the hugs. This site let's me know I'm not alone. Just wish it would affect more men so they would increase research.
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  • Posted

    Hi when I found out I had LS my dermatologist gave me the impression that it could be cleared, and told me the clob would do the trick, but after a while I realised that wasn't true, with researching and finding this site. I was quite surprised that he said that as he seemed to know what he was talking about, but I guess this condition is kind of hard to understand. I had itching and burning, but I started using dermol 500 to wash with in the shower, and coconut oil as like a moisturiser, and now I don't have burning anymore, still have slight itching. Don't take my word on this but I don't think the oils would do any harm, but if you're worried maybe try and get the yeast infections under control, you could try and cut down on sugar. I hope things will improve for you, you came to the right place for advice and support 
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  • Posted

    My personal experience/ opinion is you prob would find oils soothing. I would hate to be without. I use oil almost every bathroom visit and after showers. I felt coconut oil didn't agree with me (much to my disappointment) as well but many women have great success with it. I love extra virgin cold pressed olive oil. I'm imclined to think you would find some relief using them.
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  • Posted

    I believe LS and yeast have some sort of evil partnership and this is why so many of us have a lot of success just by cutting all the big doses of sugar out of our days. Myself, sugar and stress have also gone hand-in-hand – when the s**t hits the fan, in goes the chocolate bar. Bad.

    Coconut oil is not bad for yeast.

    Glad you found us here.

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  • Posted

    When I came to this site I had just been diagnosed with LS and was in a very frightened and panicked way. Like you I didn't have itching, I had lost architecture and  had bad burning like fire ants and one lesion. My flare went on for over 5 months and completely changed my entire life. Aged 69 and ready for the next stage in retirement. All gone, and the pchycological effects are crippling too. Last November I was rediagnosed with Lichen Planus which has its own set of problems. I also get recurrent thrush and take Fluconazole 150 every month and sometimes more. My LP is eroding and I watch the shallow depression of fiery moist ulcers get deeper and the margins extend. Depression must be fought every day and I get chemical help and talk therapy help. 

    The specialist I have is a chipper 27 year old and pats me like her grandma and says don't worry, take this, do that, it's common. You'll be right with me, take this steroid and see you in THREE MONTHS. 

    I learned more than I wanted to and some I needed to on this blog and others. she charged me $300 and I got my best advice from HERE for free. 

    My oil is pure emu oil, I always wash after peeing, then the oil. 

    I eat no sugar, NONE just natural veggie sugars and two or three low sugar fruits. 20 grapes last week and a tiny square of 70% chocolate gave me intense burning and instant thrush. I keep a food diary now.  I also have no gluten and no dairy, no nightshades, no preservatives, no spices. I walk every single day 45 minutes and due to my extreme diet have lost 22 kgs. In some ways my body Is healthier than it was 20 years ago, my COPD is better, GERD is none existent. My breathing, my diabetes risk has gone from high risk to no risk. I am average weight and  "look so well!"

    I would give it all back to be able to sit for 10 minutes without pain, to squat in the garden weeding. And to not have to wonder what happens long term to my undercarriage. To watch tv with hubby sitting in a chair and me lying on the floor, to play mah Jong again and scrabble. While sitting!  To do my art again. 

    But  the ladies say you can genuinely get your life back in many ways and I have hours when I don't think about it now. Washing and oiling takes seconds not minutes and always take your stuff with you for care after peeing. 

    I use oestrogen cream at the doctor's advice just to certain areas and something I have noticed lately is my clitoral hood emerging and my fused minora and the ridge running along the edges between major and minora beginning to emerge. I was so amazed that I showed husband! 

    Incidently we don't have the issue of sex so that's one worry less, although we are very loving in every other way. 

    Am not sure what a complete labia fusion means but I'm sorry for you indeed. 

    Good luck and I'm sure you will get good help from here. 

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    • Posted

      Lynne, I do feel bad for you. Vaginal Lichen Planus is without doubt, the worst!, but you manage to stay upbeat, it can't be easy.  I noticed you mentioned painting, there is a lot of us on this site that paint, a lot of artists!! I can't remember if you were around when we talked about it a while ago, but we were all dumbfounded at the amount of painters on this site with LS!.
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    • Posted

      Thank you so much. I will definitely cut out the sugars and processed food. I know what you mean about sitting. Ice packs are my best friend
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    • Posted

      Oh how funny Guppy. Yes I love art, always done pastels and pencil sketches, my favs. Had classes in acrylic and oils but not my thing. Want to do more watercolour and have been thinking about getting a tall easel so I can do some standing up. 😀 I also love reading and games on my iPad. Life's little pleasures, you have to take what you can. We live so near a lovely beach, two minutes walk, and it's so peaceful walking there. 
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  • Posted

    Hi, I believe that you need to work on getting rid of the thrush before you can hope to have any relief from your other symptoms.  The cause of your thrush is likely your diet, and not the Clobetsol.  If you take the time to read many of the posts on this site you will see that many woman have found that by cutting out sugar,  they have managed to get their LS under control.  Sugar causes yeast problems (Candida) and Candida wreaks havoc in the body.  Here is something I found online..  "The modern diet is like a feast for Candida, since it is a yeast that needs sugar to thrive and multiply. That includes sugar itself, foods containing sugar and also anything that converts to sugar. Refined carbohydrates like processed food made with white flour, other refined grains and alcohol can all contribute to Candida growth.A healthy immune system should be able to keep Candida at bay. However, a diet rich in sugar actually depresses your immune system, leaving it vulnerable and allowing the Candida yeast to proliferate. Moldy and yeast-containing foods must also be avoided, as they can aggravate symptoms of Candida too. This means some vegetables, condiments, sauces, coffee, tea, and packaged and processed foods" .Oils like Coconut, Emu oil etc are great for maintenance, and help some women with itching, but for someone like yourself with severe LS they arent going to turn things around for you just by using these, it is your diet that needs to be looked at in my opinion.   
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    • Posted

      Thank you. I haven't looked into LP but perhaps I should. I'm also trying to find a new doctor, although my present one is nice, compassionate, he has no answers other than clobetsol. When I mention others drugs he tells me he doesn't know of them. Ends of conversation.
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