LS - punch biopsy and travel question

Posted , 8 users are following.

I have a punch biopsy coming up of the vulva (fourcette area) and I am quite worried.  Because I recently moved to a new city, I am travelling a few hours back to my old city to have it done (so that my healthcare is consistent). 

During my last check-up, my regular consultant was away.  I was therefore under the care of a dermatologist who doesn't specialise in LS.  She saw there was additional erosion around the fourchette area and ordered the biopsy.

Is the procedure painful?  Does the anaesthetic help?  Will I be able to walk to a train station afterwards or should I plan to stay in this city overnight to recover?  How long does the pain last?

I have had LS for about a decade and have not needed a biopsy - could the dermatologist have been erring on the safe side?  Until my last appointment, I had been seen only by specialist LS dematologists for 10 years. 

Should I postpone my biopsy until I can get a second opinion from my regular consultant?  I have small children so don't want to be in pain if I can avoid it.

Any advice welcome.

0 likes, 17 replies

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  • Posted

    Hi what to you mean  by them foursette area I've had two biopsys done in the past it will be ok for you to go home on train you won't feel it being done they will inject and will be numed in that area for at least an hour of two after I would definitely have it do if your dermatologist thinks it could be something else going on I round were a loose fitting pair of trousers or better  still a skirt for a few days keep it dry clean and it will be ok 

  • Posted

    When is your regular doc going to be back? If it is not going to be long before he/she will be back if it was me, I would wait to see her/him. This is only my opinion but if that is the only one you have been seeing he/she knows you best. The only time I had biopsy, I was under anesthesia for another surgery that is when they saw white patch so they did biopsy and confirmed it was LS so I am not sure if is painful. Good luck.
  • Posted

    Hi, I know a lady who had a biopsy about t month ago and she was off work for a week and feeling rather sore and said she needed to rest up. You need to be fetched by someone after the procedure and then lie down and have someone look after you. Easier said than done with small children I know.

    Chicks

  • Posted

    Hi Orangecake,

    sorry you are worrying.  I hope I can reassure you I’m only worried about if you’ll feel stressed going to your appointment.  I had three punches done but I had to have gas and air as I was just stressed but that’s me I’m a baby.  The anaesthetic stung like a bee sting but then you can’t feel anything after that.  They give you a pad to wear in case there is a bit of blood but I don’t recall any really.  Just take it easy when you get back home, is the station near hospital?  The stitches were dissolved in about then days.  Everything was puffed up and black because of bruising from the injection just like a bruise somewhere else but it died down.  Don’t wear trousers wear a skirt if you can when you’ve had it done and don’t wash for a day or two or use cream or anything.  I have ulceration at the fourchette Gillian it is the area near perennium where the labia ends at the entrance.  The thought of the unknown is worse that’s the worry as well.

    • Posted

      Hi Sue, thanks for sharing your experience.  Did you have the 3 punch biopsies done because of the ulceration at the fourchette or was it something else?  Sorry this is my first time on any forum so please feel free to tell me it is none of my business if you would rather not answer! 

      I'll need to take public transport from the hospital to the train station as it's too far.

      Hope the weather is not too chilly for a skirt :-)

      The unknown is a worry and normally I wouldn't be second-guessing the biopsy - even though it sounds scary (I hate needles).  However, in 10 years my regular LS consultant said I didn't need one.  I cannot get hold of her.  The specialist performing my biopsy saw me at my last appointment, was lovely, turns out to be the head of dermatology but is not an LS specialist.  I would not want to seem ungrateful or rude but will ask my questions and trust my gut as to whether I go ahead there and then or wait another 6 months til I see my regular consultant.  Unfortunately more and more people now have LS so that clinic is oversubscribed.  There is only one consultant and she is slowly training up registrars.

      Appointments are 6 monthly and sometimes they cancel them, which means another 5-6 month wait. 

      If anyone knows any good LS specialists in the North East where there is not a 6-month wait for appointments, that would be great. 

