LS is ruinin my sex life

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I'm only 25, and am currently waiting to go to a LS clinic, although from reading many of these posts i'm pretty sure this is whats been causing me so much grief and stress, its almost a relief to know. I tear during sex which makes it almost impossible to actually enjoy it in any way, feels like a knife. I only have the itching and spliting occaionally although it always feels like its either sore from spliting during sex and when thats better other symptoms flare up. I have been given benovate too which i see quite a few others mention although i'm not finding it v gd, although maybe i'm not using enough. I'm a bit aprehensive to use it as it can thin too.

ok just had to feel like i had talked to someone.

any words of advise, ls sufferer sex tips lol

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5 Replies

  • Posted

    Hiya Pixie, About a pea sized amount of cream i was told to rub in , gently but really well. I found the first steroid i was prescribed made things worse so don't be afraid to ask for something else, because there are other options.

    Sex was awful for me too. Much the same symptoms as yourself . Then i got a psycological barrier spring up as well because of the the thoughts of what was going to happen . I've discovered a great lubricant called 'yes,yes,yes' , ([b:11811236ec]website[/b:11811236ec]) , but there are others which have an equally good success rate, and this for me helps alot.

    I've had my LS under control (more or less ) for a good few months but then this last week it's all kicked off again and the only thing i can put it down to is stress because nothing in my life, or diet has changed other than extra worries. Some sufferers do say that stress is a factor that can trigger a flare .

    With regard to being apprehensive about the steroid use, my dermatologist said at my last appointment that i may have to use it for years to keep things under control . I have to try and taper the use of the cream eventually, but at the moment it's full steam ahead to try and zap this flare up once again.

    I'm the wrong one to help with sex tips, ( what's sex ? I've forgotten)

    other than lots of lube. Someone else may help you further

    You're on the way to finding an answer ,which is the main thing, so try and keep smiling and take care. Netty x

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  • Posted

    hey iam 21!! ave bin sufferin wiv ls since i was 4!! i was splitin everytime i as sex!! is awful!! didnt ave a sex life!! was srtessin me out an depressin me 2!! i ave ad the op yesterday!! so dnt now if it as worked yet!! u want to go 2 birmingham hospital!! a proffessor did it 4 me!! he as dun over 1000!! is defo worth a try!! av got nuthin 2 loose!! he said will stop me from splitin!! will keep my fingers crossed tho!! will let u now how it goes!! u wana look up on it!! defo fink its 4 u!! wiv u bein so young 2!! get it dun as soon as u can!! all the best x
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  • Posted

    cadie, what operation did you have at birmingham hospital?

    this is the most depressing condition... i cant have sex either and i dont know what to do! x

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  • Posted

    Hi there, not sure if you'll get a email regarding my post but if you do did things get any better, my sex life is now none existant. Many thanks!
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  • Posted

    Hi all, Just found this discussion group about LS, I am a 47 year old man and was diagnossed with LS about 3 years ago, I have been suffering for since I was 18 with passing urine and narrowing with the end of my penis. I have had countless dialations of my urethra and strictures removed with kwy hole surgery, my LS just came on 3 years ago with splitting around the underside of my penis, I was refured to a dermatologist who was very blarse he just said \"Oh thats LS get your doctor to treat it with topical creams\" well heres my point GP's havent got a clue how to treat LS, every person is different in the treatment of this condition, my GP tried every cream he could think of with nothing working for me, steroid creams just made the skin even thinnner and easier to split during sex or even just moving my position whist sitting ending up with infection aswell as splits and a huge amount of pain, well my wife works at a doctors surgery in admin and desided to have a look around the different mentor sites used by GP and alike, she downloaded stuff from every where she could incuding the british medical council. It seems that their recommendation to dermatologists in the UK is that good results for LS are creams or ointments containing a chemical called [b:fa35978f16]Betamethasone[/b:fa35978f16] It turned out that in 2006 my doctor had prescribed a cream called [b:fa35978f16]Fucibet[/b:fa35978f16] which contained this ingedient, at the time I was using [b:fa35978f16]Protopic ointment[/b:fa35978f16] a replacement for steroid creams as they were just thinng my skin. The Fucibet was out of date but as I were in a lot of pain I decided to try it for a week as I had an appointment to see my GP then. The results were remarkable, my skin was actually starting to repair and not itch, when I had my visit to the doctor I explained this and he said the protopic was stronger than Fucibet and should have worked better, but it didn't. Mt further point is this, when trying any treatment or couse give it a good chance to do its stuff on your skin, don't just because you don't see any results for a week, it may take longer to work, if you don't do this you will get the wrong impression of a cream which may be right for you.

    I hope this helps someone out there, good luck to all posters.

    Dean

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