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LS biopsy’s and infection

Posted , 9 users are following.

sylvia48538
sylvia48538

Hello 

I have been seeing my GP for about 3 months over the severe soreness and itching and was given dermavate to help but it started around Chrismas time. 

My GP put in a referral to gyne who I saw last week what a nightmare he spoke very poor English and nurse had to repeat everything for me he poured vintager  all over my lady bits to see for skin colour change and told me he was doing a biopsy bit shocked to say the least so I was injected on both sides of my labia not to bad at the time. I was given a prescription for dermavate but told could not use it until biopsy wound  had healed. I got a pretty bad infection in the wounds never had such pain I’m now on antibiotics so it’s starting to clear but I’ve now got the itch and soreness back with a vengeance. When can you use the dermavate 

0 likes, 13 replies

13 Replies

  • Guest
    Guest sylvia48538

    Posted

    I do feel for you, what a position to be in.  What I have noticed with most people who reply to questions to these discussions etc., is that not every Doctor or Consultant etc., seem to follow the same procedure for treating LS!  I have my own opinion on Dermovate but I would not stop anyone trying it just because it did not work for me.  My story is long but at the moment I can live with this condition but back in April for about 5 weeks it was a living hell.  Phone the chemist who gave you the Dermovate and they will tell you when to use this medication.  I do hope it works for you quickly.
    • yvonne_20875
      yvonne_20875 Guest

      Posted

      Dermovate wasn’t for me either and when I was in agony from burning and rawness I would have killed anyone pouring vinegar on me. So  I cringe for you. Sandra is right though, it may work for you. I have followed advice on the site from others and am cooling way down with bicarbonate soda sprays and douching and applying lots of virgin coconut oil.  Long dress , no underwear. . So far so good. Good luck 
  • sarb73328
    sarb73328 sylvia48538

    Posted

    Sounds like you have had a ghastly experience with not much empathy like so many of us on here. Are you in UK?

    I am in agreement with Sandra - there doesn't seem to be a set procedure for treatment, we all have differing experiences. I can't help you regarding biopsy as I have never had one to confirm my diagnosis (I have mixed opinions on this) - gyne diagnosed LS by examination after I had had symptoms for 4 years and then fusing occurred. I use betnovate which helped unfuse part of my vulva so I do believe in steroid if you can tolerate it. And all the other moisturizing potions you can find that suit you in between. Good luck.

  • karen23320
    karen23320 sylvia48538

    Posted

    Poor Sylvia! I’m sure that vinegar felt awful! When I was in a flare and covered in ulcers I made the mustake of drinking lemonade! When I peed it was like gasoline on fire. My Dr took 6 biopsies and it took about 10 days for them to completely heal by applying Emuaid maxx 5-6 times a day ( after every pee, after blotting dry and putting a cold washcloth down there to calm everything). I also used a moisture battier control with Vit A, D, E from  Medline. I hv not yet used any steroids for my condition- seei g Dr. This Friday for 1 st time since diagnosis 35 days ago-  they left me hanging out to dry and this site gave me suggestions I used to calm flare. Perhaps others who hv used it can reply, but don’t use anythi g that burns- it’s not worth the agony! You want to cool, calm and soothe. 
  • Guest
    Guest sylvia48538

    Posted

    You poor thing! I can't imagine how painful that was...i would absolutely find a different doctor. To help with the healing I would suggest a mixture of Hydrogen peroxide with saline for those spots. I'm afraid I can't help with the use of Dermovate as I have not found they were not the best options for me. You may find otherwise. There are a lot of other options and you can find healing with the help of this forum. You may want to follow up the spray with some aloe or coconut oil.

    • irana
      irana Guest

      Posted

      Best treatment so far for me and I seen this on here but cannot find it anymore...I have been doing it for 2 yrs now .....yes I do have flare ups if I am rushed for time and don't do it at least 3to 4 times a day...if I do this regularly I am good seriously

      Here goes

      This lady went for biopsy and her gyny told her to get spray bottle and put half sterilized water

      (now I use distilled water easier to find)

      And half peroxide 3% sold every were

      Every time you go "P" spray yourself do not wipe just pat this is makes big difference to me that is how I started yes went to GPS for a year they kept treating me for yeast infection the last treatment I had a bad reaction i read all i could get on itchiness then I asked her if it could be LS or LS Planus......she checked me again but longer and she said yes i still don't know witch one it is but i am better now i am going to see gyny in Oct. ..i just want to get checked about using

      I don't think i have any but just what to make sure...

      I told my GP what I do and I got the info here but..

      She said keep doing it if it works and it does

      Here goes girls

      After 2 weeks of half and half water and peroxide i started to go 3/4 of distilled water and 1 /4 of peroxide then pat yourself and put K-Y SILK-E

      Vaginal moisturizer and personal lubricant every time you go P ....i have some on my Anus....my Butt...so I put K-Y Jelly on my butt and at the big inning i used to put 2x week replenish moisturizer and lubricant now i do it once a week and GP gave me vaginal pills Vagifem 2 X a week after a while I started to bleed so now only once a week .....never wear pants 2 days in a row get use to skirts and dresses....for me it works

      I don't know if this condition took to long to be treated or what but now i am going to a specialist for oral Planus cause i am having problems with my gums

      My dentist was faster than my doctor .....i am going Friday so I hope not too bad of news....

      That is girls I want to thank youzzz all because with out youzz i would of went nuts

    • karen23320
      karen23320 irana

      Posted

      Might want to try Baking Soda toothpaste to help with oral Planus. 

      Nancy also mentioned an herbalist (Toby? ) has Oral Lp and he swishes with Aloe Vera everday. 

      See if this helps. 

  • sylvia48538
    sylvia48538

    Posted

    Just like to say thank you for all the support AND WILL BE TRYING A FEW THINGS what shocks me is how I’d never heard of LS !!!

    has any body tried the Juliet lazer I’ve reading a lot of good stuff and spoke to private gyne consultant she thinks it will totally alter the treatment of LS 

    • karen23320
      karen23320 sylvia48538

      Posted

      Is it the same as the Mona Lisa laser here in the USA? I have read alot about it and its positive treatment of LS. However it is VERY EXPENSIVE and NOT covered by any insurance since it has not been approved for that use yet. 
    • sylvia48538
      sylvia48538 karen23320

      Posted

      Yes I think so

      it costs approximately £2000 in the uk but does seem to very popular in Germany 

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