Posted , 9 users are following.
I have been MIA for some time now on this group...
Unfortunately I still suffer badly from my LS.
What I have been doing these past months (years)...
Femilift - Co2 Lazer...started Dec 2016 every month and then to every 6-8 weeks. It does help even though it is painful and costly. It burns the skin off and I have about two days of recovery (that we call bed days in our house as it is very difficult for my husband and I to even try and explain to our two boys...now 7&8, about my LS when they don't even know what a vagina is)! I had a 3 month break end Nov 2017 to Feb 2018 and I could see how much worse it was from not going regularly. The Dr I go to had never before used it for LS when I started goibg and now he treats quite a few women with LS.
My skin is raw and peels and it is incredibly painful to wee in the first few days (when possible i quickly jump into a shower as it really helps by watering it down). Slowly over the next week or so it heals and pinks up a bit. I get about 3/4 weeks of itching relief which I am very grateful for! Then it is nearly time to start all over again...
I have had three stem cell surgeries (at age 38, 39 and now a month ago at 41). Also very painful (both in my abdomen where they remove the fat cells and where the injection sites are all over the figure of 8 area) and costly. I am fortunate in that my family has been so supportive and my parents have helped pay medical bills as my private medical aid/insurance doesn't cover LS in South Africa. That is a fight that needs to happen with the medical aids as they have to be shown that they have to recognise LS as a legitimate medical condition and not just making pretty...they think it is cosmetic as the surgery involves a plastic surgeon! Makes me mad!!!
In the last stem cell surgery I also had a procedure called Fenton plasty (spelling?) to widen the opening as my perineum had started to form a web of skin or a flap of skin... difficult to explain...(where I had a fatty lump removed last year...could be from a previous stem cell operation as they get the stem cells from fat cells or just bad luck).
Anyway, my Dr cut a large Y shape to remove the skin and to make it more comfortable for me to have intercourse (don't know the result yet as we are still 3 weeks away from being able to try)! The skin she cut away was sent to the lab for testing.
It was very painful as 8 stitches in that area is not comfortable and it pulls which is not ideal! I also developed a huge haemotoma (spelling?) on the one labia which was rock hard and so painful but thankfully has gone down a lot and is much better (the blood apparently takes about 3-6 weeks to be reabsorbed by the body).
I also do the Dovate ointment twice a week. I have not used any soap to wash with for 5 years now and even avoid shampoo/conditioner from washing down there by using a removable shower head. I don't bath at all (can't really as we have hectic water restrictions in the Western Cape). I am very careful about swimming and not staying in a wet costume, wearing tight clothing etc.
I am also on a mood stabilizer and I was taking an antidepressant with a pain killer attached to it (can't think what it is called) but have stopped that recently. It seemed to work for a while but not sure if it actually did or it just had a placebo effect?
I think I have Lichen plantus on the inside of my vagina as it is bright red (almost looks like red pen it is such an unreal colour) and LS does not go into the vagina...need to investigate that.
Anyway, I have gone into a few FB groups and found them useful but I haven't engaged a lot on there really. I think for a while I thought if I stayed away and ignored the messages and stopped constantly reading posts/articles it might just help me (like it might go away...hahahaha...not) but it hasn't so here I am...again!
I look forward to catching up with those who were on here with me before and meeting all the new ones...
1 like, 16 replies