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Lucky white heather..!! who needs it? i have plenty of luck..unfortunately all bad....!!

Posted , 15 users are following.

IssyR
IssyR

Hi folks,

I need to pick your brains..I had a flare over the last month after reducing 5mg in 5 wks. My doc allowed me to go back up to 10mg and everything settled down again..NOW last Tuesday i took a terrible fall...just lost footing and down with a clatter, giving myself a cut and a huge bump above my eyebrow...lovely multi coloured black eye...i also cracked some ribs...my question is this do you think the inflammation from my head/ribs etc could have triggered off my PMR? as not only do i have the pain from the ribs i also feel my PMR is back with avengence...Aaaaaaarrrggh..!! P.S i'm only 52..!! feel like 100 

0 likes, 27 replies

27 Replies

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  • Mrs_CJ
    Mrs_CJ IssyR

    Posted

    I can relate to clumsiness.  Since being on Pred for my PMR this last 3 1/2 years I have felt like I have someone else's hands some days!  But I would like to say that as my Pred dose has come down (currently on 3 3/4) my hands have gotten better....so there is hope that things will return to normal at the end of all this.  I can grip things easier, with more strength....and fewer mishaps biggrin
  • FlipDover_Aust
    FlipDover_Aust IssyR

    Posted

    I'm 'only' 52 and I feel like I'm 100 too!

    I agree with Eileen (of course!) that it's most probably the (too) quick reduction that's set off the flare - although the stress of falling and hurting yourself (it's always a shock) won't help.

    • louisa85653
      louisa85653 FlipDover_Aust

      Posted

      Eeek and I am 'only' 53 - was 51 when diagnosed and felt quite despondent when my gp told me that people weren't supposed to get this until their 70s or even 80s!  Well, here I am! It helps to find others in the same boat! Trying to avoid stress as much as possible but not easy.  Mainly though I keep smiling and try to keep positive - I tell everyone I'm fine and sometimes I really am;-)
    • Daniel1143
      Daniel1143 louisa85653

      Posted

      Your GP should hop on this site to learn how wrong he is about when we're "supposed to get it."
    • louisa85653
      louisa85653 Daniel1143

      Posted

      Exactly! It would have helped me so much if I had found this site two and a half years ago when I was first diagnosed.  It really upset me at the time.  I pushed to get an appointment with a rheumatologist and am so glad I did. I only see him very infrequently though - last time was end September and it was supposed to be end March but was postponed to end May.  I have a huge list of things to talk to him about and having been on this site feel a lot more confident about what to ask - will keep asking questions on the site to cover bases and hope to help others along the way too.
    • Tastyron
      Tastyron louisa85653

      Posted

      I'm 59 and according to my Rheumy I am very young to have PMR. She also thinks that dropping 10 mg in 4 months is way too slow. I just tend to nod and go my own way anyway. Thanks to this site. I think that I know more about tis condition than she does. To be fair to her she has to know about a lot more differing illnesses than I do. 

      Keep smiling.

      Ron

    • IssyR
      IssyR FlipDover_Aust

      Posted

      I already had a flare through reducing too quickly which was remedied quite quickly (2days) with an increase in the pred back up to 10mg...it's after this was sorted out i fell...today don't know what's giving the greatest pain the ribs? or the PMR? one thing during the flare i had real problems with my feet and thankfully that hasn't come back...Do you think if we wrote to the Queen and said we felt 100 she'd send us a telegram lol xx
    • EileenH
      EileenH louisa85653

      Posted

      The "average age of diagnosis" is 73 - that does NOT mean people don't get it until then. If only doctors would learn what average, median and so on - there are a lot of people under the age of 73 to get that figure as the incidence in over 70s is pretty high.
    • FlipDover_Aust
      FlipDover_Aust EileenH

      Posted

      Absolutely. However, here's some stats "I prepared earlier" (actually I didn't, but hey.... no wonder they don't hear of it in people in their 50s very much! 

      ....[prevelance rates for PMR go] from 21 per 100,000 among persons ages 50–54 years to 4,070 per 100,000 among those age 90...

      just sayin... lol

      years)

    • EileenH
      EileenH FlipDover_Aust

      Posted

      Why do they not get that there aren't that many 90 years olds and many of them have PMR - so the prevalances are skewed?

      And that you won't see PMR in under whatever age if you aren't looking for it?

    • FlipDover_Aust
      FlipDover_Aust EileenH

      Posted

      yes, I was attempting to work that out but gave up...I'm interested, but not that interested!
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