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stephanie73169 stephanie73169

lumbar puncture procedure - headache still after 3 weeks


I've seen a couple of posts regarding this and wanted to see if anyone had clear advice on what my next step would be.

A summary of my story is;

I had a lumbar puncture 3 weeks ago (nearly 4 now) to test for meningitis. It came back clear and my other symptoms have improved but since the procedure I'm suffering from a severe headache and it's something completely different to any headache I've had before. I have dizziness, vomiting, extreme pain behind my eyes and top of my head, I get really hot and it feels like my ears are going to pop. The only relief is lying down. I can stand for short periods but the severe headaches come back. I've been back to the hospital 4 times now, I've been refused a blood patch as they've advised it was too late to do this procedure. The headache appeared around an hour after the procedure. The top of my neck gets really stiff and achy too. I don't usually get headaches.

I was readmitted back to the hospital and put on an IV saline drip and also paracetamol via a drip too. I had been given 50mg of Sumatriptan which has helped slightly. I've also been put on oxygen and aspirin in hospital too.

My symptoms are improving very slightly but I'm still unable to work. I've been off work now for a month and really need to get back to work as I can't afford to be off. I also have summer plans coming up that I need to be fit and well for. I'm struggling to get back to normal as twice ive tried to walk the shop and ended up vomiting and being in severe pain.

I've been referred to a neurologist as the hospital are useless and advised that they don't know what's wrong as if it was a post lumbar headache it should have gone by now. I think it is still a post lumbar headache. I've tried caffeine too. I do have a low bmi and it says online that it's common to have this side effect of the treatment.

Can anyone advise what was helpful, ive seen someone mention botox - does that need to go into your spine? I'm prepared to do absolutely anything to get back to normal.

Thanks in advance for any response on your experience that you can provide

114 Replies

  • kyle35847 kyle35847 stephanie73169


    I saw this post scouring the Internet and wanted to contact you to see what your outcome and progress has been?

    My wife had an epidural for childbirth which sadly led to spinal headache (dural puncture). She had a blood patch done which sadly failed. Hospital numerous times like yourself got us completely nowhere fast besides multiple deductibles and hospital fees. She takes fioricet and ibuprofen to help dull the pain but has headaches constantly that keep her bed bound and in tears. I'm hoping you can provide some wisdom since it appears you had/have the same issue. Pain management specialist suggest Botox but don't know the full details either. Please help if you can at all. Thank you very much for your time.



    • stephanie73169 stephanie73169 kyle35847

      Hi Kyle

      I'm so sorry to hear about your wife having this problem. Tell her I sympathise with her pain! Though having a baby at the same time, that must be even more difficult.

      Firstly, the doctors kept advising me that it was something else rather than just a post lumbar puncture headache, as they advised it usually only goes on for over 3 weeks, but this is wrong, though I'm not a doctor, I did research this and found out a lot of other people had the same problem. It also happened to my cousin. There is also a risk that women between the ages of 18-30 are likely to suffer from this, also another factor that puts you at risk is a low BMI (I am 25 and have a BMI of 18.1 so I was in that risk category).

      The first thing to get the hospital to check for is that your wife is not dehydrated as that makes the headache worse. Also most normal headaches you are advised NOT to have caffeine, though with this type of headache I was told to drink AS MUCH caffeine as I could (not sure if this is an option for your wife, as if she's breast feeding she may not be able to do this), however if she is not breast feeding then get her to drink coffee and red bull or full fat Coke.

      I  was also prescribed medication called Sumatriptan 50mg (this was only after around 2-3 weeks of the severe headache that I was given this), you're only allowed to take 1 tablet a day and ideally you need to take it as soon as you wake up, as it's most effective before your headache is at it's worse, as it's meant to treat the headache 2 hours before it starts. I believe this medication did help me.

      The first time I was hospitalised with the headaches I was put on a drip and given Paracetamol and 2 bags of Saline to rehydrate my body, however a few days after coming home I felt exactly the same. The next time I was hospitalised they put me on oxygen, gave me Aspirin (as this is also meant to help)  and gave me 1 dose of Sumatriptan 50mg (this is used to treat cluster headaches and migraines - I have never had a migraine before just so you know). They sometimes give this medication via a needle punch which is similar to what diabetics have. About 30 minutes after having this tablet, I walked around for the first time in 4 weeks without having a headache (and it's not just a headache, as I'm sure you've seen with your wife - it's difficult to see as your vision blurs and is sensitive to light, you're dizzy and unbalanced, and the intensity in your head is unbearable to the point where you're crying and nothing will help it. I'm not sure if your wife has had vomiting but if I stood for over 5 minutes I would vomit).

      As I could walk around after taking this medication, the hospital discharged me but it unfortunately came back the next day and was just as severe. So I ended up back and forth to the hospital, each time to come away with 1 week's worth of Sumatriptan 50mg and Codeine 30mg (though Codeine can cause headaches after prolonged use so these may be OK at first but then I would advise to use Aspirin once headaches aren't as severe).

