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LS spreading?

Posted , 9 users are following.

mary09950
mary09950

I am confused.  I thought LS was a disease of vulva.  I am feeling soreness on side from vulva area into hair all the way to fold of my leg.  I don't see anything but I feel sore sore.  What should I do until my next appt.  Should I try Clobetasol there too?

0 likes, 10 replies

10 Replies

  • Guest
    Guest mary09950

    Posted

    LS can affect any part of your skin. When it is on the arms, legs etc. I don't think it is as serious as when it is on the vulva. I wouldn't put clobetasol on the are as you are talking about until you talk to your doc. Clobetasol is very strong and should only be used the way doc tells you. Call them and ask them what to do. Maybe try some desitin on those areas it has worked for me. Hopefully that will give you some relief until you can talk to your doc.

  • Guest
    Guest mary09950

    Posted

    I should have added that what you are feeling may not even have anything to do with the LS. It could be something very simple.
  • vissy
    vissy mary09950

    Posted

    Mary,

    The pain that I had was only in the iguinal folds and within the pubic hair area, too. It was a severe burning type pain in the iguinal folds. I couldn't tolerate clobetasol so the doctors switched me to triamcinolone. I was told to apply the cream to the painful areas as directed by my doctors. After 3-4 weeks, the burning pain subsided and now, 2 months later, I am using the steroid once a week. I am happy to report that I only feel a little discomfort when my loose fitting underwear rubs against me. I was diagnosed with LS with these symptoms and the telltale white patches. This disease can appear anywhere on your body.  Talk  to your doctor, but realize that LS can appear in the region you described. In the meantime, I would apply the diaper rash ointment or another soothing barrier cream until you can talk to your doctor. 

    • mary09950
      mary09950 vissy

      Posted

      Thank you so much.  Initially it was so slight but today it is burning like pain.  I'm going to try Aquaphor tonight.  

      Unbelievable sometimes, I get to my age with few health problems and then this.  

      Hate to tell everyone but I'm glad to have company.

    • vissy
      vissy mary09950

      Posted

      I also asked my gynecologist about it spreading into other areas and she said that yes, it can. So right now with the change in my diet, ( gluten, sugar and dairy free, as much as possible) and the steroid once a week and now I am using an estrogen cream twice a week to help with vaginal atrophy. This forum was a huge help in getting through the initial stages of this disease. The women are extremely informative, compassionate and empathetic. I am no longer afraid of the challenges ahead that may arise with LS. I also have a very reassuring female gynecologist!!! 
    • chicks
      chicks mary09950

      Posted

      I feel the same Mary, glad to have company and to chat to people who understand how we are all feeling.
  • deborah82032
    deborah82032 mary09950

    Posted

    I also noticed for the first time that I had irritation along the fold of my left leg. I thought it might be the elastic band around my underwere causing the irritation. I used Emuaid for a few days...better. Yes the LS can spread to areas outside the vulva.
  • LS_sufferer
    LS_sufferer mary09950

    Posted

    Hi Mary,  Just read your post which is very interesting, i to have been so sore myself & like you into the fold of my leg by my groin....went back to my GP last week.....low & behold, it's a fungal infection, have to say i was mortified, it made me feel really dirty, more than usual, so i'm now on an antifungal treatment of tablets for the next 28 days. I also found that my pubic hair seemed to be making it feel worse, as painful as it has been i've actually trimmed the hair right back, almost to the skin & that in itself has made a massive difference. It may just be worth a trip to your Doctor just to get it checked out, it could be something so simple, when i explained to her the sensation & feeling of burning, she actually said it was probably an infection before she examined me, she even got another Doctor for a 2nd opinion & they both agreed it's the fungal infection. almost a week into the tablets & the difference is emmense, a total transformation, try not to worry but get it checked surprised if only for your peace of mind best wishes lovely T 

  • Guest
    Guest mary09950

    Posted

    I also get pain here from time to time, also on my pubic bone (hair area) especially if I wear tight jeans, it feels like I've been kicked sometimes!! Gynaecologist didn't think it was related though, he wasn't very helpful at all so I've asked to be referred to see dermatologist, that was 2 weeks ago I'm still waiting for appointment!!! It's so frustrating.

  • mary09950
    mary09950

    Posted

    Thanks everyone!!  I've soaked a couple days and put Aquaphor baby paste with zinc oxide.  The irritation kinda went away.  I'll ask doctor next visit.

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