LS, bladder infections and antibiotics

Posted , 10 users are following.

I'm starting this discussion because this topic seems to come up here and there. Hoping the new user who posted about it on an old thread will tell her story here.

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  • Posted

    I am not sure whether you were referring to me Morrell,but I have had 6 urine infections since April and no urticaria or Ls . I saw my consultant this week and  after coming off the last lot of antibiotics my ls returned, but not too bad.She said that she would like to do a biopsy (an earlier one  she cancelled because it looked not too bad) to confirm whether it wAs LS or lichen planus, now I have to wait two months for the biopsy
    • Posted

      Glad you found this topic. It was actually Winfred who posted about UTIs.

      That's a lot of infections! Is your life very stress-filled? Have you seen a urologist? My mother was finally diagnosed with interstitial cystitis, not that there's much they can do for it. She doesn't have painful infections, just the frequent urges to pee. But what a pain anyway!

    • Posted

      Make sure you have codeine on hand after the biopsy smile Also, they might want to do more than one but they only need one tiny one for the diagnosis. For some reason they wanted one higher up also-I said noooo. One is enough to handle. I hope you have some hydrocortisone on hand to stop damage in the meantime. Usually 1% will do something. The wait is not worth it.
  • Posted

    And I forgot to mention that when I got home after that visit there was a phone message for me to pick up some more antibiotics, another urine infection so my LS has quietened down again
  • Posted

    Nice thing, when having to use anti-biotics, that we then get a break from LS, if only temporarely.  However, at the same time I've experienced that the anti biotics weaken your system in a different way. For instance - shortly after a session with the anti biotics, just recently, my ear wanted to infect again and my throat became sore. (Odd?)  So that I start to think that the anti biotic session actually may need to be followed up with suppliments that help your system to recover or restore from the 'damage' done by the anti-biotics.  (The ear infection and the throat I treated simply with a salt water solution.)  Does then perhaps the blatter also need some support to avoid a repeat infection?  
    • Posted

      I'm inclined to agree with you, Hanny, about taking supplements when your system has been depleted this way. Or some really super-nutritious foods.
    • Posted

      Hi Hanny. I to am on about my 6th or 7th uti this year. My dr explained that the normal good bacteria that live in the bladder were very weak from being on antibiotics. She has put me on a new course and when i finish them i need to take one each night till my own bacteria build up again to protect me. I also mentioned that due to the antibiotics killing off all the good gut bacteria i invested in a Kefir maker to replace the natural flora in my gut again. I make a smoothie every day and drink a large glass. My husband has noticed an inprovement in his gut and bowel since starting it which is good as he has stomach ulcers in the past which give him upset gut and pain.   

      Wilma. 

    • Posted

      Hi Wilmatm,

      For the bowels I take Colostrum and that seems to have worked in a positive way.  It's the bladder I 'm not sure about.  How does one improve on that one?  

      What is a Kefir maker?  

    • Posted

      Hi Hanny. Kefir is a drink pro biotic you make fresh in your own home that far exceedes anything the powders yogurts and probiotics you by can do for you. Google it if interested as its really a good product that does so much to make your immune system grow more healthy. 

      What do you mean you take colostrum?  Is that like the cows first two three days milk after calfing or is it someting else?  

      Wilma. 

    • Posted

      Thanks Wilma, had not heard yet about Kefir.

      Colostrum is made from the first milk a cow produces after giving birth.  It seems to have a lot of good bacteria in it that help prevent the calf from getting ill.  My intestines have improved on it.

    • Posted

      Hi Hanny.  I wasnt sure if what you were taking was the same as what i thought. How do you get a consistent supply? And you might have said before but what country are you from?  Here in Australia its illegal to have/sell  any unprocessed milk which is really annoying. 

      We used to have colostrum as children at home!! It was so delicious. Never knew you could get it. 

      Thanks Hanny

      Wilma

    • Posted

      Hi Wilma, I purchase my colostrum via my naturepath in capsule form.  That simple.  I hope you can access it that way as well.

      So lucky you were to have had it as a child.  That would have given you much protection from illnesses right there.  (Would your parents have known this?)  