      My current progress / situation is that my headaches have now gone (I had the lumbar puncture early May), I get a slight headache from time to time but that's normal and it's not how it was. It took around 6 weeks overall for me to feel completely normal, during that time however it felt like this was never going to happen.

      Other information which may be of use to you, after I was diagnosed with post lumbar headaches, I was told to lie straight and flat as much as I could, drink lots of fluids including lots of caffeine, take the Sumatriptan 50mg and after a week or so then to try to gradually walk around. I did this and over time it helped but it was a very, very slow process (I lay flat for a week, I could then stand for maybe 30 mins-1 hour and it would return, but over time I could stand for longer periods of time). After around a week of being able to stand up for around 3 hours at a time, I did have... (probably not recommended however I want to be fully truthful to you, to be able to help your wife)... a cigarette of majiruana given to me from a friend, which sounds mad but after I had that, that was the very first time that I had a full 24 hours of no headache at all. I did have a 2 more after that (though it was difficult as I don't smoke) over a period of 1 week and I'm not sure if this contributed to anything or whether it was just over time it got better - and it may sound crazy that I did that but I was at the point where I'd of tried anything to make me feel better.

      By the time I received a hospital letter from the hospital for an MRI and CT scan, and also a referral to a neurologist, the headache was gradually getting better, so I met with the consultant who advised to leave the tests and see if it continued to improve, as I wouldn't have shown signs of improvement if it was going to get worse.

      My advice would be to try any of the suggestions above (not telling your wife to smoke weed or anything! I just wanted to be honest that I did that to see if it helped, under a friends recommendations - but the other points I would advise her to do) as you may end up paying loads of money for various scans and treatments, as Doctors say there may be something else going on, only to then find out is all it takes is pain management medication and time for the fluid to restore in the spinal block. A consultant did explain to me, when you have a needle in your spinal block (at the end of your spine) then fluid can leak out which causes an empty pocket, therefore when you stand up, the fluid from your brain leaks down to your spine to that pocket, so the pocket is filled up (rather than just flowing around the head and spine as normal with no empty pockets). Also because your brain is so sensitive and the fluid is travelling down your spine, your head notices that the fluid isn't there protecting your brain anymore, therefore the severe headaches occur. They also explained that the fluid in the bottom of your back is only replaced gradually over time (however it's not back to normal in 2 weeks as they advise you!) and in the meantime you are completely immobile. They do not explain the severity at the time of having these procedures, but these side affects can happen. Everywhere I read it said you would be normal again in 2 weeks and this wasn't the case for me, or my cousin. Though I am small and don't weigh a lot, this did increase my risk of having the post lumbar headaches.

      I know how your wife feels so please pass on my concern (and congrats on the birth of your child) and advise her that though she may not feel it, there is light at the end of the tunnel and she will feel normal again. At the time you don't feel like you ever will, I never thought I would resort to smoking marijuana (and hyponsis! - a friend tried to hypnotize me too though it didn't work!), but I felt that I would never get better.

      I would say it took 6 weeks in total to start to feel normal. I did hear of a procedure that you can get botox injections in your spinal block to fill up the empty pocket, but to save your bills and also risk of infection with this procedure my advice would be to firstly to try the Sumatriptan and caffeine and tell her when it's bad to lie flat as doctors advised me that when you lay flat the fluid isn't trying to fill the pocket so you feel better when lay down.

      I really hope this helps you - I never got any responses from my question! I was desperate so I was researching everything so I really hope my response can be of any use to you. Let me know if you have any questions.

      And ignore Doctors when they say it's not normal to have this still after 2 weeks, my cousin is also small in height too if that helps.

      Kind regards, Steph 


    • dawn55882 dawn55882 stephanie73169

      Hi Stephanie,

      Just wanted to say thanks for your post and reassurances that the pain from Post Lumbar P headache will eventually go away - (hopefully - like yours after 6 weeks)

      My daughter is suffering still after three weeks - it's awful to see a fit 30 year old turn into a wreck - and she is getting so unfit and depressed and can't do her career which demands physical effort .

      She is at the stage of being able to walk a bit but as soon as she attempts any effort physically - even Pilates on her back ! the headache returns -

      Wondering if there is a slow leak ???

      Anyway your posts have given a ray of hope that she will mend enough to return to her job before it's too late and she looses her job .

      Best wishes for a healthy happy life

    • CrissyMo CrissyMo kyle35847

      How is your wife now? Did she get better? I truly hope so.. I'm going through a similar experience, I'm 4 weeks pp & had a c-section with spinal. I got the spinal headache & had a failed patch. Decided not to redo the patch & now I'm regretting that. I'm terrified that this is my new life! Please let me know how she is doing & send her my kindest regards!


