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I've had LS for 5 years. It started with an extremely situaton occurred. The gyn at the time said I had shingles and LS at the same time. Lived with ice packs down there. Just found this site. I've noticed everyone talks about itching. I've never had that but I do suffer from intense burning during a flare. Now the gyn says I have recurring yeast infections caused possibly by the clobetsol. Now I'm afraid to use the oils everyone talks about. I had complete labia fusion two years ago that required major surgery. I looking at having another soon even with using clobetsol. I wish we had more doctors here that understand this.
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Coconut oil is not bad for yeast.
Glad you found us here.
The specialist I have is a chipper 27 year old and pats me like her grandma and says don't worry, take this, do that, it's common. You'll be right with me, take this steroid and see you in THREE MONTHS.
I learned more than I wanted to and some I needed to on this blog and others. she charged me $300 and I got my best advice from HERE for free.
My oil is pure emu oil, I always wash after peeing, then the oil.
I eat no sugar, NONE just natural veggie sugars and two or three low sugar fruits. 20 grapes last week and a tiny square of 70% chocolate gave me intense burning and instant thrush. I keep a food diary now. I also have no gluten and no dairy, no nightshades, no preservatives, no spices. I walk every single day 45 minutes and due to my extreme diet have lost 22 kgs. In some ways my body Is healthier than it was 20 years ago, my COPD is better, GERD is none existent. My breathing, my diabetes risk has gone from high risk to no risk. I am average weight and "look so well!"
I would give it all back to be able to sit for 10 minutes without pain, to squat in the garden weeding. And to not have to wonder what happens long term to my undercarriage. To watch tv with hubby sitting in a chair and me lying on the floor, to play mah Jong again and scrabble. While sitting! To do my art again.
But the ladies say you can genuinely get your life back in many ways and I have hours when I don't think about it now. Washing and oiling takes seconds not minutes and always take your stuff with you for care after peeing.
I use oestrogen cream at the doctor's advice just to certain areas and something I have noticed lately is my clitoral hood emerging and my fused minora and the ridge running along the edges between major and minora beginning to emerge. I was so amazed that I showed husband!
Incidently we don't have the issue of sex so that's one worry less, although we are very loving in every other way.
Am not sure what a complete labia fusion means but I'm sorry for you indeed.
Good luck and I'm sure you will get good help from here.
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