      I'm from Canada.  I used to be able to buy 'raw' milk locally.  But these farmers are long gone.  

    • Posted

      Yes same here. The local farmers are long gone or to frightened to sell to the public. Even when my children were growing up i was able to access local milk straight from the farm but when they had to stop because of heVy law changes and fines i bought the most beautiful goat who gave prolific amounts of milk for one goat. She kept 7 children and two adults in milk. Not even the visitors knew it was goat milk because there was so much the goat flavour was very diliued. At certain times i was getting 7 litres a day from her. Hence her name Abigail. Wish we had enough food to feed a goat here but were struggle with the chooks let alone a hoofed animal. 

      We had the colostrum as desert when i was a child and yes my mother was very forward thinking in conservation and health issues. 

    • Posted

      Too bad, all these regulations.  I remember one small farmer saying, due to these regulations: "I just closed the gate."  Meaning that it was the end of her selling to individual people.  But what a great alternative you found - a goat.  Where do you live?

      One would think that with such healthy lifestyle when young you would be strong as a horse later in life.  

    • Posted

      Hanny i live in a pretty remote area north west NSW. Australia. No feed to feed a goat let alone a cow but we do have chooks and eggs and a fantastic vegie garden my hubby works very hard to keep going. Oh and a worm farm lol. 

      You would think that but being migrants to Australia we were bought up in some pretty ordinany coal moning areas and my big brother remembers seeing the mushroom pf an atomic explosion as a child. The farm we were on was down wind of the nuclear testing they did here in Aus at the time. 

      So even though my parents tried and i tried with my own children it was an up hill battle. 

      The country would never get away with those things today. 

      But some very good memories for me all the same. 

      Wilma. 

    • Posted

      Hi Wilma,

      Your writing makes me want to ask all kind of questions:

      Are you saying that you and your family have been exposed to the effects of an atomic explosion?  

      Has the vegetation been altered due to this testing?  

      How do you think your health may have been affected by this?

       

    • Posted

      Hanny the explosion was just before i was born and the answer would be yes we were indirectly exposed. I know my father was a farmer at the time and there was no vegetation for stock so we moved to a coal mining town being newly established. The testing was done in the South Australian desert which is flat and sandy country. My family were farming close enoughto the border to actually see this particular explosion. My brother being young never knew what he saw!!  

      The government are finished paying out those affected but both my parents died young and my sister was not even two when she died of cancer. and she was a new born there at the time. 

      Yeah i still wonder what we are were exposed to in our life and governments have felt it was needed to keep secret. 

    • Posted

      Very disturbing to read the history of that testing. I found this:

      Chapter 16: A toxic legacy : British nuclear weapons testing in Australia

      Published in: Wayward governance : illegality and its control in the public sector / P N Grabosky Canberra : Australian Institute of Criminology, 1989

    • Posted

      Thank you Morrell. I really appreciate you finding that for me. 

      Will have a look now about it. 

    • Posted

      In response to your writing - you have lived, are still living in the same area where it is possible that radio active rays could have placed a mark on the well being of you and your family.  And it says too that it would be hard to prove that all of you have been affected, and therefore passing away too young.  And no, in my opinion, it definately is not right that this has happened to your people. It says also that government did not have to be responsible.  Could they be held responsible for it today you think?    
    • Posted

      Have started to read this very interesting article. Have bookmarked it for future reference. Very nasty business indeed. 

      Thank you. 

    • Posted

      Hanny we have long moved from that place but nearly all my life we have lived in one mining area or another. The nuclear area was were my father was sent when he first arrived in Australia 58 years ago. My mother who had five children and was pregnant again followed a few months later when they were let out of quarantine. All the kids became sick on the boat. 

      That was the farm that my brother saw the bomb. 

      We are all moved an and away since then but for me i seem to go from one mining town to the next lol

      But yes my father was 59 my mother early 70's and my sister 22 months old. 

      I am one of 9 children and all four girls have auto immune diseases as well as at least two of my brothers. 

      I guess with big families there are big odds. 

      I say my parents died too young because their mothers both lived to be in their nineties. 