  • chris04435 chris04435 stephanie73169

    Hi,  I recently went through the same exact thing.  I was wondering if i could compare my headaches to what you were feeling.  It's been a little over a week since I had the lumbar puncture and about 5 days since the blood patch.  I can now sit up in a chair and walk around somewhat ok but i get the really tight neck pain with a headache mixed in.  Sometimes it dissapears for a few seconds then comes back.  Were your headaches bad to the point where you couldn't stay standing at all?  just looking for a benchmark or something to go on.  Doctors here just keep telling me to give it time.

    •  KMRC KMRC chris04435

      Sadly, docs mostly recommend time in these types of headache.  My blood patch worked but I thought I was having an aneurism post spinal tap.  I have migraines and cluster headaches but they are easy next to the post spinal one.  The docs let me suffer for four days before I was taken to the ER, where they did the patch.  Worst headache of my life.  I cannot imagine what I would have done had the patch not worked.  Hang in there, don't bend over or drive while this headache is going on.  The lady with the newborn, she is a saint!  I couldn't take care of myself, much less a child!

    •  KMRC KMRC

      Chrissy Mo,  It was you I was talking about!  I hope you have reliable family and friends to help you during this time.  The c-section is hard enough to get over but having that horrible headache.  Take extra care of yourself and take it as easy as you can.  I sure hope you have an abundance of folks to help you.  (You are going to owe lots of favors once you are well!)

    • CrissyMo CrissyMo KMRC

      It was very hard. My headaches lasted 8 weeks before finally going away. Unfortunately, I developed a staph infection at 6 days post partum & had to take 1600 mg of Bactrim a day for a week. Since then I have not been the same... Dizziness, palpitations, nearly fainting. Man, this has been a nightmare!! Thank you for your kind words! These headaches do take TIME, for some.. A very long time.

  • chris83078 chris83078 stephanie73169


        After my LP I had the worst headache ever. I was told that I'd be ok after lying flat for the 4hrs the Dr stated but the hospital staff did have me elevated slightly after an 1.5hrs and I wonder if this has contributed? Anyway headache was awful upon discharge, so much so I went straight to bed. Paracetamol did nothing...only a cold compress. I tried to contacting hospital & Dr afterwards but they just referred me to each other and I really was left to pick up treatment myself. I could see that many took at least 5 days to resolve, which mine did just about although I'm still very lethargic and have mild-moderate tinnitus and the odd 'stabbing' head pain. For me it's been nearly 2 weeks and I'll be back in work Monday...hopefully with more improvement. I didn't find caffeine did much. A query I have though is my BP spikes occassionally and I have the pressure in my neck/head which is of concern. I hope those that have suffered longer will recover with time. Regards...Chris

  • phillybub phillybub stephanie73169

    So sorry to hear about the headaches , I had a lumbar puncture 4 years ago by s junior who took 30 mins of horrendous pain until I passed out .

    Your meant to lay flat for 4 hours after it but they say me up within 10 mins, needless to say the head pain was unbearable , I walked like crab , vomited, light and smell sensitive and thought my head was going to explode, being in the medical profession I knew something was wrong , I was discharged home after a week still in agony with my head , I went to bed with a cool strip on my forehead , 2 ibuprofen and 2 paracetamols all together , removed my pillows and laid flat for 24 hours only getting up to visit the bathroom , and it cleared my headache , laying flat allows the fluid to reform and gives your brain a chance , hope it works for you aswell as it did for me

  • DarkBison DarkBison stephanie73169

    Hello there, I stumbled upon this thread while googling my symptoms and I thought that I should share as well.

    I'm 26 years of age, 6'6" and weigh 425 and I've had a LP about nine days ago and was not able to sit up or stand the next day after the procedure. The pain in my head was beyond unbearable, so I had to stay lying down for about a week. The pain has subsided for me on the seventh day and I am now able to sit up straight without any headaches. However when I get up to walk from a sitting position and walk around the pounding pain can sometimes be felt in the back of my head that last for a few seconds. From reading what you posted above it could be normal for this to happen weeks after an LP.

    I've been to the hospital and had a CT done with neg results, so I'm guessing I'm in the same boat as you all with the residual post spinal headaches, my neuro says I shouldn't be having headaches from the LP this long, but I beg to differ seeing as I haven't had these symptoms till the LP was preformed. Will be seeing my primary care doc tomorrow, and will keep you all posted on what he says/do. 

    Stay possitive everyone, it gets better, I can vouch for that. Just keep hydrated and try not to bend your back so much and to stay in a supine position as humanly possible. Hoping to whoever is suffering from this to get well soon.

    • CrissyMo CrissyMo DarkBison

      Your doctor will prescribe unnecessary drugs. Don't damage your body with them. My headaches lasted 8 weeks... Doc said it wasnt spinal.. That maybe the stress of the spinal triggered me to have a residual headache. Lmao. Yeah right. I have 0 history of headaches or migraines. They will go away, but in rhe meqn time... Magnesium is a NATURAL relaxer & pain reliever. Give it a go.

