LS fusing

Posted , 15 users are following.

I have suffered for 33 years with this disease.  I am 76 yrs old. LS is an autoimmune disease and a health person told me for a true autoimmuneO

problem is that you had to have 3.  I have arthritis, Ls and thyroid.  Jus over a year ago I had to have the thyroid removed (cancer) . That is okay now. But listen to this, The unbearable constant burning itch has all but disappeared.  There is till some very mild discomfort around the anus.  The fusing was so complete that I lost the clitorus first and than the labia minora and the labia majora was starting to disappear.  But with the regular use of coconut oil and spraying after bathroom use with water and baking soda I now have rather normal looking labia and normal colour.  i was white, gray, purple and bumps.  Ony the clitorus has not been uncovered but sensation is still there.   I am just very slightly  white at the entrance to the vagina both front and back.  I wish i had Known about these treatments years ago. 

3 likes, 63 replies

63 Replies

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  • Posted

    Hi Sheila

    Just diagnosed and very scared.  Clitorus skin fused over and I only noticed it today so got a huge shock.  I would like to know how you use the coconut oil and baking soda and how you found out about them.  Please reply,  I do prefer natural remedies and I am feeling so stressed out right now. Andrea

     

    • Posted

      I can not only imagine that you're scared Andrea, I was in the same position and worse - totally fused over, only a pin hole left to urinate drip by drip.  But accidently found a way of almost back to normal.  

      I started using baking soda rinses after every bathroom visit (three pinches in a Perin bottle), covered up with coconut oil;  and put 1/3 of a cup with baking soda and some tea tree oil drops in my bath and had a good soak every other day.  I stuck to this regime from October last year till now and what a difference this made.  At first I couldn't believe my eyes.

      Then I started to watch my diet more carefully -  no added sugar, no alcohol, no caffeine, no gluten, limited dairy.  Lots of vegies and good fruit.  No artificial foods from packaging that seems to stay 'fresh' for ages.  

      Bit by tiny bit my whole system started to function better, my skin improved and my LS went in reverse.  I have to stick with all this every day, but I find it well worth it.  I live better, have my sex life back (gentle sex)  and feel better in general.  I can highly recommend trying the above.  May not work for all people with LS, but consider that in case it doesn't help, no harm is done.    

      I still use a small amount of glob twice a week for maintenance.  And use hormone replacement.  Have B12 injections one a month, take Omega 3 capsules every day.  

    • Posted

      hanny - love it. Thank you for sharing. I actually took a screen shot of your response and will be following your regiment. 
    • Posted

      Hi Andrea

      I complained to my doctor about the severe dryness and she said to use a lubricant so after I got home I was thinking about what she said and 

      thought that the coconut oil in my kitchen was probably a good one so I had an empty cosmetic jar,  cleaned it out and filled it with the coconut oil and it is kept in my bathroom. It is a great remedy for me. 

  • Posted

    I have just joined this site tonight and am fascinated by the baking soda and coconut oil regime. I will try it. May I ask how you apply it after using the loo... Is it in a squeeze bottle and applied that way? Does it need to be made fresh each time to enable the ingredient to work or can it be made up for the day? I don't know the Perrins bottle size (New Zealander here) so what are the proportions of the baking soda to water? 

    Thank you in advance

    Lynne B 

    • Posted

      Hi Lynne

      I went to  a craft store and bought a small spray bottle about 2 1/2"

      it may translate to about 60mm.  put water and about 3 pinches of baking soda into it.  I leave it in my bathroom.  Just spray after a loo visit and dab with tissue. simple . Coconut oil is a solid or liquid depending on temperature but disolves instantly upon touching the skin.  I apply it every morning after my shower and every night before retiring.  I keep a cosmetic jar in my bathroom filled with coconut oil.

  • Posted

    Oh my goodness you poor lady.  My heart goes out to you especially with the cancer.  I do hope that you are okay now.  I believe my clitorus has also disappeared.  Where do you buy natural coconut oil ? I know that sounds silly but I don't want to make things worse.  It's so comforting to talk to others.  I no longer feel alone.  I was told I had fibromyalgia and was tested for thyroid but it was negative.  I believe I have all the symptoms of the thyroid problems especially as I have gained weight.  So every time you go to the toilet you spray ? That's a good idea.  Did you change your diet at all ? Many thanks Sheila X ps I am a little worried that they are testing the area for cancer.  Is this normal in your experience? Only I had ulceration X 

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