    • Posted

      Would you be able to mention what kind of auto immune diseases are in your family today?
    • Posted

      Hanny there are some i dont know the details of as we are estranged but my sister has told me there are others. But paladromic rheumatoid arthritis, lupus, fibromyalgia, primary biliary cirrhosis, aids, there are two members of my family that have unknown growths one in the brain and one around the heart. 
    • Posted

      One would say - could these atom bomb tests have something to do with this?  But then again - How can you be sure?

      Same as my thyroid problem.  Was it because my mother may have received radio active treatment prior to my birth, due to a mastectomy?  It is known that in the second generation there might be this 'result'.  

      I have to say 'might' be.  

      And then again - other people get sick too with things like you mentioned. Is there more polution of any kind than we know off?  Etc. etc.

      Thanks for sharing all this Wilma.    

    • Posted

      Too much illness in your family, Wilma!  And these are all "diseases of civilization" that likely didn't exist a couple of hundred years ago.  What are we doing to our world?  The bombing can't have been good.  Do you know if others in the area are similarly burdened.  While there may be no proof, it is highly likely to be the source if there are clusters of unusual illnesses around where the testing was done. --Suzanne
    • Posted

      Yes Hanny i have to agree. They say my sister may have been exposed to nuclear fall out when she was in utero when they came over in the boat. I have to say it could have been any off many scenarios but how can any one be sure. One thing i know my brother was gene tested and he has typical auto immune counters so it would be far to say the rest of us do too. 

      I am begining to understad many people on this sight have experienced some pretty awful stuff.

      Funny but when i was at school my mum was the greeny. She was so befor her time in taking action with dyes, pollutants, cleaning chemicals etc. she came to my class and spoke on how Holland sterilised their country by being too clean and was warning us back then to be careful. 

      The area we finally moved to when i was in my teens was known to have the cleanest air in our state at the time. 

      Any way like you say it could have been anything but i know for me it was stress of major kind that  precursored three of my auto immune diseases. 

    • Posted

      There is actually a book about the bombing that happened at the time called Maralinga or some thing like that. Its how i found out about the nuclear testing that involved my family. I was telling my brother i had listened to it on the way to visit him and thats how it came out about it in the conversation. 

      Was very sad what happened to the aboriginal people who lived in that area. 

    • Posted

      Stress - I have had a life time inability to handle stress.  Only a few years ago was I diagnosed with poor functioning adrenal glands.  Did you ever look at these peculiar glands?  When they do not function well your immunity level is also affected.  
    • Posted

      One may wonder what goes on in the minds of people who give the go-ahead for such testing.  
    • Posted

      No Hanny cant say i have. I just internalised my stress and found it difficul to talk to to those closest to me. But its interesting to hear another person who is a bit like me. I already feel like an alien so this group helps me feel like i am maybe normal. 
    • Posted

      Hi I am guessing they had no idea what they were doing or the lasting problems they would cause humanity. 

      Crazy.  

    • Posted

      You are normal Wilma.  Glad we met. Even though we live half a world's distance from each other.  Internet has great advantages. 
    • Posted

      These people could have an idea - Japan's a living example.  That should have been enough of an indication that human beings would be seriously affected.  Did humanity learn?  I wonder.
    • Posted

      Thanks Hanny. This whole LS thing has me so depressed. Its really dashed my self worth and my self esteem has taken a huge tumble. I havent cried so much in a very long time. 

      I guess we are all the same in that respect. 

    • Posted

      That's to be expected.  This disease overpowers your whole life.  For a while for sure.  There is a lot of grieving to do.  It's absolutely life changing.  You have to learn to put 'new handles' on life so to speak.  

      At least we know we're not alone, and that helps a bit.  

      Wishing you lots of strength in the process to learn to cope.

    • Posted

      Hi Hanny. Thanks. I found out today my b12 levels are terribly low. Have to have 6 injections over next two weeks. Thank god i finally know why i feel so terrible. Thought i was loosing my mind. Also cholesterols are reall good too. I asked doc about adrenal testing so i have to wait till b levels improve first. 

      Wilma. 

    • Posted

      Hi Wilma,

      B12 will be a big help.  I receive one injection per month.

      Helps with the mind as well.  

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