    • DarkBison DarkBison CrissyMo

      Yeah, my neuro wanted to stick me with needles into my muscle, but I don't want anymore big needles being stabbed into my body. But my doc wants me to do a Sleep Study to see if a lack of oxygen at night might be the cause of the head pain in the back of my head.

    • CrissyMo CrissyMo DarkBison

      You will be in my prayers. I suffered for 2 months with the headache (mostly in the back of my head). Finally, it just went away. I was so stressed out, crying about it. I was so afraid it was my new life.. I already have tons of issues. I didnt need one more.

    • AmaiNeiko AmaiNeiko DarkBison

      How are you doing, did your headaches ever go away completely? I'm scheduled for an EMG with my neurologist in a a little over month for some nerve issues post taking ciprofloxacin. I've also been told I have mild obstructive sleep apnea and need to do a cpap fitting but I don't know if I can do anything with how bad these headaches are. Will they ever go away completely?

  • damien 53945 damien 53945 stephanie73169

    Hi I had mine done 3 days ago started to get really bad headach hour after I got home really bad if I ly down they go but soon come bk I can't stand for more than a hour and they put me on codine for the pain witch don't work

  • AmaiNeiko AmaiNeiko stephanie73169

    Hi, I recently had a lumbar puncture on the 10th of October 2016, so it's been just a few days since. The headaches started the evening of the 11th and have been getting worse. I have intense pressure like in the sinuses, behind my eyes, and back of my head. Dizziness and nausea, and it hurts especially worse in the back of my head when I cough or sneeze. I have intense pressure and pain trying to push when I use the restroom. I get slight relief when I lay down. I'm too scared to get a blood patch because I'm already have nerve issues and do not want to chance any more complications. I weigh 184lbs for 5ft I am obese. I'm scared this will not go away because my doctor said he's seen patients who have this last for months. I'm trying to stay hydrated but use the restroom frequently when I drink too much. They gave me Tylenol with codeine but I do not want to depend on it much and would rather take extra strength Tylenol. Im seeing a neurologist in Dec. for EMG testing, for other reasons not the headaches and a rheumatologist on the 25th this month again for other reasons.

    I'm sharing all this in hopes for tips on how to increase my chances of healing. I read it could last up to 6 weeks then another person who's had it for 8 weeks. Anybody ever have it last much longer? I don't want to be dependent on pain killers everyday for the rest of my life for these headaches.

    • P3ACHES P3ACHES AmaiNeiko

      I had mine done on October 11,2016 due to severe headaches. My question is did the Tylenol with codeine work? Lying down there is just a ache and nausea , but o boy don't let me stand or sit too long! They told me that I shouldn't experience the headaches because I laid flat for over 2 hours afterwards!!!

    • AmaiNeiko AmaiNeiko P3ACHES

      Sorry I haven't taken it just extra strength Tylenol. If you have trouble sleeping and want the pain relief then it would work for that. I have the neausea and aches too even when I lay down. My doctor/nurses basically said the same thing they only said to lay flat for 2 hours otherwise I'll get a big headaches, hey nevertheless warned me that  days later I'd be stuck with these severe crippling headaches. I spoke to a friend and she said she had a difficult spinal tap done when she was 18 and it took 6 weeks to heal. During that time she was told to consume as much caffeine as she could to help heal the tissue around the spine or something like that so she drank Mountain Dew, green tea, and ate chocolate covered coffee beans the whole time with bed rest. That has made me a little hopeful but then I've seen others who say they've been suffering for 4 months to 2 years and it scares me.

  • desmond74976 desmond74976 stephanie73169

    Morning Stephanie. I had lumber puncture a week ago. And ever since I've suffer from sereve headache. I been to hospital stopped in 4 days. Headache still the same. I've been discharge as doc say it will get better in couple of weeks. What a joke

  • karen 25975 karen 25975 stephanie73169

    Hi I got lumbar puncture five months ago and a blood patch eventually five weeks ago still suffering with headaches lying flat writing this I get maybe two ok days then back bad again it seems never ending now

  • hannah06096 hannah06096 stephanie73169

    Hi. I have recently had a lumber puncture, to test for meningitis and 1 week on I am suffering from severe headaches, sickness, dizziness. It is terrible!!! I have been giving paracetamol, 5l of fluids and I still feel rotten. I can't stand up for longer than 5 minutes without fainting! Can anyone advise...I have been in hospital since Saturday I came in via the ambulance and they want to discharge me tomorrow as there is nothing more they can do. I feel terrible and no better than I was when I came in. Can anyone help on what I can do? I feel absolutely rotten and nobody has any answers.....HELP sad

    • desmond74976 desmond74976 hannah06096

      Hi hannah I know exactly how u feel. I had this procedure in September 16 for headaches. I was in complete agony .like you I could not stand up.dizzy all the time. I was admitted to hospital the following day as was getting worse. I had all test all clear. They sent me home with paracetamol and said I would be better within 4 weeks if not they would do a blood patch with is same procedure they just put back in you what they took out.but within 4 weeks of rest and plenty water iwas fine.I know it scary that you feel the way you do but trust me it will pass.let me know how you get on .get better soon

    • chris04435 chris04435 hannah06096

      If they make you go home just plan on laying flat for a long time. I had my back punctured a few times but for me it took about 2 solid weeks until I could stand. If it doesn't ease up after a couple more days you could get a blood patch but it'll seal

      Up soon.

