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It’s been 9 weeks since my LS diagnosis. Through use of Emuaid Maxx, Emuaid regular, coconut oil, moisture barrier ( aloe vera with Vit A, D. E, when I was really raw, after every pee), and Baking soda in the tub, I have no pain or itching and things are calm. If I get a tingle or throbbing I do put a tiny spot of Clob on that area and rub for 90 seconds.
I changed my diet, wear cotton undies and use 100% cotton tampons and pads.
I added the supplements Nancy KB and I talked about and feel like things are in balance.
Now the bad news: My right labia is almost gone - no adhesion, no fusing, it’s just disintegrating. And my clitoris is almost completely retracted? Hidden? Disappeared? very little feeling there, can’t feel it anymore with fingers- in 9 weeks!!!
All my bloodwork came back and my thyroid is fine, cholesterol is good, no other auto immune issues, Estrogen is great ( still get my period every 28 days), liver is fine, but I have NO testosterone! This may explain why I am so exhausted all the time, I hv gained weight though I eat hardly anything, hv some depression/ anxiety ( thought that was due to LS diagnosis), irritability, etc. prescribed a testosterone cream for inner thigh or back of calf. I can’t take pellets or injections since I sing professionally and it can cause your vocal cords to grow and change my voice ( currently high soprano), not taking the chance!
Glad to hear that I don’t currently have any other auto- immune issues, surprised my thyroid is okay?( I was sure that was causing weight issue),
Very upset that my clitoris is basically gone ( testosterone may make it come back out), loss of feeling there SUCKS, and not happy that 1 labia is shrinking rapidly and other is still normal? This disease makes NO sense! Ugh!
But I hv no pain, no itching, I am able to work and function normally, I even wear pants occassionally.
I hope no more flares! 👍🏻
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