Posted , 6 users are following.
Hello,
New here. I have suffered with diagnosed LS for about 14 years and this past year or so seems to be spreading and harder to deal with. In the past 6 months I have also had two Uveitis (inflamation of the eye) flare ups for the first time. Uveitis seems to be a result of having an underlying autoimmune disease, of which I only have LS.
Just curious if anyone else also has this eye cindition?
1 like, 6 replies
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101reebok 33beth
Posted
welcome to the group, I have never heard of Uveities so I will google it. This is a uk forum, so are you under the hospital for your eyes?
As well as LS I have an under active thyroid and 2 weeks ago was diagnosed with Raynards in my toes. So it does make you wonder if the immune system is triggered off with one thing that over time it starts effecting different parts of the body, bit like the snow ball effect.
good luck with you eyes
33beth 101reebok
Posted
No I am in U.S. It could be me but it seems the UK's health system is better than ours in some ways even for those of us who have "good" insurance. The only forums I have found for both LS. And Uveitis is mostly people from the UK speaking of the diseases. Thanks for replying.
Guppy007 33beth
Posted
andrea58721 33beth
Posted
Hi Beth, I've had LS for about the same length of time as you and I'm 70. I don't have uveitis, but I had narrow angle glaucoma recently which has been cured with laser surgery. I think they could be related. One alternative doctor I saw commented about the side effects of taking cortisone ointment long term. He said, 'the effects can be worse than the disease'. He said it's only prescribed if there's no other prescription known that will help. In other words, the doctors really don't know what else to do about it..... I think cortisone may be the related to our issues, but it's only a guess. I'm also having more severe symtoms with the LS recently but I was attributing it to recent severe stress in my family - major surgery for my youngest son. My urethra is now quite fragile from the years of taking the ointment..... Thanks for sharing. I hope your uveitis issues can be helped. Andrea
Nancy_K_B 33beth
Posted
THANK YOU Andrea for sharing this quote from your complementary physician! This is what I suspected several months ago from inklings in other posts; but this direct qote from a professional makes me feel ever so much better about not being able to afford the clobesetol (I"m and american, not covered) as well as my own intuition. THIS is why I worked do hard to find the nutritional rebalancing solutions that i've been posting occasionally. thanks again.
jean93693 33beth
Posted
Hi 33beth.
I'm diagnosed with morbus becterews disease, and my spine is "attacked". For the last 23 years I had uveitis in right eye, the condition is very painful and chronic and I'm on medication on daily basis, and it's with the autoimmune diagnose. The last 10 years I had LS the condition also is autoimmune anf painful.
Sometimes it's quite tiring and frustrating. Hope to get some medicine for the LS, but I haven't found it yet.
Wish you luck.