    • hannah06096 hannah06096 desmond74976

      I feel rotten! I collapsed on Saturday and had to get ambulance had no idea what it was I keep fainting I have been in for 3 days now and want to send me home tomorrow. I have heard that the blood patch helps. I can't go home the way I feel, I physically can't stand up I have just laid here for days it's terrible. Thanks for your help everyone smile

    • lindajp6 lindajp6 desmond74976

      Did you get gradually better in those 4 weeks or just felt better at the end? I am on week 3 and miserable. Had a myelogram and next day severe headache and nausea. Been hospitalized two times, they want it to seal on own. Gave me IV caffeine. Twice they were going to do blood patch but felt high risk since I have a spinal implant and cancelled patch.  Ringing in my ears is so loud, also hurts where puncture done. I just feel like this will never get better. 

    • chris04435 chris04435 lindajp6

      For me, I felt the same until I woke up one day and could stand. I babied myself and took it slow but it just seemed all of a sudden. My ear ringing lasted for almost a year. It comes and goes but was really bad early mornings lying in bed on my side. It will get better just takes some time.

    • lindajp6 lindajp6 chris04435

      Thank you for letting me know how it was for you. I am so discouraged because I felt it would get better gradually and I am not. It does make sense it would be better all of sudden, since it seals then. Did you lay flat on your back all that time?  They didn't tell me to lay flat on back, just bed fast..I have been laying on side, I am wondering if should try to lay flat more. 

    • hannah06096 hannah06096 lindajp6

      Hi, had my lumber puncture last Tuesday and I am still having symptoms. I was great the day following it then things for really bad, I was in hospital for 5 days. Had oral morphine and 5l x of Iv fluid. I definitely do feel better than I did but definitely not right...dr said can take a number of weeks. Still very dizzy, only resolves when I lay flat and. Y head just pounds 24/7-nothing really helps. Refused to do anything, just said I have to be takes time! Could feel like this for another couple of weeks sad absolutely terrible xx

    • Christinacph Christinacph desmond74976

      I had same problem as you in 4 years now fainting everyday day and cant get any help at all and hospital denies me more bloodpatch. Not to make you scared just telling you I am in same boat and no idea what to do. Hope anybody can help where to get/buy a bloodpatch more?

  • steven 93256 steven 93256 stephanie73169

    How long did it take for you to recover fully because my girlfriend is having The same exact symptoms as you had?

    • traci26367 traci26367 hannah06096

      Hi Hannah, how are you now? I'm at Day 7 post lumbar puncture. Much better than days 1-4 but really tired of not being able to do much! I'm thinking about just getting the blood patch to speed up healing (hopefully). Did you ever get the blood patch? If not, how long in total did it take you to heal? Do you feel that you've fully recovered? I'm worried about long lasting effects (continued slow leak of csf)

  • lynsey0838 lynsey0838 stephanie73169

    Hi guys, has anyone experienced this after a c section? I had. A spinal then ended up with a spinal head ache

    Refused blood patch due to risks but now 11 weeks in I've got extreme dizziness and feeling sick

    I've had MRI and ct scans done and all normal I'm petrified I'm going to be like this forever and now on anti depressants

    I have a 4 year old son and an 11 week old baby's

    I'm so so scared

    Please help ...

  • jeannie94279 jeannie94279 stephanie73169

    I just had a baby 2 days ago, after epidural I've had this brutal headache in my neck/head, I got the blood patch done yesterday at 3 pm, I thought I was cured right after like they said I would. All night it was great! Today I woke up and gradually it just came back and I'm right back to just laying down, 😢 crying , cant even help take care of my own children. Found this discussion and now it feels so hopeless.. Soooo nothing gonna fix this huh?! Just weeks and weeks and hope.... Not good.. 😢

  • lynsey0838 lynsey0838 stephanie73169

    I get burning through roghy through my body it makes me so angry all of this

    Yes I can't look after my children too

    The hospitals are refusing to say it's anything to do with them

    I was a fit healthy lady before this and now I'm a sad depressed lady

    Who is so scared

    • jeannie94279 jeannie94279 lynsey0838

      That would seriously suck, I have to go back to work in June, thats in 8 weeks. This better be resolved way before then..

