1. Community
  2. Women's health
  3. Lichen Sclerosus

LS is so ever present

Posted , 9 users are following.

groky
groky

I wanted to stop thinking about having LS as my mind has been going over and over it. So, I stopped using my A&D ointment that helps keep the burning at bay. For a couple of days it was ok, then today the burning started.

Took out my mirror to see what was going on and I had such dryness

around my rectum and a small tear that hadn't been there before a few days ago. Guess there's no "pretend it isn't there" or any time off from this. It

Just takes a lot of care to keep it somewhat under control. Just needed to vent. And having to wait until Monday to see what has prolapsed is it my

bladder, rectum or uterus....then will I have a hysterectomy. All this

worrying isn't helping as it's making my stomach acidy a now I have

canker

sores on my tongue lol geez a Lou this is getting ridiculous.

3 likes, 25 replies

25 Replies

Prev
  • Guppy007
    Guppy007 groky

    Posted

    They say that "A trouble shared is a trouble halved" which is why this site is so helpful.  I do agree with Patricia in that if you have a really good specialist, someone that you respect and trust, then that should help to allay some of your concerns and worries.  Do you feel like you are in good hands?  What is your doctor like?  Is your partner supportive?  If these questions are too personal than don't answer, no worries.

    I also agree that you need to find a way to compartmentalize L.S because as you know worrying is not great for L.S.....  Most of the time I manage to do that,  I try not to dwell on it, but its definitely harder to ignore when something unpleasant pops up like a tear or a sore, then all you can do is deal with it and hope it goes away for a while.  

    I Hope you are feeling a whole lot better today! x

    • groky
      groky Guppy007

      Posted

      Thanks Guppy. My gyno is a very good doc but I just don't know how much he knows on LS. He is very supportive. This

      group has given me more information tho then I received from my doc. Such a comfort having you all here in this group to turn to.

    • groky
      groky Guppy007

      Posted

      And yes, my husband is very supportive which is wonderful. Can't imagine how much worse this would be if he wasn't.
  • christine94142
    christine94142 groky

    Posted

    know how you feel try some baby nappy rash cream it will protect from urine burn and will help dry skin if you have a partner get him to put it on for you i put it on at night before i go to bed along with my steride cream and in the morning i have a lot of relief. good luck but your not alone. i have had a rough couple of weeks too but i hope i am turning the corner again for a while at least.
    • groky
      groky christine94142

      Posted

      I think I will try some new baby rash cream. Glad to hear you're doing better.
    • suedm
      suedm groky

      Posted

      Remember that weak urine is less stinging than strong , so drink plenty of  water to dilute it a bit. or a lot!

      You mentioned a hysterectomy, if you have already reached the menopause your hormone levels will be depleted, try and ensure that your medics inform you about your hormone levels and where ideally they should be- and replace any that are rather low. Changes - and lowering of oestrogen is  thought to be a contributory factor in LS. I you are not at the  menopause phase of your life then do go for HRT if you can

  • marianne93051
    marianne93051 groky

    Posted

    If you are getting canker sores I found that if you take a mild tranquilizer it stops it before it starts because it is brought on by stress
Back to top
Prev

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.