Ls releif

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i was only diagnosed with LS 1

Ive been using different types of home made remidies , I've made up 4 Tablespoons of castor oil , 2 drops lavender essential oil and 1 drop lemon grass essential oil . It helps to relive the itching. I also wash every time I pee. Pat dry then I smooth aloe vera all over where needed . In the mornings and evenings I spray collidial silver . Last night was first night I didn't scratch all night . I've gone dairy free and I've been wheat free for a few yrs.  I'm cutting out my sugar intake . Not eating potatoe, sweet potatoe , rice. Limit myself 2 fruits a day . Drink cod liver oil ,1/2 teaspoon pure vitamin c powder, 3 cups of red clover tea a day . Going to start taking proibiotics and immune herbal tablets. . I substitute milk with coconut milk and home made Almond milk. I also didn't no I had LS. I thought I gad thrush . I decided to have a look at myself then got hubby to take a picture . I was in shock . 4 months ago I didn't have any white spots . Sex was painfull , I just thought it was from the tear I got from constipation . Well that wasn't it. All makes sense now , even the tip of my clitorus is smaller . Why does this always happen to women . Don't we go through enough. 

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  • Posted

    Hi Sarah

    i agree with you this condition is terrible and there is no help from the medical profession and in many cases no empathy.  Just the view, there is nothing that can be done, deal with it.  I am in the U.K. And there I has never been any public awareness of LS?  I only first heard of it watching a doc called Embarassing Bodies,all they said was if your vagina starts to close up you could have an op.  They did not state that is incurable or the other issues it can cause.  

    Without realising I've had this for years and it was only 18 months ago going to my gynaecologist for another issue I found that I had it.  He referred me to a vulva specialist, who though very sympathetic Is not on the op as she says it is rarely successful.  I am going to push for the op as it has in my case taken a long time for my vaginal opening to close down.  Sadly as in your case my clitoris has all but disappeared.  My heart goes out to all sufferers especially to young women as from what I have read on this forum it can ruin your marriage and effect you phsycologically too.  Some people are recommimthe use of bicarbonate of soda/borax to stop the fusing.  Personally I cannot see how you can reverse something that has completely healed over but you have to give these things a try.  It may help in the early stages.

    i wish you luck. 

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  • Posted

    I am so glad you are trying the castor oil mixture. For the first time in over 30 years I no longer have any itching. It is over a month now and I feel like a new person. Unfortunately because I have had LS for so long my vulva is a mess and I will probably have to have an op in a couple of months time to cut a lesion out.... I am very nervous. I hope things improve for you with the castor oil mixture. By the sound of things the botrax treatment seems to suit a lot of ladies too.
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  • Posted

    Hi Sarah,

    It is indeed shocking to realize what is happening.

    But it sounds like you are doing everything possible to support your body, so my hunch is that you will succeed in stopping the progression. : )

    Although I know there is no cure, I believe there is life after an LS diagnosis.

    It would be great if some of the visitors to this site who have had LS for a while could tell us about the ways they've learned to enjoy life again anyway.

    Metta

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  • Posted

    Thxs ladies for ur replies.

    Is there anywhere to find out the steps . How it starts etc etc. last night I had 4 beers as I was stuffed after work lol. Well I itched more and woke up as if I went to an orgy and only my bottom  missed out .LOL. It must be what it's made off . Thinking have to stay off things that cause inflammation. I luv having a few drinks with me hubby , but looks like have to watch that too. I read a lot that women have baths . Is that cause it's progressed real bad. Another thing puzzles me is that LS sufferers get prescribed steroid cream . I thought u can't put that on cuts or open wounds . My daughter is studding natrothopy and has a degree in nutrition . She is trying to help me work out a plan . She said it's an immune disorder ,  she told me to stop using the cream the doc gave as the antibiotic will destroy the good bugs  I have left , which in long run cause more imbalances.  The colloidal silver I feel is working ATM . The white has gone around the anal area . Just red now . Does it change colour as well. And not itchy their as it was on Saturday night. I got hubby to take pictures for me . And I can c the difference. I now put vitamin E into my aloevera . I keep in fridge for the cooling affects . I take coconut oil to work and use that after every wee. I luv walking around with no undies at home . Think it breaths better lol. Also read ur skin thickens ,what stage is that. Got hubby to install those hand held hoses u c in Thailand ,rinse all the time . Life saver. 

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