      I'm sure you've tried everything to make it go away too huh?! My friend was pretty much giving me a deep tissue pressure point massage in my neck, behind my ears and it helped a lot.. but of course it hurts again now.. =/

    • lynsey0838 lynsey0838 jeannie94279

      Yes I've tried absolutely everything

      Cranial therapy too which like u haleped at first but now nothing

      I'm at the end of my tether and I'm so friggin scared

      How on earth can they do this to us and not take responsibility for it

      I think it's woes as they can't physically see our illness whereas if we had a broken leg it's Ben much easier to diagnose

      Life is just so poo when it should Ben the best time of my life

      I've waited 15 years for my 2 boys, both ivf and now I'm like this

      I hate the person I've become and I hate the man who did this to me

    • jeannie94279 jeannie94279 lynsey0838

      Just do the blood patch*

      I think my neck pain went away after the second blood patch last night, when I was rushed to emergency room with extremely high blood pressure and the pain was just too much to handle.

      I say just do it!

    • jeannie94279 jeannie94279 lynsey0838

      The first failed, after 12 hours the pain was so much worse. Had to do the second one and was told to lay down for 24 hours straight. Woke up this morning, still got pains in my back in between my shoulder blades, not as much in my neck but I have a feeling its gonna come back =/

      so here I am Day 6 after giving birth to my son.

    • lynsey0838 lynsey0838 jeannie94279

      Oh Hun I feel for you this is horrendous

      I totally understand

      I was admitted on 2 separate occasions after giving birth

      This is why I refused it in the first place but now wishing I had it as dizziness is so unpleasant

      Are you feeling dizzy?? And will they do it again if this hadn't worked

      I'm praying for you that it will and you can be a proper mummy like you wish to be it's so unfair

    • jeannie94279 jeannie94279 lynsey0838

      My blood pressure went super high so they admitted me for 5 days thinking it was some kind of preeclampsia thing, they didn't realize the pain in my neck was so bad that it made my blood pressure high, so they filled my lungs with fluid (unnecessary) and I had to stay there for 5 days . went home with the same pain I went there with and no pain relief =/.

      But I drank Lipton Tea (2 packets at a time) for 2 mornings and called my stupid doctors office for some pain meds and one morning I woke up with No pain..

      So I guess since I was admitted, all I did was lay flat, with either NO pillow or the flattest pillow and I guess it just sealed back up.

      So after two blood patches and laying flat as possible for days and days, caffeine might have helped and 14 days the pain has stopped.

      Still recommend getting the blood patch.

    • lynsey0838 lynsey0838 jeannie94279

      Would you say if you was me to get it? My head is battered with "shall I Sharnt I"

      The hospital have left it up to me

      I'm worried about the long term effects (if any) if I don't get it

      But now I'm 14 weeks post partum so would it still work?

    • jeannie94279 jeannie94279 lynsey0838

      14 weeks with the spinal headache is unimaginable =/

      I would have gotten the blood patch so long ago because all they do is take ur own blood and put it in the hole where ur epidural is and it is supposed to help clot and seal the hole. It doesn't hurt at all, easier than epidural itself and maybe since I got two in a two week span it pushed for a sooner recovery.

      I have spoken with so many ladies that it happened to and they all went from a day of pain up to months of pain, but the blood patch helped all of them* so yes I would say do it*

    • lynsey0838 lynsey0838 jeannie94279

      I've been on diazepam and that's taken the dizziness away so I've stopped them to see how I am

      My neck is still very sore and pins and needles in my arm

      The lights in shops hurt my eyes but I'm just trying to cope with it all

      The headache has gone but my ears hurt now and again

      I'm just so scared of getting it done incase it makes me feel worse

  • melanie86985 melanie86985 stephanie73169

    Hi Stephanie, I just saw your post looking for anything to help my little on 6 1/2 yrs old she had SP (I guess Drs think it sounds better than Spinal Tap) Her nurologist told us she could get the headaches but they would go away in a couple of days. After about 5 days they seemed to have been gone but now they are back and they are horrific as you well know. She had her LP  4 weeks ago. Well she is still having them. Laying down does help but its hard for a 6 yr old to want to lay down so she gets up to play a little then lays back down. But after reading your story I forgot the doctor did say drink coffee and she love it so I am going to try that. She goes back to her Dr. tommorow to see if its normal. I did just read her test results of her Spinal Fluid and her glucose was low 48... Now Im trying to make sure that isnt from something. But she sure is eatting an starting to show. I have to watch now and insure she doesnt eat the wrong things and how much. Thats hard also.  However the more I read it sounds like it is.  I am happy you are feeling normal again. Man this has been a nightmare. It makes me almost cry seeing her hurt so bad.  Well again I am happy you are some what back to normal.

    • susan32695 susan32695 melanie86985

      Hi there,  my 9 year old son had a LP three weeks ago, and his headache developed 48 hours after the procedure.  The headache had been very intense when he would stand or sit, but that gradually improved. He's able to move around, but has this constant headache.  The doctor said they do not do the blood patch on kids, and to use tylenol or advil, which has no effect on the pain.  After some time, the doctor prescribed Napoxen, but it hasn't helped at all either.  It is very frustrating.  It is also difficult to see a healthy nine year old boy miss school and baseball games because of the pain. We head back to the neurologist in a few days. What a horrible thing this is. 

