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LS spreading to new areas?

Posted , 8 users are following.

susan39248
susan39248

Hi there folks, I just wondered whether anyone has had the impression that the LS has spread to new areas since using the steroid treatment. When first diagnosed, not that long ago, I was not told the skin changes were also affecting the perineum, which they are now. It has apparently cleared up in the vulval area. 

Wondered whether this is just poor communication ( distinct possibility) or whether the LS is emerging in new areas, where it has not been suppressed. I used to use steroid creams on my face for Excema and I seem to remember that this may have been an issue back then.  

Thank you everyone :-) X

0 likes, 11 replies

11 Replies

  • debi14820
    debi14820 susan39248

    Posted

    Yes I've had my LS spread to my perineum too. I use Emuaid for flare-ups, but I'm not 100% sure it's helping. I'm thinking of having the Mona Lisa touch too.

    • lynne91510
      lynne91510 debi14820

      Posted

      Hi Debi

      I am very new to this only diagnosed a couple of weeks ago and still have not seen gyno and have most of my information from this forum. You mention the Mona Lisa touch. I was wondering what this means?? I haven't heard of it at all.

      Thanks

    • susan39248
      susan39248 debi14820

      Posted

      Hi debi

      are you in America? I haven't been offered Emuaid and haven't heard of the Mona Lisa Touch, what is it?

      thank you :-)

    • debi14820
      debi14820 lynne91510

      Posted

      Hi Ive had LS for 3 1/2 years. I use Clobetasol twice a week and Emuaid in the am for discomfort. The Mona Lisa touch is a laser directed probe that treats vaginal tissue. Hope this helps. Whatever people say here, follow what your Dr recommends. If you can get a Gyn that specializes in LS. Best wishes, Debi
    • lynne91510
      lynne91510 debi14820

      Posted

      Thanks, I am in Australia and had never heard of LS before the dentist said I has LP and the doctor then discovered LS. I am waiting for gyro appointment. Things move slowly during the holiday season.. I appreciate your information. I hope you continue to do well. 
    • debi14820
      debi14820 lynne91510

      Posted

      T hanks. Yes things are good right now. I thought I was having a flare up of LS near my bottom (not vag). I used Emuaid immediately and the symptoms are almost gone! I hope you are doing well too?
  • isabelle60667
    isabelle60667 susan39248

    Posted

    I was diagnosed about 10 months ago. My LS was so subtle to begin with that my vulgar dermatologist initially wasn’t 100% sure that I had it, until my clitoris and inner labia started shrinking rapidly. I’ve been using clobetasol regularly since and it’s gotten it under control in that area. Just in the last few days though I’ve had white patches appear on the outer lips and healthy skin above my clitoris. It’s happened so quickly it’s freaked me out and I’ve never had the white patches appear before. I wasn’t applying the clobetasol to those areas though so hopefully it gets it under control. If you’re experiencing LS in new areas I’d try and get ontop of it quickly.
    • susan39248
      susan39248 isabelle60667

      Posted

      Hi Isabelle, thank you for your reply, it is such a worrying health condition and as you say, it seems to change quite rapidly. Hopefully that means easy come easy go.  I have had little scaly patches on the mons pubis  and that is where I always had the itching. My GP/Gynae consultant ( same lady) says it can't be the LS in that area. Having read the NHS printout she gave me, which clearly states it can arise in other parts of the body,  I think she is wrong, so I am definitely going to get a private Dermatologist appointment.

      I have started using coconut oil around the whole area. There seems to be a lot of anecdotal evidence that coconut oil is great for all sorts of skin conditions, it definitely deals with the itching for me :-) 

      All the best for the New Year. :-)

  • isabelle60667
    isabelle60667 susan39248

    Posted

    Oops I meant vulvar not vulgar! It really is! It happens so quickly it’s very scary but I’ve found it can be treated easily when you have the right specialist involved. She’s been a lifesaver for me. I live in Melbourne, Victoria and the specialist I’m seeing works at the royal women’s hospital (they have a vulvar clinic) but I’m seeing her privately. I’ve found that a dermatologist is better than a gynaecologist, and if you can find one that specialises in that specific area even better.
    • susan39248
      susan39248 isabelle60667

      Posted

      Didn't even notice the slip ;-) 

      I think that you're right about seeing a Dermatologist, I have found a private one and hope to see her in January. :-) Happy New Year

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