  • Posted

    Hi, you have had LS for a decade and so I am sure all the biopsy will tell you is that you have Lichen Sclerosus.  I would definitely wait to see your regular consultant that knows what LS looks like.  Most 'specialists' look at LS don't know what it is, won't admit they are clueless and send countless women off for biopsies that arent always necessary..I think it is shocking, to be honest.  There are so many tell-tale signs of LS that it is a disgrace that these 'specialists' cant do their homework with regard to LS.

    • Posted

      Hi Guppy, Thanks for your reply. 

      I have booked tickets now and so will go ahead to the department - but I will ask more about the biopsy before the appointment and be prepared to wait another 6 months to see my regular specialist if I'm not satisfied with the answers. 

      I'll ask how many of the LS patients this consultant sees and why she felt I needed the biopsy and whether the erosion is just progression of the LS.

      I was on my period last time I was seen so I will also ask whether the area has improved since when she last saw me and if so, I'll wait for my LS specialist and consider the biopsy.

      If I am satisfied with all the answers, I'll take the biopsy and update on this forum afterwards.

      Thanks again everyone.

  • Posted

    Thanks, everyone.  It feels really nice to have support.  I don't really speak to anyone about LS or how it makes me feel - I almost try not to think about it.  I am pretty worried about the procedure because the area of the biopsy is already quite sore and whenever I read about the procedure, it makes me feel a bit light-headed (I know, I'm a wimp).  I'm going on my own too.  Most of all I'm worried about the results coming back positive for cancer and what that means for my children.  But I'm trying to take it one step at a time and not imagining the worst.

    I phoned to see whether it was worth my waiting for my regular consultant but was informed that would be a 6-month wait.  Plus the consultant who saw me last time was the head of the dermatology department (which I didn't realise)..so I'm sure if anyone thinks a biopsy is needed, they would know.

    I've taken note from everyone on clothing and am going down the night before to see friends.  The next day after the biopsy, I've booked my train back 2.5 hours after my appointment time.  I'll also post an update a few days after my appointment in case my experience is of help to anyone.

    • Posted

      Aww you are being very brave.  Give yourself a pat on the back x
    • Posted

      Best of luck to you..Just one thing, in all the time I have been posting on here I have never heard of anyone having cancer from LS.  I know it is possible, but it is very very rare.
  • Posted

    Hi Everyone, as promised an update:

    I went along to my appointment armed with loose clothing and deep breaths, and was seen by the lead dermatologist (who I like more and more with each appointment).  After the initial chat to discuss any changes since my last appointment, she patiently answered all my questions and agreed that we'd only have to do a biopsy if the fourchette area's previous ulceration had either not improved or worsened. 

    After the examination, she decided that there was some improvement and she would leave the biopsy for today and continue to monitor the area at the next appointment in a few months.  Also if I see any changes before then to call in and ask for an earlier appointment.  Very relieved and also feel lucky that this dermatologist is as good as my regular one.

    I've had LS since my mid-twenties and it was a real battle to get diagnosed.  I was sent to sexual health clinics for so many tests as they thought I had an STD or an infection (I didn't - all tests were negative). I was even told /shamed by one doctor that the soreness was due to rough intercourse (it wasn't) and she wouldn't believe me when I said I hadn't had any intercourse for a year due to the pain of what I later discovered was LS!

    Luckily I later happened to move to another area and registered with a great new GP practice.  I researched extensively, self-diagnosed LS and took my findings to my new GP.  She agreed that it was LS, immediately referred me and so the journey began.

    I can't believe I avoided forums for so long - thank you to all you lovely people for your kindness, advice and support x

    • Posted

      Yayyyyy, I’m glad you are feeling better and if she thought it was getting worse she would of said so that’s what I’m thinking.  You sound like me I was told I had herpes but didn’t and went to std clinic for diagnoses in the end.  I bet you had a relaxing train ride home in the end.  Come on here to chat then you won’t feel so alone in this.  I’m v happy you feel better xx
  • Posted

    HI glad you didn't have to have the biopsy done in the end you have a good dermatologist that will listen and answer your questions mines not do good with that and please don't you have I prove myself since your last visit 

    • Posted

      Sorry about the mistakes in spelling it's the predictive text what I was trying to say is mines not so good with listening and answering and I'm pleased things improved for you since your last visit 

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