    • emrnewell emrnewell susan32695

      I am so sorry your son is going through this! My 14 year old daughter had a spinal tap on Feb 3rd of this year. Previously she was an extremely fit year round endurance athlete in swimming and running. She actually ended up having influenza A but the rapid swab was negative so they tested her for meningitis. That was negative as were all other tests so they ran flu swab one more time and lo and behold she had the flu. The flu came and went in a few days but she developed the spinal headaches 48 hours after tap. Hers were horrible to say the least. Could not even sit up without vomiting. Hospital asked us to wait one week due to being young before having blood patch to determine if her body would heal in its own. She did not so she had the patch 8 days later. It took and was amazing but when she was released to begin activity a week after patch she blew it. Spinal headaches were back. Not as bad as before but definitely back. Waited two weeks this time to see if it resolved itself. Not only did it not resolve but she developed a temple headache that was permanent rather than positional on top of spinal headache. Hospital did a second patch and that took again but temple headache remained. They thought it was just a virus or sinuses so just said to watch it as it should go away in its own. Two weeks later this time she attempted a return to activity after blood patch despite having permanent temple pain still and blew the patch AGAIN!! That led us into our 3 month long journey in and out of two different pediatric hospitals, imaging studies, and 3 different neurologists. Everyone wanted to treat her as a migraine patient. Drug therapy after drug therapy. That created even worse symptoms and she was a mess by the time they were done with her. Now she has SI Joint inflammation tied to drug therapies, permanent temple pain, and residual spinal headache when leaning over or getting up too fast. HOWEVER... here is the good news...try acupuncture! I have never been a believer at all. Honestly... never! However, in desperation we tried it by a recommendation from a friend after the back flared up. I'll tell you what... they got her off all meds except magnesium in TWO treatments! It is no joke!! Apparently in kids it works much faster/better given their young systems and as they treat with needles they are correcting the nerve messages (in ancient Chinese medicine it is called the qi or "chee"wink. I am still somewhat of a skeptic but my daughter went from a disabled hot mess who could barely get through a single school day from all of this to a somewhat happy teen again with only low level (1 on scale of 10) headaches and mild discomfort in lower back. She is not out of the woods yet but we can actually see light at the end of the tunnel! It may or may not work for your son but it is definitely worth a try! I wish someone would have recommended it to me two months ago. Find a Liscened Acupuncturist that truly knows what they are doing though and give it a go. You might be pleasantly surprised...

    • emrnewell emrnewell lynsey0838

      No. Better after each one. 2nd patch did not resolve the temple pain at all but did spinal headache. Both just did not hold aftercreturn to sports. It was really the hospital and Neuro attempts at stopping the headaches via medicines (both IV and oral) that sent her into a horrible downward spiral versus improvement.

    • lynsey0838 lynsey0838 emrnewell

      I just can't make the decision if to have this or not

      My heads battered

      My headache has gone but still got dizziness pins n needles and sensitive to lights

      I've stopped diazepam now to see if symptoms come back then it'll make me decide to do it

      I'm worried if I leave it that it'll not heal itself and leak forever and the long term leak will cause problems

      But I scared to do it incase I'm worse

    • emrnewell emrnewell lynsey0838

      The blood patch really did help and both times we thought it healed her... with that said, if you do opt to do the blood patch I would definitely recommend a couple days of bedrest followed by a good month of physical activity/exercise restriction. Anesthesiologist both times told us not worry about bedrest and only need 1-2 weeks of activity restriction but that proved to NOT be long enough.

    • emrnewell emrnewell lynsey0838

      Also, I am very serious about recommending giving acupuncture a try! I was SHOCKED with the results but it is worth it and non-invasive compared to epidural blood patch. We actually found research studies online as well on a few individuals that were treated with acupuncture for post dural puncture headaches with acupuncture and fully healed on their own quickly by doing so.... it is seriously worth a try!

    • emrnewell emrnewell leftyraguza

      Yep. My daughter still has lingering symptoms that come and go. Each day is better though and some days she only has one or two moments of symptoms throughout the entire day. Hers is just moments of head pressure and nausea now. I have read several other stories of people that have said the same... just takes some people several months to fully seal and get your csf levels balanced again. I wouldn't be overly concerned yet but definitely take it slow and rest as much as you can until it all passes. My daughter is a runner and swimmer so this part is KILLING her but we finally learned that patience is key here. Stinks but your body will start to heal itself if you give it time. Acupuncture gave her a huge boost in the right direction though.. I'd say she is about 85% recovered now. Hopefully in a couple weeks she'll be good as new. 🙏🏻

  • leftyraguza leftyraguza stephanie73169

    hi Step,

    just really want to know if you feel any better and how long did it take? i had lp on 3-28 and got a leak.  blood patch was done mins after the headache occured.  symptoms went away and came back 3 days later and i still have headache not as bad but i feel mentally foggy, me eyes are different (almost like blurry but not so much really cant explain except that it is different) my neck is so stiff and when i move my neck i can hear it (liken it to sand or hair rubbing together).  i went to er and they pretty much said go back to dr that messed you up.  i did get a liter of fluids and caffeine drip. symptoms did not move.  i went back to dr and had a 2nd blood patch and still pretty much the exact same,  i  really hate them going into my back but if i could hear that these symptoms will go away from someone else besides my dr i think i will feel better.  my thing is i dont want any long term effects because i am walking around leaking.  it will be a month since the symptoms returned from the 1st patch and i have no relief from the second blood patch.  so sad you go for help for one thing i create a bigger problem and then you have to practically beg for help after they mess you up!

