LS in any light?!

Hi Bonnie, I didn't have obvious white plaques but inside of the labia majors was very pale. I tend to be red and inflamed more in the vaginal area like you. I also have a lot of fusing which was why I was diagnosed with LS. Did your GP give you the steroid ointment, if so I would use that on the sore areas. Don't worry too much about it. Once you are diagnosed you will learn to manage it. Good luck

Hi Bonnie. I was diagnosed with LS four weeks ago and it is very scary. The group here is fantastic. I was prescribed dermovate (clob) but was allergic badly to it and am now using betnovate. I had no symptoms until I had a vaginal hysterectomy and then all hell broke loose. My clit is shrivelling but I only have a small bit of fusion. The silvery patches aren't visible under natural or artificial light now. I hope you have good news when you see the specialist in Jan. Try not to worry as stress can make it worse. Best of luck Trisha x

I don't have a definitive diagnosis yet, either, but they suspect LS.  I only had two very small white patches on initial examination in July in addition to a lot of redness.  My main symptoms are redness, burning, mild swelling with slight itching.  I'm getting a second opinion in January, too, but a mild steroid cream and olive oil have helped reduce the symptoms.  I'd be interested in what your specialist tells you in January. 

Hi there. It does sound like LS to me.  Your gyno was correct in that usually there are obvious telltale signs of LS which can therefore be visually diagnosed.  What she didn't tell you is that not everyone gets those telltale signs, and in your case, the only way to know for sure is through having a biopsy which I am not sure you would want to, or even need to put yourself through. 

I think if you just use the Clob cream on your undercarriage when you have pain then you should be good. But you will have to be careful and watch for fusing, that kind of thing..If you read some of the older threads on this site it will make you feel more informed and less anxious.

Hi Bonnie, Here is a link to the Dr Goldstein lecture.

http://www.lichensclerosustreatment.com/

This should help although I believe you will gain more info from the women on here that have LS than anywhere else.

Fusing I think mainly occurs while we are sleeping. I don't know to be honest, but I think that is the case.  I believe using some kind of oil to stop this is helpful.  You can use emu oil, coconut, any oil that your comfortable with before bed.  

I would spend some time reading about LS on this forum.  I know it is a shock at first but LS is manageable once you understand it more.

Hi Bonnie, I've read all the messages on this thread, and as you can tell, we are all different in our symptoms and how we deal with it. I only have white skin and fusing in the perineum/fourchette area, and pray the LS doesn't start anywhere else. For now, I don't have itching or burning, but don't know what the future holds, none of us do. But on a positive note, you are seeing the right person in January, I had a four month wait to see my Dermatology/Vulval specialist. He/she will give you a regime of treatments to use. Along with these you could try borax, oils etc. I have had good success with everything I'm using, and try to be positive and take an holistic approach overall. No two people are ever the same with the same condition, and I'm trying to stay strong and positive, even though I felt my life was over when I was diagnosed 6 weeks ago. Wishing you all the best x