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I was discussing this forum with my 40+ son yesterday He suggested that if we could compile a fact sheet of what we KNOW not what we THINK; offer it to our gynae / derm consultants for their input then have a website with an international bias, we could perhaps construct a questionaire together with the medics relating to common issues: treatments / associated conditions/ lifestyle issues/ stress factors / age / ethinicity/ diet and the usual smoking drinking and sexual issues/ family history
A separate part of the paper could be for suggestions / alternative therapies / what works for me /
When this time limited self referral "study" was complete PhD students could be offered aspects to study for their final degrees
Thoughts from you all??
(Interestingly my son has recently diagnosed Gilberts syndrome - another auto immune condition his father has MS and he brother asthma!)
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