  • danielle91537 danielle91537 stephanie73169

    Hi my name is Danielle Snyder I had a lumbar puncture on Tuesday and I was fine the day of and than I got these horrible headaches. Mostly in the back and front of my head. All I do is lay down. When I sit up I get shots of pain in my head and I feel nauseous. Please help me.

  • victoria12171 victoria12171 stephanie73169

    Hi there,

    I know this is an old thread but I was wondering if everyone had recovered? 

    I had an LP 10 days ago and have the worst headache ever. I've had 2 blood patches since but I'm concerned that they haven't worked. Will I be like this forever?

    • emrnewell emrnewell victoria12171


      The short answer for us is yes!! My daughter did recover. It has been 6 months since the lp.

      The long answer is be patient as hard as it is. I was anything but... so I can 100% understand your fears and pain. My daughter had 2 failed blood patches over the course of 6 weeks post lp. The true spinal headaches ended around the 7 week mark and we know that from scans children's hospital used to look at the "highlighted area" around the brain that shows up with low csf cushion. However, her nerves were so inflamed and over stimulated at that point that she went into a longer period of permanent migraine like headaches (until 4 months post lp!!). She had two inpatient hospital stays after that with several neurologists looking after her. Finally around month 5 post lp after a lot of stumped specialists they determined that she may have a nutrient deficiency that both prevented the dura puncture hole to properly heal and the nerves to calm afterwards. Lo and behold she tested positive last month for Celiac so her digestive track is not absorbing nutrients properly. It is a mild case because she has grown fully and is a healthy year round endurance athlete. However looking back vitamin shakes for swimmers have helped her through the years. Had we not had her on those for swimming she may have had more signs other than during a trauma. So.... long story is yes 6 months out she is pretty much fully normal again with the help of time, tests, magnesium supplements, gluten free diet, and continued vitamin shakes. 

      It is scary to say the least but time is your friend.... either it will just heal over on its own soon or doctors will help you find answers. It was really at the 6-8 week mark that doctors felt there was more to her story and started really hunting. Neurologists told us 6 weeks is the mark that the majority of spinal leaks fully heal. It will happen... 

      Hang in there!!!! My heart goes out to you!!! You will heal!

    • Christinacph Christinacph victoria12171

      I have not recovered and is almost 4 years ago I got the lumbalpunction and got several bloodpatch. The headache is gone but I have still much dizziness and tinnitus and been need 4 years because of that. Cant work at all anymore so is not everyone who recover. But if it is only the headache you have I am almost sure you will do. 

  • matyboyie matyboyie stephanie73169

    I'm nearly 4 weeks post LP. I don't have a bad headache as such anymore i just got a feeling that my head is full and ringing in the ears also vertigo/dizziness and feeling like I wanna vomit sometimes. I ended up back at the ER last night they were just concerned that my back still hurt so did an mri of my back and that came back fine also had an mri of my brain the week before and that only showed a partial empty sella. this is crazy im starting to think im never gonna feel better. the hospitals haven't even recommend doing a blood patch dunno if its because it's been 4 weeks. I dunno how much longer of this i can take. did anyone else feel like this for this long ?

    • matyboyie matyboyie Christinacph

      its scary stuff and reading online gets me even more scared cause you see stuff like subdural haematomas and tonsillar herniation that can happen after the lp. here i am no better 4 weeks later and feeling like im gonna be a goner any day now and the hospitals aren't even helping.

    • Christinacph Christinacph

      Yes but they make CT and MRI but only of head but not showing any of theese things. My problems I had 4 years now dizziness, tinnitus and almost fainting. Never had this symptoms before came directly after the day of the lumbalpunction. Is getting slowly better but stress makes it much worse, and the jobcenter is really stressing me and dont get any help at all. 

    • matyboyie matyboyie amina27743

      sorry i can't be a good help on this topic anymore. i thought I had a problems because of my LP but turns out i have a large pineal cyst in my brain thats causing all my problems all along. when I did my research though about the after effects of a lp I think if ur symptoms are still horrid a week after you should go back to where u had it done and request a blood patch because you might have a leak. that should fix the problem.

  • amina27743 amina27743 stephanie73169

    Hi I see that you posted a long time ago but I wanted to know how your feeling now? I had this procedure done 6 days ago and I feel horrible one thing in particular is I feel like my legs and feet and hands are pins and needles and I get very hot. It's a scary feeling along with the severe headaches I don't know what to do


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